Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

13-01-2016 | Original Paper

Parent Expectations Mediate Outcomes for Young Adults with Autism Spectrum Disorder

Auteur: Anne V. Kirby

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2016

Abstract

Understanding the complex relationships among factors that may predict the outcomes of young adults with autism spectrum disorder (ASD) is of utmost importance given the increasing population undergoing and anticipating the transition to adulthood. With a sample of youth with ASD (n = 1170) from the National Longitudinal Transition Study-2, structural equation modeling techniques were used to test parent expectations as a mediator of young adult outcomes (i.e., employment, residential independence, social participation) in a longitudinal analysis. The mediation hypothesis was confirmed; family background and functional performance variables significantly predicted parent expectations which significantly predicted outcomes. These findings add context to previous studies examining the role of parent expectations on young adult outcomes and inform directions for family-centered interventions and future research.

vorige artikel Otitis Media and Related Complications Among Children with Autism Spectrum Disorders

volgende artikel How Sensory Experiences Affect Adolescents with an Autistic Spectrum Condition within the Classroom

Anderson, D. K., Liang, J. W., & Lord, C. (2014). Predicting young adult outcome among more and less cognitively able individuals with autism spectrum disorders. The Journal of Child Psychology and Psychiatry, 55(5), 485–494.CrossRefPubMed

Asparouhov, T., & Muthén, B. (2010). Weighted least squares estimation with missing data. Retrieved from http://www.statmodel.com/download/GstrucMissingRevision.pdf.

Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35, 351–360.CrossRefPubMed

Billstedt, E., Gillberg, I. C., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism, 15(1), 7–20.CrossRefPubMed

Blacher, J., Kraemer, B. R., & Howell, E. J. (2010). Family expectations and transition experiences for young adults with severe disabilities: Does syndrome matter? Advances in Mental Health and Learning Disabilities, 4(1), 3–16.CrossRef

Bowen, N. K., & Guo, S. (2012). Structural equation modeling. New York: Oxford University Press.

Carter, E. W., Austin, D., & Trainor, A. A. (2012). Predictors of postschool employment outcomes for young adults with severe disabilities. Journal of Disability Policy Studies, 23, 50–63.CrossRef

Cederlund, M., Hagberg, B., Billstedt, E., Gillberg, I. C., & Gillberg, C. (2008). Asperger syndrome and autism: A comparative longitudinal follow-up study more than 5 years after original diagnosis. Journal of Autism and Developmental Disorders, 38, 72–85.CrossRefPubMed

Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report, 63(2), 1–21.

Chiang, H.-M., Cheung, Y. K., Li, H., & Tsai, L. Y. (2013). Factors associated with participation in employment for high school leavers with autism. Journal of Autism and Developmental Disorders, 43, 1832–1842.CrossRefPubMed

Cimera, R. E., & Cowan, R. J. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. Autism, 13, 285–302.CrossRefPubMed

Doren, B., Gau, J. M., & Lindstrom, L. E. (2012). The relationship between parent expectations and postschool outcomes of adolescents with disabilities. Exceptional Children, 79(1), 7–23.

Eaves, L. C., & Ho, H. H. (2008). Young adult outcome of autism spectrum disorders. Journal of Autism and Developmental Disorders, 38, 739–749.CrossRefPubMed

Eccles, J. S., & Wigfield, A. (2002). Motivational beliefs, values, and goals. Annual Review of Psychology, 53, 109–132.CrossRefPubMed

Esbensen, A. J., Bishop, S. L., Seltzer, M. M., Greenberg, J. S., & Taylor, J. L. (2010). Comparisons between individuals with autism spectrum disorders and individuals with Down syndrome in adulthood. American Journal on Intellectual and Developmental Disabilities, 115(4), 277–290.CrossRefPubMedPubMedCentral

Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2, 109–118.CrossRefPubMed

Gillespie-Lynch, K., Sepeta, L., Wang, Y., Marshall, S., Gomez, L., Sigman, M., & Hutman, T. (2012). Early childhood predictors of the social competence of adults with autism. Journal of Autism and Developmental Disorders, 42, 161–174.CrossRefPubMedPubMedCentral

Grigal, M., & Neubert, D. A. (2004). Parents’ in-school values and post-school expectations for transition-aged youth with disabilities. Career Development for Exceptional Individuals, 27, 65–85.CrossRef

Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24(2), 77–88.CrossRef

Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17, 103–116.CrossRefPubMedPubMedCentral

Hogan, D. P., & Astone, N. M. (1986). The transition to adulthood. Annual Review of Sociology, 12, 109–130.CrossRef

Holwerda, A., van der Klink, J. J. L., Groothoff, J. W., & Brouwer, S. (2012). Predictors for work participation in individuals with an autism spectrum disorder: A systematic review. Journal of Occupational Rehabilitation, 22, 333–352.CrossRefPubMed

Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212–229.CrossRefPubMed

Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder—A follow-up comparison in early adult life. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology and Psychiatry, 41, 561–578.CrossRefPubMed

Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian Journal of Psychiatry, 57, 275–283.PubMed

Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid-to-later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child and Adolescent Psychiatry, 52, 572–581.CrossRefPubMed

IBM. (2013). IBM SPSS Statistics for Windows, Version 22.0. Armonk, NY: IBM Corp.

Institute of Education Sciences. (n.d.). Welcome to NLTS2. Retrieved from www.nlts2.org.

Interagency Autism Coordinating Committee. (2013). IACC strategic plan for autism spectrum disorder research: 2013 update. Retrieved from http://iacc.hhs.gov/strategic-plan/2013/index.shtml.

Kelloway, E. K. (2015). Using Mplus for structural equation modeling: A researcher’s guide (2nd ed.). Thousand Oaks, CA: SAGE Publications.

Kline, R. B. (2011). Principles and practice of structural equation modeling (3rd ed.). New York: Guilford Press.

Kraemer, B. R., & Blacher, J. (2001). Transition for young adults with severe mental retardation: School preparation, parent expectations, and family involvement. Mental Retardation, 39(6), 423–435.CrossRefPubMed

Levy, A., & Perry, A. (2011). Outcomes in adolescents and adults with autism: A review of the literature. Research in Autism Spectrum Disorders, 5(4), 1271–1282.CrossRef

Lindstrom, L., Doren, B., Metheny, J., Johnson, P., & Zane, C. (2007). Transition to employment: Role of the family in career development. Exceptional Children, 73(3), 348–366.CrossRef

Liptak, G. S., Kennedy, J. A., & Dosa, N. P. (2011). Social participation in a nationally representative sample of older youth and young adults with autism. Journal of Developmental and Behavioral Pediatrics, 32(4), 277–283.CrossRefPubMed

Lockyer, L., & Rutter, M. (1969). A five to fifteen-year follow-up study of infantile psychosis. British Journal of Psychiatry, 115, 865–882.CrossRefPubMed

Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223–232.CrossRefPubMed

McLoyd, V. C. (1998). Socioeconomic disadvantage and child development. American Psychologist, 53(2), 185.CrossRefPubMed

Migliore, A., Timmons, J., Butterworth, J., & Lugas, J. (2012). Predictors of employment and postsecondary education of youth with autism. Rehabilitation Counseling Bulletin, 55(3), 176–184.CrossRef

Muthén, B. (1984). A general structural equation model with dichotomous, ordered categorical, and continuous latent variable indicators. Psychometrika, 49, 115–132.CrossRef

Muthén, L. K., & Muthén, B. O. (2012). Mplus user’s guide (7th ed.). Los Angeles, CA: Muthén and Muthén.

Newman, L., Wagner, M., Knokey, A.-M., Marder, C., Nagle, K., Shaver, D., et al. (2011). The post-high school outcomes of young adults with disabilities up to 8 years after high school: A report from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011-3005. Menlo Park, CA: SRI International.

Orsmond, G. I., Krauss, M. W., & Seltzer, M. M. (2004). Peer relationships and social and recreational activities among adolescents and adults with autism. Journal of Autism and Developmental Disorders, 34(3), 245–256.CrossRefPubMed

Orsmond, G. I., Shattuck, P. T., Cooper, B. P., Sterzing, P. R., & Anderson, K. A. (2013). Social participation among young adults with an autism spectrum disorder. Journal of Autism and Developmental Disoders, 43, 2710–2719.CrossRef

Roux, A. M., Shattuck, P. T., Cooper, B. P., Anderson, K. A., Wagner, M., & Narendorf, S. C. (2013). Postsecondary employment experiences among young adults with an autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(9), 931–939.CrossRefPubMedPubMedCentral

Schreiber, J. B., Nora, A., Stage, F. K., Barlow, E. A., & King, J. (2006). Reporting structural equation modeling and confirmatory factor analysis results: A review. The Journal of Educational Research, 99(6), 323–338.CrossRef

Seltzer, M. M., Shattuck, P., Abbeduto, L., & Greenberg, J. S. (2004). Trajectory of development in adolescents and adults with autism. Mental Retardation and Developmental Disabilities Research Reviews, 10, 234–247.CrossRefPubMed

Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary and employment among youth with an autism spectrum disorder. Pediatrics, 129, 1042–1049.CrossRefPubMedPubMedCentral

Shattuck, P. T., Orsmond, G. I., Wagner, M., & Cooper, B. J. (2011). Participation in social activities among adolescents with an autism spectrum disorder. PLoS One, 6(11), 1–9.CrossRef

Smith, L. E., Maenner, M. J., & Seltzer, M. M. (2012). Developmental trajectories in adolescents and adults with autism: The case of daily living skills. Journal of the American Academy of Child and Adolescent Psychiatry, 51(6), 622–631.CrossRefPubMedPubMedCentral

Tabachnick, B. G., & Fidell, L. S. (2013). Using multivariate statistics (6th ed.). New York: Pearson.

Taylor, J. L. (2009). The transition out of high school and into adulthood for individuals with autism and for their families. In R. M. Hodapp (Ed.), International review of research in mental retardation (Vol. 38, pp. 1–32). New York: Elsevier.

Taylor, J. L., & Mailick, M. R. (2014). A longitudinal examination of 10-year change in vocational and educational activities for adults with autism spectrum disorders. Developmental Psychology, 50(3), 699–708.CrossRefPubMedPubMedCentral

Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.CrossRefPubMedPubMedCentral

United States Census Bureau (2012). POP1 child population: Number of children (in millions) ages 0–17 in the United States by age, 1950–2012 and projected 2013–2050. Retrieved from http://www.childstats.gov/americaschildren/tables/pop1.asp.

Titel: Parent Expectations Mediate Outcomes for Young Adults with Autism Spectrum Disorder
Auteur: Anne V. Kirby
Publicatiedatum: 13-01-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 5/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-015-2691-3

Bohn Stafleu van Loghum

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Andere artikelen Uitgave 5/2016

Mapping the Developmental Trajectory and Correlates of Enhanced Pitch Perception on Speech Processing in Adults with ASD

Exploring What’s Missing: What Do Target Absent Trials Reveal About Autism Search Superiority?

How Are Child Restricted and Repetitive Behaviors Associated with Caregiver Stress Over Time? A Parallel Process Multilevel Growth Model

Change in the Behavioral Phenotype of Adolescents and Adults with FXS: Role of the Family Environment

Does WISC-IV Underestimate the Intelligence of Autistic Children?

Universal Autism Screening for Toddlers: Recommendations at Odds