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Journal of Autism and Developmental Disorders

Gepubliceerd in:

09-08-2016 | Original Paper

Parent and Self-Report Ratings on the Perceived Levels of Social Vulnerability of Adults with Williams Syndrome

Auteurs: Emma Lough, Marisa H. Fisher

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2016

Abstract

The current study took a multi-informant approach to compare parent to self-report ratings of social vulnerability of adults with Williams syndrome (WS). Participants included 102 pairs of adults with WS and their parents. Parents completed the Social Vulnerability Questionnaire and adults with WS completed an adapted version of the questionnaire. Parents consistently reported higher levels of social vulnerability for their son/daughter than the individual with WS reported, with the exception of emotional abuse. The lower ratings of social vulnerability by adults with WS, compared to their parents, offer new information about their insight into their own vulnerability. These findings highlight the importance of teaching self-awareness as a part of a multi-informant approach to interventions designed to target social vulnerability.

vorige artikel How Families Make Sense of Their Child’s Behaviour When on an Autism Assessment and Diagnosis Waiting List

volgende artikel Supportive Dyadic Coping and Psychological Adaptation in Couples Parenting Children with Autism Spectrum Disorder: The Role of Relationship Satisfaction

Burke, M. M., Taylor, J. L., Urbano, R., & Hodapp, R. (2012). Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 117, 33–47.CrossRefPubMed

Davies, M., Udwin, O., & Howlin, P. (1998). Adults with Williams syndrome. Preliminary study of social, emotional and behavioural difficulties. The British Journal of Psychiatry, 172, 273–276. doi:10.1192/bjp.172.3.273.CrossRefPubMed

De Los Reyes, A., Augenstein, T. M., Wang, M., Thomas, S. A., Drabick, D. A., Burgers, D. E., et al. (2015). The validity of the multi-informant approach to assessing child and adolescent mental health. Psychological Bulletin, 141(4), 858–900.CrossRefPubMedPubMedCentral

De Los Reyes, A., Thomas, S. A., Goodman, K. L., & Kundey, S. M. (2013). Principles underlying the use of multiple informants’ reports. Annual Review of Clinical Psychology, 9, 123–149.CrossRefPubMed

Emmerson, L. C., Granholm, E., Link, P. C., McQuaid, J. R., & Jeste, D. V. (2009). Insight and treatment outcome with cognitive-behavioral social skills training for older people with schizophrenia. Journal of Rehabilitation Research and Development, 46(8), 1053–1058.CrossRefPubMed

Fisher, M. H., Lense, M. D., & Dykens, E. M. (in press). Longitudinal trajectories of intellectual and adaptive functioning in adolescents and adults with Williams syndrome. Journal of Intellectual Disability Research.

Fisher, M. H., Mello, M. P., & Dykens, E. M. (2014). Who reports it best? A comparison between parent-report, self-report, and the real life social behaviors of adults with Williams syndrome. Research in Developmental Disabilities, 35, 3276–3284.CrossRefPubMedPubMedCentral

Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2012). Vulnerability and experiences related to social victimization among individuals with intellectual and developmental disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5, 32–48.CrossRef

Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2013). Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome. Research in Autism Spectrum Disorders, 7, 931–937.CrossRefPubMedPubMedCentral

Greenspan, S., Loughlin, G., & Black, R. S. (2001). Credulity and gullibility in people with developmental disorders: A framework for future research. In L. M. Glidden (Ed.), International review of research in mental retardation (Vol. 24, pp. 101–135). San Diego: Academic Press.

Hillier, L., Fulton, R., Fulton, L., Graves, T., Pepin, K., Wagner-McPherson, C., et al. (2003). The DNA sequence of human chromosome. Nature, 7, 157–164.CrossRef

Järvinen, A., Korenberg, J. R., & Bellugi, U. (2013). The social phenotype of Williams syndrome. Current Opinion in Neurobiology, 23, 414–422.CrossRefPubMedPubMedCentral

Järvinen-Pasley, A., Adolphs, R., Yam, A., Hill, K. J., Grichanik, M., Reilly, J., et al. (2010). Affiliative behavior in Williams syndrome: Social perception and real-life social behavior. Neuropsychologia, 48, 2110–2119.CrossRefPubMedPubMedCentral

Jawaid, A., Riby, D., Owens, J., White, S., Tarar, T., & Schulz, P. (2012). ‘Too withdrawn’ or ‘too friendly’: Considering social vulnerability in two neuro-developmental disorders. Journal of Intellectual Disability Research, 56, 335–350.CrossRefPubMed

Kaufman, A. S., & Kaufman, N. L. (2004). Kaufman Brief Intelligence Test (2nd ed.). Bloomington, MN: Pearson.

Llewellyn, P., & Northway, R. (2008). The views and experiences of people with intellectual disabilities concerning advocacy A focus group study. Journal of Intellectual Disabilities, 12(3), 213–228.CrossRefPubMed

Lough, E., Flynn, E., & Riby, D. (2015). Mapping real-world to online vulnerability in young people with developmental disorders: Illustrations from autism and Williams syndrome. Review Journal of Autism and Developmental Disorders, 2, 1–7. doi:10.1007/s40489-014-0029-2.CrossRef

Mansell, J., Beadle-Brown, J., Cambridge, P., Milne, A., & Whelton, B. (2009). Adult protection incidence of referrals, nature and risk factors in two English local authorities. Journal of Social Work, 9(1), 23–38.CrossRef

Medalia, A., & Lim, R. W. (2004). Self-awareness of cognitive functioning in schizophrenia. Schizophrenia Research, 71(2), 331–338.CrossRefPubMed

Mervis, C. B., Kistler, D. J., John, A. E., & Morris, C. A. (2012). Longitudinal assessment of intellectual abilities of children with Williams syndrome: Multilevel modeling of performance on the Kaufman Brief Intelligence Test-Second Edition. American Journal on Intellectual and Developmental Disabilities, 117, 134–155. doi:10.1352/1944-7558-117.2.134.CrossRefPubMedPubMedCentral

Mervis, C. B., Robinson, B. F., Bertrand, J., Morris, C. A., Klein-Tasman, B. P., & Armstrong, S. C. (2000). The Williams syndrome cognitive profile. Brain and Cognition, 44, 604–628.CrossRefPubMed

Mitchell, K. J., Jones, L. M., Finkelhor, D., & Wolak, J. (2011). Internet-facilitated commercial sexual exploitation of children: Findings from a nationally representative sample of law enforcement agencies in the United States. Sexual Abuse: A Journal of Research and Treatment, 23, 43–71.

Nettelbeck, T., & Wilson, C. (2001). Criminal victimization of persons with mental retardation: The influence of interpersonal competence on risk. International Review of Research in Mental Retardation, 24, 137–169.CrossRef

Nettelbeck, T., & Wilson, C. (2002). Personal vulnerability to victimization of people with mental retardation. Trauma, Violence, & Abuse, 3, 289–306.CrossRef

O’Leary, P. J., & Barber, J. (2008). Gender differences in silencing following childhood sexual abuse. Journal of Child Sexual Abuse: Research, Treatment, and Program Innovations for Victims, Survivors, and Offenders, 17, 133–143.CrossRef

Riby, D. M., Hanley, M., Kirk, H., Clark, F., Little, K., Fleck, R., et al. (2014). The interplay between anxiety and social functioning in Williams syndrome. Journal of Autism and Developmental Disorders, 44, 1220–1229.CrossRefPubMed

Rosner, B. A., Hodapp, R. M., Fidler, D. J., Sagun, J. N., & Dykens, E. M. (2004). Social competence in persons with Prader-Willi, Williams and Down’s syndromes. Journal of Applied Research in Intellectual Disabilities, 17(3), 209–217.CrossRef

Searcy, Y. M., Lincoln, A., Rose, F., Klima, E., Bavar, N., & Korenberg, J. R. (2004). The relationship between age and IQ in adults with Williams syndrome. American Journal on Mental Retardation, 109, 231–236.CrossRefPubMed

Seltzer, M. M., & Li, L. W. (1996). The transitions of caregiving: Subjective and objective definitions. The Gerontologist, 36, 614–626.CrossRefPubMed

Stromme, P., Bjomstad, P. G., & Ramstad, K. (2002). Prevalence estimation of Williams syndrome. Journal of Child Neurology, 17(4), 269–271.CrossRefPubMed

Tavakol, M., & Dennick, R. (2011). Making sense of Cronbach’s alpha. International Journal of Medical Education, 2, 53–55.CrossRefPubMedCentral

Thurman, A. E., & Fisher, M. H. (2015). The Williams syndrome social phenotype: Disentangling the contributions of social interest and social difficulties. International Review of Research in Developmental Disabilities, 49, 191–227.CrossRef

Wilson, C., & Brewer, N. (1992). The incidence of criminal victimisation of individuals with an intellectual disability. Australian Psychologist, 27(2), 114–117.CrossRef

Titel: Parent and Self-Report Ratings on the Perceived Levels of Social Vulnerability of Adults with Williams Syndrome
Auteurs: Emma Lough
Marisa H. Fisher
Publicatiedatum: 09-08-2016
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2016
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-016-2885-3

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