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Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP’s ability to deliver family-centered care. A majority of parents rated their PCP’s ability as “not good” in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as “good” in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP’s ability to meet ASD specific needs as “good”. Both parents and PCPs identified areas for improvement in caring for children with ASD.
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American Academy of Pediatrics. (2012). Autism: Caring for children with autism spectrum disorders—A resource toolkit for clinicians (2nd ed.). Elk Grove Village: American Academy of Pediatrics.
American Academy of Pediatrics Medical Home Initiatives for Children with Special Needs Project Advisory Committee. (2002). The medical home. Pediatrics,110, 184–186. CrossRef
Association for Science in Autism Treatment. (2012). http://www.asatonline.org/. Accessed February 17, 2012.
Autism Speaks Family Services Tool Kits. (2012). http://www.autismspeaks.org/family-services/tool-kits. Accessed June 13, 2012.
Autism Speaks Resourse Guide. (2012). http://www.autismspeaks.org/family-services/resource-guide. Accessed March 5, 2012.
Autism Votes. (2012). An autism speaks initiative. http://www.autismvotes.org/site/c.frKNI3PCImE/b.3909861/k.B9DF/State_Initiatives.htm. Accessed February 17, 2012.
Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs: National survey of children’s health. Archives of Pediatrics and Adolescent Medicine,161(4), 399–405. PubMedCrossRef
CDC. (2009). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, United States, 2006. MMWR Surveill Summ,58(10), 1–20.
Chiri, G., & Warfield, M. E. (2011). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal,. doi: 10.1007/s10995-011-0833-6.
Committee on Children with Disabilities. (2001). American Academy of Pediatrics: Counseling families who choose complementary and alternative medicine for their child with chronic illness or disability. Pediatrics,107(3), 598–601.
Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2011). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders,42(2), 257–265. CrossRef
Golnik, A., Scal, P., Wey, A., & Gaillard, P. (2011). Autism-specific primary care medical home intervention. Journal of Autism and Developmental Disorders,. doi: 10.1007/s10803-011-1351-5.
Gupta, V. B., O’Connor, K. G., & Quezada-Gomez, C. (2004). Care coordination services in pediatric practices. Pediatrics,113(5 Suppl), 1517–1521. PubMed
Harrington, J. W., Rosen, L., Garnecho, A., & Patrick, P. A. (2006). Parental perceptions and use of complementary and alternative medicine practices for children with autistic spectrum disorders in private practice. Journal of Developmental and Behavioral Pediatrics,27(2 Suppl), S156–S161. PubMedCrossRef
King, G. A., Rosenbaum, P. L., & King, S. M. (1997). Evaluating family-centred service using a measure of parents’ perceptions. Child: Care, Health and Development,23(1), 47–62. CrossRef
Liptak, G. S., & Revell, G. M. (1989). Community physician’s role in case management of children with chronic illnesses. Pediatrics,84(3), 465–471. PubMed
Liptak, G. S., Orlando, M., Yingling, J. T., Theurer-Kaufman, K. L., Malay, D. P., Tompkins, L. A., et al. (2006). Satisfaction with primary health care received by families of children with developmental disabilities. Journal of Pediatrics Health Care,20(4), 245–252. CrossRef
Medical Home Portal. (2011). http://www.medicalhomeportal.org/. Accessed February 18, 2012.
National Center for Complementary and Alternative Medicine. (2012). http://nccam.nih.gov/. Accessed February 17, 2012.
National Conference of State Legislatures. (2012). Insurance coverage for autism. http://www.ncsl.org/issues-research/health/autism-and-insurance-coverage-state-laws.aspx. Accessed February 17, 2012.
Section on Complementary and Integrative Medicine; Council on Children with Disabilities. (2012). Sensory integration therapies for children with developmental and behavioral disorders. Pediatrics,129(6), 1186–1189. CrossRef
Weedon, D., Carbone, P. S., Bilder, D., O’Brien, S., & Dorius, D. (in press). Building a person-centered medical home: Lessons from a program for people with developmental disabilities. Journal of Health Care for the Poor and Underserved.
Wise, M. D., Little, A. A., Holliman, J. B., Wise, P. H., & Wang, C. J. (2010). Can state early intervention programs meet the increased demand of children suspected of having autism spectrum disorders? Journal of Developmental and Behavioral Pediatrics,31(6), 469–476. PubMed
- Parent and Pediatrician Perspectives Regarding the Primary Care of Children with Autism Spectrum Disorders
Paul S. Carbone
Nancy A. Murphy
Paul C. Young
- Springer US