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01-08-2015 | Original Paper

Online Social Support Experiences of Mothers of Children with Autism Spectrum Disorder

Auteurs: Jennifer S. Reinke, Catherine A. Solheim

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 8/2015

Abstract

This exploratory study examines how mothers of children with autism spectrum disorder (ASD) make sense of their experiences of looking for and subsequently finding (or not finding) online emotional and informational support. Using interpretative phenomenological analysis, we analyzed semi-structured interviews with 14 mothers of children with ASD. The analysis yielded two main themes, (a) seeking is an ongoing part of my life, and (b) I need to be connected and to be understood. Our findings suggest that the Internet and associated online activities serve as important sources of both emotional and informational support. These findings can be used to inform future research in addition to suggesting ways for clinicians and healthcare professionals to improve online support services and resources for parents of children with ASD.

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Altiere, M. J., & von Kluge, S. (2009). Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18, 83–92. doi:10.1007/s10826-008-9209-y.CrossRef

Blackburn, C., & Read, J. (2005). Using the internet? The experiences of parents of disabled children. Child: Care, Health & Development, 31(5), 507–515. Retrieved from http://www.wiley.com/bw/journal.asp?ref=0305-1862.

Bloch, J. S., & Weinstein, J. D. (2010). Families of young children with autism. Social Work in Mental Health, 8(1), 23–40. doi:10.1080/15332980902932342.CrossRef

Boyd, B. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and other Developmental Disabilities, 17(4), 208–215. doi:10.1177/1088357602017004030.CrossRef

Burke, P., & Cigno, K. (1996). Support for families: Helping children with learning disabilities. Aldershot: Avebury.

Centers for Disease Control (CDC) (2014). 10 Things to know about new autism data. Retrieved from http://www.cdc.gov/features/dsautismdata/.

Dahlberg, K., Dahlberg, H., & Nystrom, M. (2008). Reflective lifeworld research. Lund, Sweden: Studentlitteratur.

Dyches, T. T., Wilder, L. K., Sudweeks, R. R., Obiakor, F. E., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34(2), 211–222. doi:10.1023/B:JADD.0000022611.80478.73.PubMedCrossRef

Fleischmann, A. (2005). The hero’s story and autism: Grounded theory study of websites for parents of children with autism. Autism, 9(3), 299–316. doi:10.1177/1362361305054410.PubMedCrossRef

Ha, J.-H., Greenberg, J. S., & Seltzer, M. M. (2011). Parenting a child with a disability: The role of social support for African American families. Families in Society: The Journal of Contemporary Social Services, 92(4), 405–411. doi:10.1606/1044-3894.4150.CrossRef

Hinson Langford, C. P., Bowsher, J., Maloney, J. P., & Lillis, P. P. (1997). Social support: A conceptual analysis. Journal of Advanced Nursing, 25, 95–100.CrossRef

House, J. S. (1981). Work stress and social support. Reading, MA: Addison-Wesley.

Huws, J., Jones, R., & Ingledew, D. (2001). Parents of children with autism using an Email group: A grounded theory study. Journal of Health Psychology, 6(5), 569–584.PubMedCrossRef

Kirby, A., Edwards, L., & Hughes, A. (2008). Parents’ concerns about children with specific learning difficulties: Insights gained from an online message centre. Support for Learning, 23(4), 193–200. doi:10.1111/j.1467-9604.2008.00393.x.CrossRef

Millward, C., Ferriter, M., Calver, S., & Connell-Jones, G. (2004). Gluten- and casein-free diets for autistic spectrum disorder. Cochrane Database of Systematic Reviews, 2. doi:10.1002/14651858.CD003498.pub2.

Mishna, F., Bogo, M., Root, J., Sawyer, J.-L., & Khoury-Kassabri, M. (2012). “It just crept in”: The digital age and implications for social work practice. Clinical Social Work Journal, 40, 277–286. doi:10.1007/s10615-012-0383-4.CrossRef

Molteni, P., & Maggiolini, S. (2014). Parents’ perspectives towards the diagnosis of autism: An Italian case study research. Journal of Child and Family Studies,. doi:10.1007/s10826-014-9917-4.

Norton, P., & Drew, C. (1994). Autism and potential family stressors. The American Journal of Family Therapy, 22, 67–76. Retrieved from http://www.tandf.co.uk/journals/titles/01926187.asp.

Shtayermman, O. (2013). Stress and marital satisfaction of parents to children diagnosed with autism. Journal of Family Social Work, 16(3), 243–359. doi:10.1080/10522158.2013.786777.CrossRef

Sinha, Y., Silove, N., & Williams, K. (2006). Chelation therapy and autism. British Medical Journal, 333(7571), 756. http://www.jstor.org/stable/40700389.

Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretive phenomenological analysis: Theory, method, and research. Thousand Oaks, CA: Sage.

Vagle, M. D. (2009). Validity as intended: ‘Bursting forth toward’ bridling in phenomenological research. International Journal of Qualitative Studies in Education, 22(5), 585–605. doi:10.1080/09518390903048784.CrossRef

van Manen, M. (1990). Researching lived experience: Human science for an action sensitive pedagogy (1st ed.). New York: SUNY Press.

VanBergeijk, E. O., & Shtayermman, O. (2005). Asperger’s syndrome. Journal of Human Behavior in the Social Environment, 12(1), 23–37. doi:10.1300/J137v12n01_02.CrossRef

Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115–130. doi:10.1177/1362361302006001009.PubMedCrossRef

Weiss, J. A., & Lunsky, Y. (2011). The brief family distress scale: A measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies, 20, 521–528. doi:10.1007/s10826-010-9419-y.CrossRef

Titel: Online Social Support Experiences of Mothers of Children with Autism Spectrum Disorder
Auteurs: Jennifer S. Reinke
Catherine A. Solheim
Publicatiedatum: 01-08-2015
Uitgeverij: Springer US
Gepubliceerd in: Journal of Child and Family Studies / Uitgave 8/2015
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI: https://doi.org/10.1007/s10826-014-0039-9

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