Skip to main content
Top

2017 | OriginalPaper | Hoofdstuk

36. Onderzoek naar de kwaliteit van leven van kankerpatiënten

Auteurs : L. V. van de Poll-Franse, J. B. Prins, I. M. Verdonck-de Leeuw

Gepubliceerd in: Leerboek oncologie

Uitgeverij: Bohn Stafleu van Loghum

share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Samenvatting

De hoeveelheid onderzoek naar kwaliteit van leven van kankerpatiënten, maar ook van ex-kankerpatiënten (‘survivors’), is de afgelopen decennia sterk toegenomen. Door de vergrijzing en verbeteringen in vroege detectie, diagnostiek en behandeling worden steeds meer mensen gediagnosticeerd met kanker. Het aantal mensen dat (lang) na de diagnose kanker leeft, neemt sterk toe. Hierdoor is er meer aandacht ontstaan voor de lichamelijke, psychische en sociale gevolgen die kanker en de behandeling meebrengen. Dit hoofdstuk geeft een overzicht van kwaliteit-van-leven-definities, hoe kwaliteit van leven gemeten wordt, typen vragenlijsten, soorten onderzoek en recente ontwikkelingen.
Literatuur
go back to reference Basch E, Abernethy AP, Mullins CD, Reeve BB, Smith ML, Coons SJ, et al. Recommendations for incorporating patient-reported outcomes into clinical comparative effectiveness research in adult oncology. J Clin Oncol. 2012;30(34):4249–55.CrossRefPubMed Basch E, Abernethy AP, Mullins CD, Reeve BB, Smith ML, Coons SJ, et al. Recommendations for incorporating patient-reported outcomes into clinical comparative effectiveness research in adult oncology. J Clin Oncol. 2012;30(34):4249–55.CrossRefPubMed
go back to reference Basch E, Reeve BB, Mitchell SA, Clauser SB, Minasian LM, Dueck AC, et al. Development of the National Cancer Institute's patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE). J Natl Cancer Inst. 2014 Sep 29;106(9). Basch E, Reeve BB, Mitchell SA, Clauser SB, Minasian LM, Dueck AC, et al. Development of the National Cancer Institute's patient-reported outcomes version of the common terminology criteria for adverse events (PRO-CTCAE). J Natl Cancer Inst. 2014 Sep 29;106(9).
go back to reference Brundage M, Bass B, Davidson J, Queenan J, Bezjak A, Ringash J, et al. Patterns of reporting health-related quality of life outcomes in randomized clinical trials: implications for clinicians and quality of life researchers. Qual Life Res. 2011;20(5):653–64.CrossRefPubMed Brundage M, Bass B, Davidson J, Queenan J, Bezjak A, Ringash J, et al. Patterns of reporting health-related quality of life outcomes in randomized clinical trials: implications for clinicians and quality of life researchers. Qual Life Res. 2011;20(5):653–64.CrossRefPubMed
go back to reference Calvert M, Blazeby J, Altman DG, Revicki DA, Moher D, Brundage MD, et al. Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension. JAMA. 2013;309(8):814–22.CrossRefPubMed Calvert M, Blazeby J, Altman DG, Revicki DA, Moher D, Brundage MD, et al. Reporting of patient-reported outcomes in randomized trials: the CONSORT PRO extension. JAMA. 2013;309(8):814–22.CrossRefPubMed
go back to reference Ganz PA, Land SR, Antonio C, Zheng P, Yothers G, Petersen L, et al. Cancer survivorship research: the challenge of recruiting adult long term cancer survivors from a cooperative clinical trials group. J Cancer Surviv. 2009;3(3):137–47.CrossRefPubMedPubMedCentral Ganz PA, Land SR, Antonio C, Zheng P, Yothers G, Petersen L, et al. Cancer survivorship research: the challenge of recruiting adult long term cancer survivors from a cooperative clinical trials group. J Cancer Surviv. 2009;3(3):137–47.CrossRefPubMedPubMedCentral
go back to reference Hui D, Meng YC, Bruera S, Geng Y, Hutchins R, Mori M, et al. Referral criteria for outpatient palliative cancer care: a systematic review, The Oncologist 2016 (7):895-901. Hui D, Meng YC, Bruera S, Geng Y, Hutchins R, Mori M, et al. Referral criteria for outpatient palliative cancer care: a systematic review, The Oncologist 2016 (7):895-901.
go back to reference Jensen RE, Snyder CF, Abernethy AP, Basch E, Potosky AL, Roberts AC, et al. Review of electronic patient-reported outcomes systems used in cancer clinical care. J Oncol Pract. 2014; 10(4):e215–22.CrossRefPubMed Jensen RE, Snyder CF, Abernethy AP, Basch E, Potosky AL, Roberts AC, et al. Review of electronic patient-reported outcomes systems used in cancer clinical care. J Oncol Pract. 2014; 10(4):e215–22.CrossRefPubMed
go back to reference Mitchell AJ, Chan M, Bhatti H, Halton M, Grassi L, Johansen C, et al. Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: a meta-analysis of 94 interview-based studies. Lancet Oncol. 2011;12(2):160–74.CrossRefPubMed Mitchell AJ, Chan M, Bhatti H, Halton M, Grassi L, Johansen C, et al. Prevalence of depression, anxiety, and adjustment disorder in oncological, haematological, and palliative-care settings: a meta-analysis of 94 interview-based studies. Lancet Oncol. 2011;12(2):160–74.CrossRefPubMed
go back to reference Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality-of-life scores. J Clin Oncol. 1998;16(1):139–44.CrossRefPubMed Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality-of-life scores. J Clin Oncol. 1998;16(1):139–44.CrossRefPubMed
go back to reference Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48(11):1507–15.CrossRefPubMed Sprangers MA, Schwartz CE. Integrating response shift into health-related quality of life research: a theoretical model. Soc Sci Med. 1999;48(11):1507–15.CrossRefPubMed
go back to reference Thong MS, Mols F, Stein KD, Smith T, Coebergh JW, Poll-Franse LV van de. Population-based cancer registries for quality-of-life research: a work-in-progress resource for survivorship studies? Cancer 2013;119 (Suppl 11):2109–23.CrossRefPubMed Thong MS, Mols F, Stein KD, Smith T, Coebergh JW, Poll-Franse LV van de. Population-based cancer registries for quality-of-life research: a work-in-progress resource for survivorship studies? Cancer 2013;119 (Suppl 11):2109–23.CrossRefPubMed
go back to reference Verdonck-de Leeuw IM, Bree R de, Keizer AL, Houffelaar T, Cuijpers P, Linden MH van der, et al. Computerized prospective screening for high levels of emotional distress in head and neck cancer patients and referral rate to psychosocial care. Oral Oncol. 2009;45(10):e129–33.CrossRefPubMed Verdonck-de Leeuw IM, Bree R de, Keizer AL, Houffelaar T, Cuijpers P, Linden MH van der, et al. Computerized prospective screening for high levels of emotional distress in head and neck cancer patients and referral rate to psychosocial care. Oral Oncol. 2009;45(10):e129–33.CrossRefPubMed
Metagegevens
Titel
Onderzoek naar de kwaliteit van leven van kankerpatiënten
Auteurs
L. V. van de Poll-Franse
J. B. Prins
I. M. Verdonck-de Leeuw
Copyright
2017
Uitgeverij
Bohn Stafleu van Loghum
DOI
https://doi.org/10.1007/978-90-368-0442-4_36