There is growing interest in the importance of family support in the home care of children with profound intellectual and multiple disabilities (PIMD) in Japan. Owing to advances in medical technology and governmental policies, the number of children with PIMD receiving home care is rapidly increasing in Japan (Asakura,
2006). In Japan, children with PIMD are defined as those who have an IQ of 35 or below and who are confined to a bed or sitting position (Asakura,
2006). The definition of children with PIMD has been mainly used to determine the users of medical and social services (Matsuo et al.,
2005). The incidence of children and people with PIMD in Japan is reported to be approximately 0.2–0.4 children per 1000 persons according to municipal surveys (Aichi Prefecture,
2022; Okada,
2013), with an estimated number of approximately 30,000 people with PIMD in 2001 and 40,000 in 2012 (Asakura,
2006; Okada,
2013); most of them live at home (Asakura,
2006; Ministry of Health, Labour and Welfare,
2021). …