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Journal of Autism and Developmental Disorders

Gepubliceerd in:

01-05-2011 | Original Paper

Mothers of Children with Developmental Disorders in the Bedouin Community in Israel: Family Functioning, Caregiver Burden, and Coping Abilities

Auteur: Iris Manor-Binyamini

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 5/2011

Abstract

This preliminary study compares the family functioning, caregiver burden, and coping abilities between mothers of 300 children with developmental disorders and mothers of 100 children with no such disorders in the Bedouin community in Israel. The mothers completed the McMaster Family Assessment Device Scale, the Caregiver Burden Index, and the Sense of Coherence Scale. Mothers of children with developmental disorders reported lower family functioning, a higher caregiver burden, and a lower sense of coherence and thus lower coping abilities than mothers of children with no disorders. The study highlights the need to provide professional support for mothers of children with developmental disorders and to develop awareness and culturally appropriate intervention programs to enhance these mothers’ coping abilities.

vorige artikel Bridging the Research-to-Practice Gap in Autism Intervention: An Application of Diffusion of Innovation Theory

volgende artikel Maternal Early Life Factors Associated with Hormone Levels and the Risk of Having a Child with an Autism Spectrum Disorder in the Nurses Health Study II

Abudabbeh, N. (1996). Arab families. In M. McGoldrick, J. Giordano, & J. K. Pearce (Eds.), Ethnicity and family therapy (pp. 333–346). New York: Guilford Press.

Alhazail, A., & Atawna, R. (2005). Social rights. In The arab woman in the negev: Reality and challenges (pp. 53–61). A report of Ma’an, the Forum of Arab Women’s Associations in the Negev. (In Hebrew).

Antonovsky, A. (1987). Unraveling the mystery of health: How people manage stress and stay well. San Francisco: Jossey-Bass.

Antonovsky, A. (1993). The structure and properties of the sense of coherence scale. Social Science and Medicine, 36(2), 725–733.PubMed

A-Sana, R., & Al-Asad, H. (2005). The right to housing. In The arab woman in the negev: Reality and challenges (pp. 15–25). A report of Ma’an, the Forum of Arab Women’s Associations in the Negev. (In Hebrew).

Banks, M. E. (2003). Disability in the family: A life span perspective. Cultural Diversity and Ethnic Minority Psychology, 9, 367–384.PubMedCrossRef

Beresford, B. A. (1994). Resources and strategies; How parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35(1), 171–209.PubMedCrossRef

Carel, S., Krispin, A. & Jaber, L. (1999). Psychosocial behavior among children: A survey of children in primary care. In Proceedings of the CDC annual conference on health in the arab sector in Israel. HaMakabia Hotel, Ramat Gan, Israel (Dec.).

Dagirmanjian, S. (1996). Armenian families. In M. McGoldrick, J. Giordano, & J. K. Pearce (Eds.), Ethnicity and family therapy (pp. 376–391). New York: Guilford Press.

Efter, A. (1999). Mental retardation. In S. Tiano (Ed.), Psychiatry of the adolescent child (2nd ed.). Tel-Aviv: Tel-Aviv University Press. In Hebrew.

Epstein, N. B., Baldwin, M. N., & Bishop, D. S. (1983). The McMaster family assessment device. Journal of Martial and Family Therapy, 9, 171–180.CrossRef

Flynt, S. W., Wood, T. A., & Scott, R. L. (1992). Social support of mothers to children with mental retardation. Mental Retardation, 30(4), 233–236.PubMed

Gulseth, S. K. (1991). Factor influencing the coping of mothers to hospitalized children. Nursing Research, 40, 42–46.

Jalali, B. (1996). Iranian families. In M. McGoldrick, J. Giordano, & J. K. Pearce (Eds.), Ethnicity and family therapy (pp. 347–363). New York: Guilford Press.

Khamis, V. (2007). Psychological distress among parents of children with mental retardation in the United Arab Emirates. Social Science and Medicine, 64, 850–857.PubMedCrossRef

Kornblatt, F., & Henrich, J. (1985). Needs and coping abilities in families of children with developmentally disabilities. Mental Retardation, 23, 13–19.PubMed

Krauss, M. W., & Seltzre, M. M. (1999). An unanticipated life: The impact of lifelong caregiving. In G. Dybwad & H. A. Bersani (Eds.), Responding to the challenge: Current trends and international issues in developmental disabilities. Cambridge: Brookline Books.

Lazarus, R. S., & Folkman, S. (1984). Coping and adaptation. In W. D. Genntry (Ed.), Handbook of behavioral medicine. New York: The Guilford Press.

Litvak, H. (2002). Policy lines for the revival of the bedouin settlements. The Center for Social Policy Research in Israel. (In Hebrew).

Manor-Binyamini, I. (2007). Special education in the Bedouin community in Israel’s Negev region. International Journal of Special Education, 22(2), 109–118.

Manor-Binyamini, I. (2008). Dimensions of collaboration between professionals and parents of Bedouin children with intellectual disabilities: The interdisciplinary aspect and the parental aspect. Research report. Financed by the Shalem Foundation. (In Hebrew).

Menolascino, F. J. (1968). Parents of the mentally retarded: An operational approach to diagnosis and management. Journal of the American Academy of Child Psychiatry, 7(4), 586–602.CrossRef

Miller, I. W., Epstein, N. B., Bishop, D. S., & Keitner, G. I. (1985). The McMaster family assessment device: Reliability and validity. Journal of Marital and Family Therapy, 11, 345–356.CrossRef

Ministry of Education. (1999). Budget proposal for the financial year 2000. Jerusalem, Israel. (In Hebrew).

Peters, J. S. (2009). Review of marginalization of people with disabilities in Lebanon, Syria and Jordan. Background paper prepared for the Education for All Global Monitoring Report 2010. UNESCO.

Raz, A., Atar, M., Rodnay, M., Shoham-Vardi, I., & Carmi, R. (2003). Between acculturation and ambivalence: Knowledge of genetics and attitudes towards genetic testing in a consanguineous Bedouin community. Community Genetics, 6, 88–95.PubMedCrossRef

Reiter, S., Mari, S., & Rosenberg, Y. (1986). Parental attitudes toward the developmentally disabled among Arab community in Israel: A cross-cultural study. International Journal of Rehabilitation Research, 9(4), 355–362.PubMed

Roach, M. A., Ormond, G. I., & Barratt, M. S. (1999). Mother and father of children with down syndrome: Parental stress and involvement in children. American Journal of Mental Retardation, 104, 422–436.PubMedCrossRef

Robinson, B. C. (1983). Validation of a caregiver strain index. Journal of Gerontology, 38(3), 344–348.PubMed

Seligman, M. (1985). Handicapped children and their families. Journal of Counseling and Development, 64(4), 27–274.

Seligman, M., & Darling, R. B. (1997). Ordinary families, special children: A systems approach to childhood disability. New York: The Guilford Press.

Simon, J. P. (1996). Lebanese families. In M. McGoldrick, J. Giordano, & J. K. Pearce (Eds.), Ethnicity and family therapy (2nd ed., pp. 364–375). New York: Guilford Press.

Strosberg, N., Naon, D., & Ziv, A. (2008). Children with special needs in the Bedouin society in the Negev: Characteristics, patterns of using services, and the implications of the mothers’ care for the children: Research report. Jerusalem: Myers-Joint–Brookdale Institute. In Hebrew.

The Statistical Annual of the Negev Bedouin. (2004). The center for research and development of the bedouin community, the Negev Center for Regional Development, and the Conrad Adenauer Foundation. (In Hebrew).

Yamada, A., Suzuki, M., Kato, M., Suzuki, M., Tanaka, S., Shondo, T., et al. (2007). Emotional distress and its correlates among parents of children with pervasive developmental disorders. Psychiatry and Clinical Neurosciences, 61, 651–657.PubMedCrossRef

Titel: Mothers of Children with Developmental Disorders in the Bedouin Community in Israel: Family Functioning, Caregiver Burden, and Coping Abilities
Auteur: Iris Manor-Binyamini
Publicatiedatum: 01-05-2011
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 5/2011
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-010-1080-1

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