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Gepubliceerd in:

01-06-2009

Modification, translation and adaptation of questionnaires should copyright laws be observed?

Auteur: Elizabeth F. Juniper

Gepubliceerd in: Quality of Life Research | Uitgave 5/2009

Abstract

This commentary is intended to start a discussion about whether people should be allowed to modify, translate, adapt or sell copyrighted questionnaires without the permission of the developer (copyright-holder).

vorige artikel How to guarantee finding a statistically significant difference: the use and abuse of subgroup analyses

volgende artikel An 18-item AQLQ(S) model: a reply to Juniper

Juniper, E. F., Buist, A. S., Cox, F. M., Ferrie, P. J., & King, D. R. (1999). Validation of a standardized version of the asthma quality of life questionnaire. Chest, 115, 1265–1270. doi: 10.1378/chest.115.5.1265. PubMedCrossRef

Grammatopoulou, E., Skordilis, E., Koutsouki, D., & Baltopoulos, G. (2008). An 18-item standardised asthma quality of life questionnaire—AQLQ(S). Quality of Life Research, 17, 323–332. doi: 10.1007/s11136-007-9297-y. PubMedCrossRef

Acquadro, C., Conway, K., Giroudet, C., & Mear, I. (2004). Linguistic validation manual for patient-reported outcomes (PRO) instruments. Lyon, France: MAPI Research Institute.

Juniper, E. F., Guyatt, G. H., Epstein, R. S., Ferrie, P. J., Jaeschke, R., & Hiller, T. K. (1992). Evaluation of impairment of health-related quality of life in asthma: Development of a questionnaire for use in clinical trials. Thorax, 47, 76–83. doi: 10.1136/thx.47.2.76. PubMedCrossRef

Juniper, E. F., Guyatt, G. H., Streiner, D. L., & King, D. R. (1997). Clinical impact versus factor analysis for quality of life questionnaire construction. Journal of Clinical Epidemiology, 50, 233–238. doi: 10.1016/S0895-4356(96)00377-0. PubMedCrossRef

Juniper, E. F., Guyatt, G. H., Cox, F. M., Ferrie, P. J., & King, D. R. (1999). Development and validation of the mini asthma quality of life questionnaire. The European Respiratory Journal, 14, 32–38. doi: 10.1034/j.1399-3003.1999.14a08.x. PubMedCrossRef

Juniper, E. F., Schatz, M., Juniper, B. A., & Zeiger, R. S. (2008). Evaluation of two interactive voice response telephone versions of health-related quality of life questionnaires. The Journal of Allergy and Clinical Immunology, 122, 654–655. doi: 10.1016/j.jaci.2008.05.003. PubMedCrossRef

Juniper, E. F., Langlands, J. M., & Juniper, B. A. (2008). Patients may respond differently to paper and electronic versions of the same questionnaires. Respiratory Medicine. doi: 10.1016/j.rmed.2008.10.019 PubMed

Caro, J. J., Caro, I., Caro, J., Wouters, F., & Juniper, E. F. (2001). Does electronic implementation of questionnaires used in asthma alter responses compared to paper implementation. Quality of Life Research, 10, 683–691. doi: 10.1023/A:1013811109820. PubMedCrossRef

10.

Juniper, E. F., Riis, B., & Juniper, B. A. (2007). Development and validation of an electronic version of the Rhinoconjunctivitis quality of life questionnaire. Allergy, 62, 1091–1093. doi: 10.1111/j.1398-9995.2007.01370.x. PubMedCrossRef

Titel: Modification, translation and adaptation of questionnaires should copyright laws be observed?
Auteur: Elizabeth F. Juniper
Publicatiedatum: 01-06-2009
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 5/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-008-9440-4

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