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26-09-2016 | ORIGINAL PAPER

Mindfulness-Based Group for Teens with Developmental Disabilities and Their Parents: a Pilot Study

Auteurs: Marina Heifetz, Amanda Dyson

Gepubliceerd in: Mindfulness | Uitgave 2/2017

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Abstract

Research shows that there is a need to develop psychosocial interventions specifically for young people with intellectual or developmental disabilities (IDD) and their families to optimize their mental health. In the present pilot study, an 8-week mindfulness-based group was conducted with eight adolescents with IDD and their parents. Qualitative evidence suggests that there may be some benefits to joint groups for youth and parents. Both parents and youth enjoyed the group and gained insight into themselves and each other. A trend was observed where youth participants’ self-reported mood improved following each session and their social behaviours were reported by parents to improve as well. Some challenges were encountered, however. Despite parents’ involvement in the group, some participants were reported to be resistant in practicing mindfulness skills outside of sessions. This study expands on the therapeutic modalities available for youth with IDD and their families, showing that 90 min mindfulness-based intervention may help youth with IDD learn how to manage their emotions from within.
Literatuur
go back to reference Adkins, D., Singh, N., Winton, S. W., McKeegan, F., & Singh, J. (2010). Using a mindfulness-based procedure in the community: translating research to practice. Journal of Child and Family Studies, 19(2), 175–183. Adkins, D., Singh, N., Winton, S. W., McKeegan, F., & Singh, J. (2010). Using a mindfulness-based procedure in the community: translating research to practice. Journal of Child and Family Studies, 19(2), 175–183.
go back to reference American Psychiatric Association (APA). (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington: American Psychiatric Publication. American Psychiatric Association (APA). (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington: American Psychiatric Publication.
go back to reference Andrews, G., Henderson, S., & Hall, W. (2001). Prevalence, comorbidity, disability and service utilization: overview of the Australian national mental health survey. The British Journal of Psychiatry, 178, 145–153.CrossRefPubMed Andrews, G., Henderson, S., & Hall, W. (2001). Prevalence, comorbidity, disability and service utilization: overview of the Australian national mental health survey. The British Journal of Psychiatry, 178, 145–153.CrossRefPubMed
go back to reference Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48, 1467–1487.CrossRef Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48, 1467–1487.CrossRef
go back to reference Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28(1), 1–18. Blackledge, J. T., & Hayes, S. C. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28(1), 1–18.
go back to reference Chiesa, A., & Serretti, A. (2009). Mindfulness-based stress reduction for stress management in healthy people: a review and metaanalysis. Journal of Alternative and Complementary Medicine, 15, 593–600. Chiesa, A., & Serretti, A. (2009). Mindfulness-based stress reduction for stress management in healthy people: a review and metaanalysis. Journal of Alternative and Complementary Medicine, 15, 593–600.
go back to reference Coatsworth, J. D., Duncan, L. G., Greenberg, M. T., & Nix, R. L. (2010). Changing parent’s mindfulness, child management skills and relationship quality with their youth: results from a randomized pilot intervention trial. Journal of Child and Family Studies, 19, 203–17. Coatsworth, J. D., Duncan, L. G., Greenberg, M. T., & Nix, R. L. (2010). Changing parent’s mindfulness, child management skills and relationship quality with their youth: results from a randomized pilot intervention trial. Journal of Child and Family Studies, 19, 203–17.
go back to reference de Bildt, A., Mulder, E. J., Hoekstra, P. J., van Lang, N. D. J., Minderaa, R. B., & Hartman, C. A. (2009). Validity of the children’s social behavior questionnaire (CSBQ) in children with intellectual disability: comparing the CSBQ with ADI-R, ADOS, and Clinical DSM-IV-TR classification. Journal of Autism and Developmental Disorders, 39, 1464–1470.CrossRefPubMedPubMedCentral de Bildt, A., Mulder, E. J., Hoekstra, P. J., van Lang, N. D. J., Minderaa, R. B., & Hartman, C. A. (2009). Validity of the children’s social behavior questionnaire (CSBQ) in children with intellectual disability: comparing the CSBQ with ADI-R, ADOS, and Clinical DSM-IV-TR classification. Journal of Autism and Developmental Disorders, 39, 1464–1470.CrossRefPubMedPubMedCentral
go back to reference De Bruin, E. I., Blom, R., Smit, F. M. A., van Steensel, F. J. A., & Bogels, S. M. (2014). MYmind: mindfulness training for youngsters with autism spectrum disorders and their parents. Autism, 19, 1–9. De Bruin, E. I., Blom, R., Smit, F. M. A., van Steensel, F. J. A., & Bogels, S. M. (2014). MYmind: mindfulness training for youngsters with autism spectrum disorders and their parents. Autism, 19, 1–9.
go back to reference Duncan, L. G. (2007). Assessment of mindful parenting among parents of early adolescents: development and validation of the Interpersonal Mindfulness in Parenting Scale. The Pennsylvania State University: Unpublished dissertation. Duncan, L. G. (2007). Assessment of mindful parenting among parents of early adolescents: development and validation of the Interpersonal Mindfulness in Parenting Scale. The Pennsylvania State University: Unpublished dissertation.
go back to reference Duncan, L. G., Coatsworth, J. D., & Greenberg, M. T. (2009). A model of mindful parenting: implications for parent–child relationships and prevention research. Clinical Child and Family Psychology Review, 12, 255–270.CrossRefPubMedPubMedCentral Duncan, L. G., Coatsworth, J. D., & Greenberg, M. T. (2009). A model of mindful parenting: implications for parent–child relationships and prevention research. Clinical Child and Family Psychology Review, 12, 255–270.CrossRefPubMedPubMedCentral
go back to reference Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. D. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134, 2013–3164. Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. D. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134, 2013–3164.
go back to reference Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: feasibility and preliminary outcome data. Mindfulness, 4, 89–101.CrossRef Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: feasibility and preliminary outcome data. Mindfulness, 4, 89–101.CrossRef
go back to reference Googins, K. (2008). Are mental health services improving for people with dual diagnosis? Crosscurrents, 12, 4–5. Googins, K. (2008). Are mental health services improving for people with dual diagnosis? Crosscurrents, 12, 4–5.
go back to reference Haydicky, J., Shecter, C., Wiener, J., & Ducharme, J. M. (2013). Evaluation of MBCT for adolescents with ADHD and their parents: impact on individual and family functioning. Journal of Child and Family Studies, 24, 76–94.CrossRef Haydicky, J., Shecter, C., Wiener, J., & Ducharme, J. M. (2013). Evaluation of MBCT for adolescents with ADHD and their parents: impact on individual and family functioning. Journal of Child and Family Studies, 24, 76–94.CrossRef
go back to reference Isaacs, B., & Weiss, J. (2015). Health status and service use in transition age youth with developmental disabilities: summary of Town Hall proceedings. Toronto, ON: Health Care Access Research and Developmental Disabilities (H-CARDD). Isaacs, B., & Weiss, J. (2015). Health status and service use in transition age youth with developmental disabilities: summary of Town Hall proceedings. Toronto, ON: Health Care Access Research and Developmental Disabilities (H-CARDD).
go back to reference Klainin-Yobas, P., Cho, M. A. A., & Creedy, D. (2012). Efficacy of mindfulness-based interventions on depressive symptoms among people with mental disorders: a meta-analysis. International Journal of Nursing Studies, 49, 109–121.CrossRefPubMed Klainin-Yobas, P., Cho, M. A. A., & Creedy, D. (2012). Efficacy of mindfulness-based interventions on depressive symptoms among people with mental disorders: a meta-analysis. International Journal of Nursing Studies, 49, 109–121.CrossRefPubMed
go back to reference Kuyken, W., Weare, K., Ukoumunne, O. C., Vicary, R., Motton, N., Burnett, R., et al. (2013). Effectiveness of the mindfulness in schools programme: non-randomised controlled feasibility study. The British Journal of Psychiatry, 203, 126–131.CrossRefPubMed Kuyken, W., Weare, K., Ukoumunne, O. C., Vicary, R., Motton, N., Burnett, R., et al. (2013). Effectiveness of the mindfulness in schools programme: non-randomised controlled feasibility study. The British Journal of Psychiatry, 203, 126–131.CrossRefPubMed
go back to reference Lokhandwala, T., Khanna, R., & West-Strum, D. (2012). Hospitalization burden among individuals with autism. Journal of Autism and Developmental Disorders, 42(1), 95–104. Lokhandwala, T., Khanna, R., & West-Strum, D. (2012). Hospitalization burden among individuals with autism. Journal of Autism and Developmental Disorders, 42(1), 95–104.
go back to reference Lunsky, Y., & Balogh, R. (2010). Dual diagnosis: a national study of psychiatric hospitalization patterns of people with developmental disability. The Canadian Journal of Psychiatry, 55, 721–728.CrossRefPubMed Lunsky, Y., & Balogh, R. (2010). Dual diagnosis: a national study of psychiatric hospitalization patterns of people with developmental disability. The Canadian Journal of Psychiatry, 55, 721–728.CrossRefPubMed
go back to reference Lunsky, Y., Straiko, A., & Armstrong, S. (2003). Women be healthy: evaluation of a women’s health curriculum for women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 247–253.CrossRef Lunsky, Y., Straiko, A., & Armstrong, S. (2003). Women be healthy: evaluation of a women’s health curriculum for women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 247–253.CrossRef
go back to reference Lunsky, Y., Garcin, N., Morin, D., & Bradley, E. A. (2007). Mental health services for individuals with intellectual disabilities in Canada: findings from a national survey. Journal of Applied Research in Intellectual Disabilities, 20, 439–447.CrossRef Lunsky, Y., Garcin, N., Morin, D., & Bradley, E. A. (2007). Mental health services for individuals with intellectual disabilities in Canada: findings from a national survey. Journal of Applied Research in Intellectual Disabilities, 20, 439–447.CrossRef
go back to reference Lunsky, Y., Lin, E., Balogh, R., Klein-Geltink, J., Wilton, A. S., & Kurdyak, P. (2012). Emergency department visits and use of outpatient physician services by adults with developmental disability and psychiatric disorder. Canadian Journal of Psychiatry, 57, 601–607.CrossRefPubMed Lunsky, Y., Lin, E., Balogh, R., Klein-Geltink, J., Wilton, A. S., & Kurdyak, P. (2012). Emergency department visits and use of outpatient physician services by adults with developmental disability and psychiatric disorder. Canadian Journal of Psychiatry, 57, 601–607.CrossRefPubMed
go back to reference Lunsky, Y., Robinson, S., Reid, M., & Palucka, A. (2015). Development of a mindfulness-based coping with stress group for parents of adolescents and adults with developmental disabilities. Mindfulness, 6, 1335. Lunsky, Y., Robinson, S., Reid, M., & Palucka, A. (2015). Development of a mindfulness-based coping with stress group for parents of adolescents and adults with developmental disabilities. Mindfulness, 6, 1335.
go back to reference Luteijn, E., Jackson, S., Volkmar, F., & Minderaa, R. (1998). The development of the Children’s Social Behavior Questionnaire: preliminary data. Journal of Autism and Developmental Disorder, 28, 599–565.CrossRef Luteijn, E., Jackson, S., Volkmar, F., & Minderaa, R. (1998). The development of the Children’s Social Behavior Questionnaire: preliminary data. Journal of Autism and Developmental Disorder, 28, 599–565.CrossRef
go back to reference Luteijn, E. F., Serra, M., Jackson, S., Steenhuis, M. P., Althaus, M., Volkmar, F., & Minderaa, R. (2000). How unspecified are disorders of children with a pervasive developmental disorder not otherwise specified? A study of social problems in children with PDD-NOS and ADHD. European Child & Adolescent Psychiatry, 9(3), 168–179. Luteijn, E. F., Serra, M., Jackson, S., Steenhuis, M. P., Althaus, M., Volkmar, F., & Minderaa, R. (2000). How unspecified are disorders of children with a pervasive developmental disorder not otherwise specified? A study of social problems in children with PDD-NOS and ADHD. European Child & Adolescent Psychiatry, 9(3), 168–179.
go back to reference Miodrag, N., Lense, M. D., & Dykens, E. M. (2013). A pilot study of a mindfulness intervention for individuals with Williams Syndrome: physiological outcomes. Mindfulness, 4, 137–147.CrossRef Miodrag, N., Lense, M. D., & Dykens, E. M. (2013). A pilot study of a mindfulness intervention for individuals with Williams Syndrome: physiological outcomes. Mindfulness, 4, 137–147.CrossRef
go back to reference Pearson, C., Janz, T., & Ali, J. (2013). Health at a glance: Mental and substance use disorders in Canada. Statistics Canada Catalogue no.82-624-X. Pearson, C., Janz, T., & Ali, J. (2013). Health at a glance: Mental and substance use disorders in Canada. Statistics Canada Catalogue no.82-624-X.
go back to reference Reaven, J., Blakeley-Smith, A., Culhane-Shelburne, K., & Hepburn, S. (2012). Group cognitive behavior therapy for children with high-functioning autism spectrum disorders and anxiety: a randomized trial. Journal of Child Psychol Psychiatry, 53, 410–419.CrossRef Reaven, J., Blakeley-Smith, A., Culhane-Shelburne, K., & Hepburn, S. (2012). Group cognitive behavior therapy for children with high-functioning autism spectrum disorders and anxiety: a randomized trial. Journal of Child Psychol Psychiatry, 53, 410–419.CrossRef
go back to reference Singh, N. N., Wahler, R. G., Adkins, A. D., & Myers, R. E. (2003). Soles of the feet: mindfulness-based self-control intervention for aggression by an individual with mild mental retardation and mental illness. Research in Developmental Disabilities, 24, 158–169.CrossRefPubMed Singh, N. N., Wahler, R. G., Adkins, A. D., & Myers, R. E. (2003). Soles of the feet: mindfulness-based self-control intervention for aggression by an individual with mild mental retardation and mental illness. Research in Developmental Disabilities, 24, 158–169.CrossRefPubMed
go back to reference Singh, N. N., Lancioni, G. E., Winton, A. S. W., Fisher, B. C., Wahler, R. G., McAleavey, K., et al. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14, 169–177.CrossRef Singh, N. N., Lancioni, G. E., Winton, A. S. W., Fisher, B. C., Wahler, R. G., McAleavey, K., et al. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14, 169–177.CrossRef
go back to reference Singh, N. N., Lancioni, G. E., Winton, A. S., Adkins, A. D., Singh, J., & Singh, A. N. (2007a). Mindfulness training assists individuals with moderate mental retardation to maintain their community placements. Behavior Modification, 31, 800–814.CrossRefPubMed Singh, N. N., Lancioni, G. E., Winton, A. S., Adkins, A. D., Singh, J., & Singh, A. N. (2007a). Mindfulness training assists individuals with moderate mental retardation to maintain their community placements. Behavior Modification, 31, 800–814.CrossRefPubMed
go back to reference Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007b). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31, 749–771.CrossRefPubMed Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007b). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31, 749–771.CrossRefPubMed
go back to reference Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, A. N., Adkins, A. D., & Singh, J. (2008). Clinical and benefit-cost outcomes of teaching mindfulness-based procedure to adult offenders with intellectual disabilities. Behavior Modification, 32, 622–638.CrossRefPubMed Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, A. N., Adkins, A. D., & Singh, J. (2008). Clinical and benefit-cost outcomes of teaching mindfulness-based procedure to adult offenders with intellectual disabilities. Behavior Modification, 32, 622–638.CrossRefPubMed
go back to reference Singh, N. N., Singh, A. N., Lancioni, G. E., Singh, J., Winton, A. S. W., & Adkins, A. D. (2010). Mindfulness training for parents and their children with ADHD increases the children’s compliance. Journal of Child and Family Studies, 19, 157–166.CrossRef Singh, N. N., Singh, A. N., Lancioni, G. E., Singh, J., Winton, A. S. W., & Adkins, A. D. (2010). Mindfulness training for parents and their children with ADHD increases the children’s compliance. Journal of Child and Family Studies, 19, 157–166.CrossRef
go back to reference Singh, N. N., Lancioni, G. E., Manikam, R., Winton, A. S. W., Singh, A. N. A., Singh, J., & Singh, A. D. A. (2011). A mindfulness-based strategy for self-management of aggressive behavior in adolescents with autism. Research in Autism Spectrum Disorders, 5, 1153–1158.CrossRef Singh, N. N., Lancioni, G. E., Manikam, R., Winton, A. S. W., Singh, A. N. A., Singh, J., & Singh, A. D. A. (2011). A mindfulness-based strategy for self-management of aggressive behavior in adolescents with autism. Research in Autism Spectrum Disorders, 5, 1153–1158.CrossRef
go back to reference Singh, N. N., Lancioni, G. E., Karazsia, B. T., et al. (2013). Mindfulness-based treatment of aggression in individuals with mild intellectual disabilities: a waiting list control study. Mindfulness, 4, 158–167.CrossRef Singh, N. N., Lancioni, G. E., Karazsia, B. T., et al. (2013). Mindfulness-based treatment of aggression in individuals with mild intellectual disabilities: a waiting list control study. Mindfulness, 4, 158–167.CrossRef
go back to reference Torr, J. (2013). Intellectual disability and mental ill health: a view of Australian research. Journal of Mental Health Research in Intellectual Disabilities, 6, 159–178.CrossRef Torr, J. (2013). Intellectual disability and mental ill health: a view of Australian research. Journal of Mental Health Research in Intellectual Disabilities, 6, 159–178.CrossRef
go back to reference Vollestad, J., Nielsen, M. B., & Nielsen, G. H. (2012). Mindfulness- and acceptance-based interventions for anxiety disorders: a systematic review and meta-analysis. British Journal of Clinical Psychology, 51, 239–260.CrossRefPubMed Vollestad, J., Nielsen, M. B., & Nielsen, G. H. (2012). Mindfulness- and acceptance-based interventions for anxiety disorders: a systematic review and meta-analysis. British Journal of Clinical Psychology, 51, 239–260.CrossRefPubMed
go back to reference Williams, M., Teasdale, J., Segal, Z., & Kabat-Zinn, J. (2007). The mindful way through depression: freeing yourself from chronic unhappiness. New York: Guilford Press. Williams, M., Teasdale, J., Segal, Z., & Kabat-Zinn, J. (2007). The mindful way through depression: freeing yourself from chronic unhappiness. New York: Guilford Press.
go back to reference Zenner, C., Herrnleben-Kurz, S., & Walach, H. (2014). Mindfulness-based interventions in schools—a systematic review and meta-analysis. Frontiers in Psychology, 5, 603.CrossRefPubMedPubMedCentral Zenner, C., Herrnleben-Kurz, S., & Walach, H. (2014). Mindfulness-based interventions in schools—a systematic review and meta-analysis. Frontiers in Psychology, 5, 603.CrossRefPubMedPubMedCentral
Metagegevens
Titel
Mindfulness-Based Group for Teens with Developmental Disabilities and Their Parents: a Pilot Study
Auteurs
Marina Heifetz
Amanda Dyson
Publicatiedatum
26-09-2016
Uitgeverij
Springer US
Gepubliceerd in
Mindfulness / Uitgave 2/2017
Print ISSN: 1868-8527
Elektronisch ISSN: 1868-8535
DOI
https://doi.org/10.1007/s12671-016-0616-7