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Quality of Life Research 1/2018
Quality of Life Research

Uitgave 1/2018

Special Section: Measuring What Matters


Inhoudsopgave (26 Artikelen)

25-11-2017 | Editorial

Introduction to special section: measuring what matters
Steven I. Blum, Sara Ahmed, Emuella Flood, Frans J. Oort, Carolyn E. Schwartz

19-04-2017 | Special Section: Measuring What Matters (by invitation only)

Beyond study participants: a framework for engaging patients in the selection or development of clinical outcome assessments for evaluating the benefits of treatment in medical product development
Hilary Wilson, Ebony Dashiell-Aje, Milena Anatchkova, Karin Coyne, Asha Hareendran, Nancy Kline Leidy, Colleen A. McHorney, Kathy Wyrwich

Open Access 12-05-2017 | Special Section: Measuring What Matters (by invitation only)

Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute
Laura Forsythe, Andrea Heckert, Mary Kay Margolis, Suzanne Schrandt, Lori Frank

15-06-2017 | Special Section: Measuring What Matters (by invitation only)

Moving from significance to real-world meaning: methods for interpreting change in clinical outcome assessment scores
Cheryl D. Coon, Karon F. Cook

05-04-2017 | Special Section: Measuring What Matters (by invitation only)

Prioritizing research topics: a comparison of crowdsourcing and patient registry
Anjali R. Truitt, Sarah E. Monsell, Andrew L. Avins, David R. Nerenz, Sarah O. Lawrence, Zoya Bauer, Bryan A. Comstock, Todd C. Edwards, Donald L. Patrick, Jeffrey G. Jarvik, Danielle C. Lavallee

11-04-2017 | Special Section: Measuring What Matters (by invitation only)

Development of a care guidance index based on what matters to patients
John H. Wasson, Laura Soloway, L. Gordon Moore, Paul Labrec, Lynn Ho

16-12-2017 | Special Section: Measuring What Matters (by invitation only)

Measuring what matters MOST: validation of the Measure of Ovarian Symptoms and Treatment, a patient-reported outcome measure of symptom burden and impact of chemotherapy in recurrent ovarian cancer
Madeleine T. King, Martin R. Stockler, Rachel L. O’Connell, Luke Buizen, Florence Joly, Anne Lanceley, Felix Hilpert, Aikou Okamoto, Eriko Aotani, Jane Bryce, Paul Donnellan, Amit Oza, Elisabeth Avall-Lundqvist, Jonathan S. Berek, Jalid Sehouli, Amanda Feeney, Dominique Berton-Rigaud, Daniel S. J. Costa, Michael L. Friedlander

Open Access 02-11-2017

Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder
Michael Brundage, Amanda Blackford, Elliott Tolbert, Katherine Smith, Elissa Bantug, Claire Snyder, Neil K. Aaronson, Patricia A. Ganz, Ravin Garg, Michael Fisch, Vanessa Hoffman, Bryce B. Reeve, Eden Stotsky-Himelfarb, Ellen Stovall, Matthew Zachary


Self-rated health as a predictor of mid-term and long-term mortality in older Afro-Caribbeans hospitalised via the emergency department
Lidvine Godaert, C. Godard-Sebillotte, L. Allard Saint-Albin, L. Bousquet, I. Bourdel-Marchasson, J.-L. Fanon, M. Dramé


Prevalence of patient-reported gastrointestinal symptoms and agreement with clinician toxicity assessments in radiation therapy for anal cancer
Ashlyn Tom, Antonia V. Bennett, Diana Rothenstein, Ethel Law, Karyn A. Goodman


Effects of risk factors for and components of metabolic syndrome on the quality of life of patients with systemic lupus erythematosus: a structural equation modeling approach
Jeong-Won Lee, Ji-Hyoun Kang, Kyung-Eun Lee, Dong-Jin Park, Seong Wook Kang, Seung-Ki Kwok, Seong-Kyu Kim, Jung-Yoon Choe, Hyoun-Ah Kim, Yoon-Kyoung Sung, Kichul Shin, Sang-Il Lee, Chang Hoon Lee, Sung Jae Choi, Shin-Seok Lee

Open Access 15-09-2017

Health-related quality of life and its determinants in patients with metastatic renal cell carcinoma
S. de Groot, W. K. Redekop, M. M. Versteegh, S. Sleijfer, E. Oosterwijk, L. A. L. M. Kiemeney, C. A. Uyl-de Groot

Open Access 12-09-2017

Everyday life following hematopoietic stem cell transplantation: decline in physical symptoms within the first month and change-related predictors
Aleksandra Kroemeke, Małgorzata Sobczyk-Kruszelnicka, Zuzanna Kwissa-Gajewska


Combat exposure, emotional and physical role limitations, and substance use among male United States Army Reserve and National Guard soldiers
R. A. Hoopsick, B. M. Vest, D. L. Homish, G. G. Homish

05-09-2017 | Commentary

Assessing health-related quality of life in patients with breast cancer: a reply to Maratia et al
Karin Ribi, Alan Coates, Lynette Blacher, Meredith M. Regan, Richard D. Gelber, Jürg Bernhard

18-11-2017 | Brief Communication

The relationship of five boarding school experiences and physical health status among Northern Plains Tribes
Ursula Running Bear, Calvin D. Croy, Carol E. Kaufman, Zaneta M. Thayer, Spero M. Manson

Open Access 12-09-2017

Health-related quality of life, developmental milestones, and self-esteem in young adults with bleeding disorders
P. F. Limperg, L. Haverman, H. Maurice-Stam, M. Coppens, C. Valk, M. J. H. A. Kruip, J. Eikenboom, M. Peters, M. A. Grootenhuis


How is weight stigma related to children’s health-related quality of life? A model comparison approach
Veronica Guardabassi, Alberto Mirisola, Carlo Tomasetto


The roles of physical activity and sedentary behavior on Hispanic children’s mental health: a motor skill perspective
Xiangli Gu, M. Jean Keller, Karen H. Weiller-Abels, Tao Zhang


Perceived medication adherence barriers mediating effects between gastrointestinal symptoms and health-related quality of life in pediatric inflammatory bowel disease
James W. Varni, Robert J. Shulman, Mariella M. Self, Shehzad A. Saeed, George M. Zacur, Ashish S. Patel, Samuel Nurko, Deborah A. Neigut, James P. Franciosi, Miguel Saps, Jolanda M. Denham, Chelsea Vaughan Dark, Cristiane B. Bendo, John F. Pohl, James W. Varni, Jolanda Denham, Robert J. Shulman, Mariella M. Self, Deborah A. Neigut, Samuel Nurko, Ashish S. Patel, James P. Franciosi, Shehzad Saeed, George M. Zacur, Miguel Saps, Barbara Verga, John F. Pohl


Physical activity and health-related quality of life among schoolchildren from disadvantaged neighbourhoods in Port Elizabeth, South Africa
Marina Salvini, Stefanie Gall, Ivan Müller, Cheryl Walter, Rosa du Randt, Peter Steinmann, Jürg Utzinger, Uwe Pühse, Markus Gerber


Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions
Christopher B. Forrest, Janine Devine, Katherine B. Bevans, Brandon D. Becker, Adam C. Carle, Rachel E. Teneralli, JeanHee Moon, Carole A. Tucker, Ulrike Ravens-Sieberer


Differential item functioning by language on the PROMIS® physical functioning items for children and adolescents
Ron D. Hays, José Luis Calderón, Karen L. Spritzer, Steve P. Reise, Sylvia H. Paz


Assessing responsiveness over time of the PROMIS® pediatric symptom and function measures in cancer, nephrotic syndrome, and sickle cell disease
Bryce B. Reeve, Lloyd J. Edwards, Byron C. Jaeger, Pamela S. Hinds, Carlton Dampier, Debbie S. Gipson, David T. Selewski, Jonathan P. Troost, David Thissen, Vaughn Barry, Heather E. Gross, Darren A. DeWalt


Assessing the measurement invariance of the Brief Multidimensional Students’ Life Satisfaction Scale in Chinese and American adolescents
Yifang Zeng, Yu Ling, E. Scott Huebner, Yushu He, Peng Fu

04-07-2017 | Brief Communication

Cross-cultural adaptation and validation of the Danish version of the Short Musculoskeletal Function Assessment questionnaire (SMFA)
Marianne Lindahl, Signe Andersen, Annette Joergensen, Christian Frandsen, Liselotte Jensen, Eirikur Benedikz

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