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04-05-2023 | Original Paper

Mental Health in Mothers of Autistic Children with a Medical Home: The Potentially Mechanistic Roles of Coping and Social Support

Auteurs: Madeline R. Horan, Shawn J. Latendresse, Christine A. Limbers

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2024

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Abstract

Mothers of autistic children often report poor mental health outcomes. One established risk factor for these outcomes is the child having a medical home. This study examined possible mediating variables (coping, social support) in this relationship in 988 mothers of autistic children from the 2017/2018 National Survey of Children’s Health (NSCH). The results of the multiple mediation model suggest the relationship between having a medical home and maternal mental health is largely explained by indirect associations with coping and social support. These findings suggest that clinical interventions for coping and social support provided by the medical home for mothers of autistic children may improve maternal mental health outcomes over and above implementation of a medical home.
Literatuur
go back to reference American Academy of Pediatrics, Ad Hoc Task Force on Definition of the Medical Home. (1992). The medical home. Pediatrics, 90(5), 774. American Academy of Pediatrics, Ad Hoc Task Force on Definition of the Medical Home. (1992). The medical home. Pediatrics, 90(5), 774.
go back to reference American Academy of Pediatrics, Medical Home Initiatives for Children with Special Health Care Needs Project Advisory Committee. (2002). Policy statement: The medical home. Pediatrics, 110(1), 184–186.CrossRef American Academy of Pediatrics, Medical Home Initiatives for Children with Special Health Care Needs Project Advisory Committee. (2002). Policy statement: The medical home. Pediatrics, 110(1), 184–186.CrossRef
go back to reference Asparouhov, T., & Muthén, B. (2010). Weighted least squares estimation with missing data Asparouhov, T., & Muthén, B. (2010). Weighted least squares estimation with missing data
go back to reference Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators (2012). Prevalence of autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008 Morbidity and Mortality Weekly Report Surveillance Summaries, 61(SS03), 1–19. Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators (2012). Prevalence of autism spectrum disorders—Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008 Morbidity and Mortality Weekly Report Surveillance Summaries, 61(SS03), 1–19.
go back to reference Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., Rosenberg, White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L. C., Harrington, R., Lopez, M., Fitzgerald, R. T., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years — autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1–23. https://doi.org/10.15585/mmwr.ss6706a1.CrossRefPubMedCentral Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., Rosenberg, White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L. C., Harrington, R., Lopez, M., Fitzgerald, R. T., & Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years — autism and developmental disabilities monitoring network, 11 sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1–23. https://​doi.​org/​10.​15585/​mmwr.​ss6706a1.CrossRefPubMedCentral
go back to reference Blumberg, S. J., Welch, B. M., Chowdhury, S. R., Upchurch, H. L., Parker, E. K., & Skalland, B. J. (2008). Design and operation of the National Survey of Children with Special Health Care Needs, 2005–2006. National Center for Health Statistics.Vital Health Stat, 1(45). Blumberg, S. J., Welch, B. M., Chowdhury, S. R., Upchurch, H. L., Parker, E. K., & Skalland, B. J. (2008). Design and operation of the National Survey of Children with Special Health Care Needs, 2005–2006. National Center for Health Statistics.Vital Health Stat, 1(45).
go back to reference Brown, T. (2006). Confirmatory factor analysis for Applied Research. Guilford. Brown, T. (2006). Confirmatory factor analysis for Applied Research. Guilford.
go back to reference Child and Adolescent Health Measurement Initiative. (2019). 2017–2018 National Survey of Children’s Health (2 years Combined Data Set): Child and family health measures, national performance and outcome measures, and subgroups, SPSS Codebook, Version 1.0, Data Resource Center for child and adolescent health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services. Maternal and Child Health Bureau (MCHB). Health Resources and Services Administration (HRSA). https://www.childhealthdata.org/learn-about-the-nsch/nsch-codebooks. Child and Adolescent Health Measurement Initiative. (2019). 2017–2018 National Survey of Children’s Health (2 years Combined Data Set): Child and family health measures, national performance and outcome measures, and subgroups, SPSS Codebook, Version 1.0, Data Resource Center for child and adolescent health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services. Maternal and Child Health Bureau (MCHB). Health Resources and Services Administration (HRSA). https://​www.​childhealthdata.​org/​learn-about-the-nsch/​nsch-codebooks.
go back to reference Child and Adolescent Health Measurement Initiative (CAHMI) (2020). 2020 National Survey of Children’s Health, Stata Indicator dataset. Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved 11/01/22 from childhealthdata.org Child and Adolescent Health Measurement Initiative (CAHMI) (2020). 2020 National Survey of Children’s Health, Stata Indicator dataset. Data Resource Center for Child and Adolescent Health supported by Cooperative Agreement U59MC27866 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Retrieved 11/01/22 from childhealthdata.org
go back to reference Christensen, D. L., Braun, K. V. N., Baio, J., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., Lee, L. C., Pettygrove, S., Robinson, C., Schulz, E., Wells, C., Wingate, M. S., Zahorodny, W., & Yeargin-Allsopp, M. (2018). Prevalence and characteristics of autism spectrum disorder among children aged 8 years — autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR Surveillance Summaries, 65(13), 1–23. https://doi.org/10.15585/mmwr.ss6513a1.CrossRefPubMedCentral Christensen, D. L., Braun, K. V. N., Baio, J., Bilder, D., Charles, J., Constantino, J. N., Daniels, J., Durkin, M. S., Fitzgerald, R. T., Kurzius-Spencer, M., Lee, L. C., Pettygrove, S., Robinson, C., Schulz, E., Wells, C., Wingate, M. S., Zahorodny, W., & Yeargin-Allsopp, M. (2018). Prevalence and characteristics of autism spectrum disorder among children aged 8 years — autism and developmental disabilities monitoring network, 11 sites, United States, 2012. MMWR Surveillance Summaries, 65(13), 1–23. https://​doi.​org/​10.​15585/​mmwr.​ss6513a1.CrossRefPubMedCentral
go back to reference Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90(4), 403–417.PubMed Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90(4), 403–417.PubMed
go back to reference Hastings, R. P. (2008). Stress in parents of children with autism. In M. N. E. McGregor, K. Williams, & J. Gomez (Eds.), Autism: An integrated view (pp. 303–324). Blackwell. Hastings, R. P. (2008). Stress in parents of children with autism. In M. N. E. McGregor, K. Williams, & J. Gomez (Eds.), Autism: An integrated view (pp. 303–324). Blackwell.
go back to reference Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & Van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. https://doi.org/10.1542/peds.2008-1057.CrossRefPubMed Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & Van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158. https://​doi.​org/​10.​1542/​peds.​2008-1057.CrossRefPubMed
go back to reference Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer Publication Company. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. Springer Publication Company.
go back to reference Little, R. J. (1988). A test of missing completely at random for multivariate data with missing values. Journal of the American statistical Association, 83(404), 1198–1202.CrossRef Little, R. J. (1988). A test of missing completely at random for multivariate data with missing values. Journal of the American statistical Association, 83(404), 1198–1202.CrossRef
go back to reference Menezes, M., Robinson, M. F., Simmons, S. C., Smith, K. R., Zhong, N., & Mazurek, M. O. (2021). Relations among co-occurring psychopathology in youth with autism spectrum disorder, family resilience, and caregiver coping. Research in Autism Spectrum Disorders, 85, 101803.CrossRef Menezes, M., Robinson, M. F., Simmons, S. C., Smith, K. R., Zhong, N., & Mazurek, M. O. (2021). Relations among co-occurring psychopathology in youth with autism spectrum disorder, family resilience, and caregiver coping. Research in Autism Spectrum Disorders, 85, 101803.CrossRef
go back to reference Muthén, L. K., & Muthén, B. O. (1998–2012). Mplus Users’s Guide (7th ed.). Muthén & Muthén. Muthén, L. K., & Muthén, B. O. (1998–2012). Mplus Users’s Guide (7th ed.). Muthén & Muthén.
go back to reference Muthén, B. O., du Toit, S., & Spisic, D. (1997). Robust inference using weighted least squares and quadratic estimating equations in latent variable modeling with categorical and continuous outcomes. Muthén, B. O., du Toit, S., & Spisic, D. (1997). Robust inference using weighted least squares and quadratic estimating equations in latent variable modeling with categorical and continuous outcomes.
go back to reference Peck, C. Z. (1998). Program evaluation of a family systems model of service delivery for parents of children with autism: Promoting adaptation to family stress. Special Services in the Schools, 14(1–2), 127–145.CrossRef Peck, C. Z. (1998). Program evaluation of a family systems model of service delivery for parents of children with autism: Promoting adaptation to family stress. Special Services in the Schools, 14(1–2), 127–145.CrossRef
go back to reference Rhemtulla, M., Brosseau-Liard, P., & Savalei, V. (2012). When can categorical variables be treated as continuous? A comparison of robust continuous and categorical SEM estimation methods under suboptimal conditions. Psychological Methods, 17(3), 354–373. https://doi.org/10.1037/a0029315.CrossRefPubMed Rhemtulla, M., Brosseau-Liard, P., & Savalei, V. (2012). When can categorical variables be treated as continuous? A comparison of robust continuous and categorical SEM estimation methods under suboptimal conditions. Psychological Methods, 17(3), 354–373. https://​doi.​org/​10.​1037/​a0029315.CrossRefPubMed
go back to reference Wills, T. A. (1991). Social support and interpersonal relationships. Prosocial behavior (pp. 265–289). Sage Publications, Inc. Wills, T. A. (1991). Social support and interpersonal relationships. Prosocial behavior (pp. 265–289). Sage Publications, Inc.
Metagegevens
Titel
Mental Health in Mothers of Autistic Children with a Medical Home: The Potentially Mechanistic Roles of Coping and Social Support
Auteurs
Madeline R. Horan
Shawn J. Latendresse
Christine A. Limbers
Publicatiedatum
04-05-2023
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-023-05997-6