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Gepubliceerd in: Journal of Autism and Developmental Disorders 1/2020

15-11-2019 | Original Paper

Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 1/2020

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Abstract

In North Carolina (NC), there are many resources designed to support the needs of children with autism and their families, and yet a troubling gap in underserved families’ access to those services. To address this gap, the Meeting FACES workshop was designed to: (a) provide an opportunity for parents, educators, and service providers to build partnerships, (b) provide parents with opportunities to learn about available autism services in their communities, and (c) assess the needs of underrepresented families of children with autism in NC. Findings indicate that minority families of children with autism in central NC require more supports to access and navigate services. Additionally, participants were very satisfied with Meeting FACES and were interested in participating in future FACES programming.
Literatuur
go back to reference Centers for Disease Control and Prevention. (2016). Prevalence of autism spectrum disorders among children aged 8 years old—Autism and developmental disabilities monitoring network, 11, United States, 2010 sites. Morbidity and Mortality Weekly Report,65, 1–23. Centers for Disease Control and Prevention. (2016). Prevalence of autism spectrum disorders among children aged 8 years old—Autism and developmental disabilities monitoring network, 11, United States, 2010 sites. Morbidity and Mortality Weekly Report,65, 1–23.
go back to reference Centers for Disease Control and Prevention. (2018). Prevalence of autism spectrum disorders among children aged 8 years—autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report,67, 1–23.CrossRef Centers for Disease Control and Prevention. (2018). Prevalence of autism spectrum disorders among children aged 8 years—autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. Morbidity and Mortality Weekly Report,67, 1–23.CrossRef
go back to reference Dymond, S., Gilson, C. L., & Myran, S. P. (2007). Services for children with autism spectrum disorders: What needs to change? Journal of Disability Policy Studies,13, 133–147.CrossRef Dymond, S., Gilson, C. L., & Myran, S. P. (2007). Services for children with autism spectrum disorders: What needs to change? Journal of Disability Policy Studies,13, 133–147.CrossRef
go back to reference Hilton, C. L., Fitzgerald, R. T., Jackson, K. M., Maxim, R. A., Bosworth, C. C., Shattuck, P. T., et al. (2010). Brief report: Under- representation of African Americans in autism genetic research: A rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders,40, 633–639.CrossRef Hilton, C. L., Fitzgerald, R. T., Jackson, K. M., Maxim, R. A., Bosworth, C. C., Shattuck, P. T., et al. (2010). Brief report: Under- representation of African Americans in autism genetic research: A rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders,40, 633–639.CrossRef
go back to reference Irvin, D. W., McBee, M., Boyd, B. A., Hume, K., & Odom, S. L. (2012). Child and family factors associated with the use of services for preschoolers with autism spectrum disorder. Research in Autism Spectrum Disorders,6, 565–572.CrossRef Irvin, D. W., McBee, M., Boyd, B. A., Hume, K., & Odom, S. L. (2012). Child and family factors associated with the use of services for preschoolers with autism spectrum disorder. Research in Autism Spectrum Disorders,6, 565–572.CrossRef
go back to reference LaClair, M., Mandell, D. S., Dick, A. W., Iskandarani, K., Stein, B. D., & Leslie, D. L. (2019). The effect of Medicaid waivers on ameliorating racial/ethnic disparities among children with autism. Health Services Research.,54(4), 912–919.PubMed LaClair, M., Mandell, D. S., Dick, A. W., Iskandarani, K., Stein, B. D., & Leslie, D. L. (2019). The effect of Medicaid waivers on ameliorating racial/ethnic disparities among children with autism. Health Services Research.,54(4), 912–919.PubMed
go back to reference Lovelace, T. S., Robertson, R. E., & Tamayo, S. (2018). Experiences of African American mothers of sons with autism spectrum disorder: Lessons for improving service delivery. Education and Training in Autism and Developmental Disabilities,53(1), 3–16. Lovelace, T. S., Robertson, R. E., & Tamayo, S. (2018). Experiences of African American mothers of sons with autism spectrum disorder: Lessons for improving service delivery. Education and Training in Autism and Developmental Disabilities,53(1), 3–16.
go back to reference Mandell, D. S., & Novak, M. (2005). The role of culture in families’ treatment decisions for children with autism spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews,11, 110–115.CrossRef Mandell, D. S., & Novak, M. (2005). The role of culture in families’ treatment decisions for children with autism spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews,11, 110–115.CrossRef
go back to reference Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism,11, 111–122.CrossRef Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism,11, 111–122.CrossRef
go back to reference Meadan, H., Halle, J. W., & Ebata, T. A. (2010). Families of children who have autism spectrum disorder: Stress and support. Exceptional Children,77, 7–36. Meadan, H., Halle, J. W., & Ebata, T. A. (2010). Families of children who have autism spectrum disorder: Stress and support. Exceptional Children,77, 7–36.
go back to reference Mello, M. P., Urbano, R. C., Goldman, S. E., & Hodapp, R. M. (2016). Services for children with autism spectrum disorder: Comparing rural and non-rural communities. Education and Training in Autism and Developmental Disabilities,51, 355–365. Mello, M. P., Urbano, R. C., Goldman, S. E., & Hodapp, R. M. (2016). Services for children with autism spectrum disorder: Comparing rural and non-rural communities. Education and Training in Autism and Developmental Disabilities,51, 355–365.
go back to reference Mueller, T. G., & Carranza, F. (2011). An examination of special education due process hearings. Journal of Disability Policy Studies,22, 131–139.CrossRef Mueller, T. G., & Carranza, F. (2011). An examination of special education due process hearings. Journal of Disability Policy Studies,22, 131–139.CrossRef
go back to reference Pearson, J., & Meadan, H. (2018). African American mothers’ perceptions of diagnoses and services for children with autism. Education and Training in Autism and Developmental Disabilities.,53, 17–32. Pearson, J., & Meadan, H. (2018). African American mothers’ perceptions of diagnoses and services for children with autism. Education and Training in Autism and Developmental Disabilities.,53, 17–32.
go back to reference Pearson, J. N., Meadan, H., Malone, K., & Martin, B. (in press). Parent and Professional Experiences Supporting African American Children with Autism. Journal of Racial and Ethnic Health Disparities. Pearson, J. N., Meadan, H., Malone, K., & Martin, B. (in press). Parent and Professional Experiences Supporting African American Children with Autism. Journal of Racial and Ethnic Health Disparities.
go back to reference Pellecchia, M., Nuske, H. J., Straiton, D., Hassrick, E. M., Gulsrud, A., Iadarola, S., … Stahmer. (2018). Strategies to engage underrepresented parents in child intervention services: A review of effectiveness and co-occurring use. Journal of Child and Family Studies. https://doi.org/10.1007/s10826-018-1144-y CrossRef Pellecchia, M., Nuske, H. J., Straiton, D., Hassrick, E. M., Gulsrud, A., Iadarola, S., … Stahmer. (2018). Strategies to engage underrepresented parents in child intervention services: A review of effectiveness and co-occurring use. Journal of Child and Family Studies. https://​doi.​org/​10.​1007/​s10826-018-1144-y CrossRef
go back to reference Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use. Autism,20, 106–115.CrossRef Pickard, K. E., & Ingersoll, B. R. (2016). Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use. Autism,20, 106–115.CrossRef
go back to reference Reichard, A., Sacco, T. M., & Turnbull, H. R. (2004). Access to health care for individuals with developmental disabilities from minority backgrounds. Mental Retardation: A Journal of Practices, Policy and Perspectives,42, 459–470.CrossRef Reichard, A., Sacco, T. M., & Turnbull, H. R. (2004). Access to health care for individuals with developmental disabilities from minority backgrounds. Mental Retardation: A Journal of Practices, Policy and Perspectives,42, 459–470.CrossRef
go back to reference Snell-Johns, J., Mendez, J. L., & Smith, B. H. (2004). Evidence-based solutions for overcoming access barriers, decreasing attrition, and promoting change with underserved families. Journal of Family Psychology,18, 19.CrossRef Snell-Johns, J., Mendez, J. L., & Smith, B. H. (2004). Evidence-based solutions for overcoming access barriers, decreasing attrition, and promoting change with underserved families. Journal of Family Psychology,18, 19.CrossRef
go back to reference Stanley, S. L. G. (2015). The advocacy efforts of African American mothers of children with disabilities in rural special education: Considerations for school professionals. Rural Special Education Quarterly,34, 3–17.CrossRef Stanley, S. L. G. (2015). The advocacy efforts of African American mothers of children with disabilities in rural special education: Considerations for school professionals. Rural Special Education Quarterly,34, 3–17.CrossRef
go back to reference Stone, S., McKay, M. M., & Stoops, C. (1996). Evaluating multiple family groups to address the behavioral difficulties of urban children. Small Group Research,27, 398–415.CrossRef Stone, S., McKay, M. M., & Stoops, C. (1996). Evaluating multiple family groups to address the behavioral difficulties of urban children. Small Group Research,27, 398–415.CrossRef
go back to reference Young, A., & Rabiner, D. (2015). Racial/ethnic differences in parent-reported barriers to accessing children’s health services. Psychological Services,12(3), 1541–1559.CrossRef Young, A., & Rabiner, D. (2015). Racial/ethnic differences in parent-reported barriers to accessing children’s health services. Psychological Services,12(3), 1541–1559.CrossRef
Metagegevens
Titel
Meeting FACES: Preliminary Findings from a Community Workshop for Minority Parents of Children with Autism in Central North Carolina
Publicatiedatum
15-11-2019
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 1/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-019-04295-4

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