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05-07-2024

Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries

Auteurs: Nancy E. Mayo, Mohammad Auais, Ruth Barclay, Joan Branin, Helen Dawes, Ida J. Korfage, Kim Sawchuk, Eran Tal, Carole L. White, Zain Ayoubi, Fariha Chowdhury, Julia Henderson, Mae Mansoubi, Kedar K. V. Mate, Lyne Nadea, Sebastian Rodriguez, Ayse Kuspinar

Gepubliceerd in: Quality of Life Research | Uitgave 10/2024

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Abstract

Aims

Many older persons do not think of themselves as “patients” but as persons wishing to live as actively as possible for as long as possible. However, most health-related quality of life (HRQL) measures were developed for use with clinical populations. The aim of this project was to fill that gap and to develop, for international use, a measure of what matters to older persons as they age and seek to remain as active as possible, Older Persons for Active Living (OPAL).

Methods

For content development, interviews about active living were conducted with older persons from Canada, USA, UK, and the Netherlands in English, French, Spanish and Dutch, respectively with subsequent thematic analysis and harmonization.

Results

Analyses of transcripts from 148 older persons revealed that active living was a “way of being” and not merely doing activities. Saturation was reached and a total of 59 content areas were identified. After grouping similar “ways” together and after conducting a consensus rating of importance, 19 unique and important “ways” remained. In some languages, formulating was challenging for three of the 19, resulting in changes to two English words and dropping two other words, yielding a final list of 17 “ways of being” with harmonized wording in 4 languages.

Conclusion

This study underscores the significance of listening to older adults and highlights the importance of considering linguistic and cultural nuances in measure development.
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Metagegevens
Titel
Measuring what matters to older persons for active living: part I content development for the OPAL measure across four countries
Auteurs
Nancy E. Mayo
Mohammad Auais
Ruth Barclay
Joan Branin
Helen Dawes
Ida J. Korfage
Kim Sawchuk
Eran Tal
Carole L. White
Zain Ayoubi
Fariha Chowdhury
Julia Henderson
Mae Mansoubi
Kedar K. V. Mate
Lyne Nadea
Sebastian Rodriguez
Ayse Kuspinar
Publicatiedatum
05-07-2024
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 10/2024
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-024-03714-z