Skip to main content
Top
Gepubliceerd in: Quality of Life Research 5/2016

01-05-2016 | Review

Measuring the impact of informal elderly caregiving: a systematic review of tools

Auteurs: Isabel Mosquera, Itziar Vergara, Isabel Larrañaga, Mónica Machón, María del Río, Carlos Calderón

Gepubliceerd in: Quality of Life Research | Uitgave 5/2016

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail

Abstract

Purpose

To classify and identify the main characteristics of the tools used in practice to assess the impact of elderly caregiving on the informal carers’ life.

Methods

A systematic review of literature was performed searching in Embase, MEDLINE, PsycINFO, CINAHL, IBECS, LILACS, SiiS, SSCI and Cochrane Library from 2009 to 2013 in English, Spanish, Portuguese and French, and in reference lists of included papers.

Results

The review included 79 studies, among them several in languages other than English. Their inclusion increased the variety of identified tools to measure this impact (n = 93) and allowed a wider analysis of their geographical use. While confirming their overlapping nature, instruments were classified according to the degree of integration of dimensions they evaluated and their specificity to the caregiving process: caregiver burden (n = 20), quality of life and well-being (n = 11), management and coping (n = 21), emotional and mental health (n = 29), psychosocial impact (n = 10), physical health and healthy habits (n = 2), and other measures. A high use in practice of tools not validated yet and not caregiver-specific was identified.

Conclusions

The great variety and characteristics of instruments identified in this review confirm the complexity and multidimensionality of the effects of elderly caregiving on the informal carer’s life and explain the difficulties to assess these effects in practice. According to the classification provided, caregiver burden and emotional and mental health are the most evaluated dimensions. However, further work is required to develop integrated and caregiving focused procedures that can appraise this complexity across different countries and cultures.
Literatuur
1.
go back to reference Kinsella, K., & Wan, H. (2009). An aging world 2008. Washington, DC: U.S. Census Bureau, U.S. Government Printing Office. International population reports P95/09-1. Kinsella, K., & Wan, H. (2009). An aging world 2008. Washington, DC: U.S. Census Bureau, U.S. Government Printing Office. International population reports P95/09-1.
2.
go back to reference World Health Organization. (2012). Good health adds life to years. Global brief for World Health Day 2012. Geneva: WHO Document Production Services. World Health Organization. (2012). Good health adds life to years. Global brief for World Health Day 2012. Geneva: WHO Document Production Services.
3.
go back to reference Di Novi, C., Jacobs, R., & Migheli, M. (2013). The quality of life of female informal caregivers: From Scandinavia to the Mediterranean Sea. York: Centre for Health Economics, University of York. CHE research paper 84. Di Novi, C., Jacobs, R., & Migheli, M. (2013). The quality of life of female informal caregivers: From Scandinavia to the Mediterranean Sea. York: Centre for Health Economics, University of York. CHE research paper 84.
4.
go back to reference Hoffmann, F., & Rodrigues, R. (2010). Informal carers: Who takes care of them? Vienna: European Centre for Social Welfare Policy and Research. Policy Briefs. Hoffmann, F., & Rodrigues, R. (2010). Informal carers: Who takes care of them? Vienna: European Centre for Social Welfare Policy and Research. Policy Briefs.
5.
go back to reference European Foundation for the Improvement of Living and Working Conditions. (2004). Health and care in an enlarged Europe. Quality of life in Europe. Dublin, Ireland. European Foundation for the Improvement of Living and Working Conditions. (2004). Health and care in an enlarged Europe. Quality of life in Europe. Dublin, Ireland.
6.
go back to reference Durán, M. A. (2012). El trabajo no remunerado en la economía global. Bilbao: Fundación BBVA. Durán, M. A. (2012). El trabajo no remunerado en la economía global. Bilbao: Fundación BBVA.
7.
go back to reference OECD. (2013). Health at a glance 2013. OECD indicators. Paris: OECD Publishing. OECD. (2013). Health at a glance 2013. OECD indicators. Paris: OECD Publishing.
8.
go back to reference Michel, J. P., Robine, J. M., & Herrmann, F. (2010). Demain, qui va prendre soin des personnes âgées? Le taux de soutien aux très âgés. Bulletin de l’Académie Nationale de Médecine, 194, 793–801.PubMed Michel, J. P., Robine, J. M., & Herrmann, F. (2010). Demain, qui va prendre soin des personnes âgées? Le taux de soutien aux très âgés. Bulletin de l’Académie Nationale de Médecine, 194, 793–801.PubMed
9.
go back to reference Yeh, P. M., & Bull, M. (2012). Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure. International Journal of Older People Nursing, 7, 117–126.PubMedCrossRef Yeh, P. M., & Bull, M. (2012). Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure. International Journal of Older People Nursing, 7, 117–126.PubMedCrossRef
10.
go back to reference Sequeira, C. (2013). Difficulties, coping strategies, satisfaction and burden in informal Portuguese caregivers. Journal of Clinical Nursing, 22, 491–500.PubMedCrossRef Sequeira, C. (2013). Difficulties, coping strategies, satisfaction and burden in informal Portuguese caregivers. Journal of Clinical Nursing, 22, 491–500.PubMedCrossRef
11.
go back to reference Navarro-Peternella, F., & Marcon, S. (2010). A convivência com a doença de Parkinson na perspectiva do parkinsoniano e seus familiares. Revista Gaúcha de Enfermagem, 31, 415–422.PubMedCrossRef Navarro-Peternella, F., & Marcon, S. (2010). A convivência com a doença de Parkinson na perspectiva do parkinsoniano e seus familiares. Revista Gaúcha de Enfermagem, 31, 415–422.PubMedCrossRef
12.
go back to reference Gratão, A. C. M., do Vale, Fd A C, Roriz-Cruz, M., Haas, V. J., Lange, C., Talmelli, L Fd S, & Rodrigues, R. A. P. (2010). The demands of family caregivers of elderly individuals with dementia. Revista da Escola de Enfermagem da USP, 44, 873–880.CrossRef Gratão, A. C. M., do Vale, Fd A C, Roriz-Cruz, M., Haas, V. J., Lange, C., Talmelli, L Fd S, & Rodrigues, R. A. P. (2010). The demands of family caregivers of elderly individuals with dementia. Revista da Escola de Enfermagem da USP, 44, 873–880.CrossRef
13.
go back to reference Floriano, L. A., Azevedo, R. C. d S., Reiners, A. A. O., & Sudre, M. R. S. (2012). Care performed by family caregivers to dependent elderly, at home, within the context of the Family Health Strategy. Texto Context Nursing, 21, 543–548.CrossRef Floriano, L. A., Azevedo, R. C. d S., Reiners, A. A. O., & Sudre, M. R. S. (2012). Care performed by family caregivers to dependent elderly, at home, within the context of the Family Health Strategy. Texto Context Nursing, 21, 543–548.CrossRef
14.
go back to reference de Oliveira, A. P. P., & Caldana, R. H. L. (2012). As repercussões do cuidado na vida do cuidador familiar de idoso com demência de Alzheimer. Saúde e Sociedade, 21, 675–685.CrossRef de Oliveira, A. P. P., & Caldana, R. H. L. (2012). As repercussões do cuidado na vida do cuidador familiar de idoso com demência de Alzheimer. Saúde e Sociedade, 21, 675–685.CrossRef
15.
go back to reference Camargo, R C V Fd. (2010). Implicações na saúde mental de cuidadores de idosos: Uma necessidade urgente de apoio formal. SMAD, Revista Eletrônica Saúde Mental Alcool e Drogas, 6, 231–254.CrossRef Camargo, R C V Fd. (2010). Implicações na saúde mental de cuidadores de idosos: Uma necessidade urgente de apoio formal. SMAD, Revista Eletrônica Saúde Mental Alcool e Drogas, 6, 231–254.CrossRef
16.
go back to reference González-Valentín, A., & Gálvez-Romero, C. (2009). Características sociodemográficas, de salud y utilización de recursos sanitarios de cuidadores de ancianos atendidos en domicilio. Gerokomos, 20, 15–21.CrossRef González-Valentín, A., & Gálvez-Romero, C. (2009). Características sociodemográficas, de salud y utilización de recursos sanitarios de cuidadores de ancianos atendidos en domicilio. Gerokomos, 20, 15–21.CrossRef
17.
go back to reference Carretero, S., Garcés, J., & Ródenas, F. (2011). Evaluation of the home help service and its impact on the informal caregiver’s burden of dependent elders. In J. Garcés, S. Carretero, & F. Ródenas (Eds.), Readings of the social sustainability theory. Applications to the long-term care field (pp. 119–144). Valencia: Editorial Tirant lo Blanch. Carretero, S., Garcés, J., & Ródenas, F. (2011). Evaluation of the home help service and its impact on the informal caregiver’s burden of dependent elders. In J. Garcés, S. Carretero, & F. Ródenas (Eds.), Readings of the social sustainability theory. Applications to the long-term care field (pp. 119–144). Valencia: Editorial Tirant lo Blanch.
18.
go back to reference Gratão, A. C. M., Vendrúscolo, T. R. P., Talmelli, L Fd S, Figueiredo, L. C., Santos, J. L. F., & Rodrigues, R. A. P. (2012). Sobrecarga e desconforto emocional em cuidadores de idosos. Texto & Contexto Enfermagem, 21, 304–312.CrossRef Gratão, A. C. M., Vendrúscolo, T. R. P., Talmelli, L Fd S, Figueiredo, L. C., Santos, J. L. F., & Rodrigues, R. A. P. (2012). Sobrecarga e desconforto emocional em cuidadores de idosos. Texto & Contexto Enfermagem, 21, 304–312.CrossRef
19.
go back to reference Silva, M., Monteiro, L., Silva, A., & Ferriera, M. (2012). Estudo das necessidades dos cuidadores informais de idosos do concelho de Ílhavo. Nursing: Revista de Formação Contínua em Enfermagem, 24, 5–11. Silva, M., Monteiro, L., Silva, A., & Ferriera, M. (2012). Estudo das necessidades dos cuidadores informais de idosos do concelho de Ílhavo. Nursing: Revista de Formação Contínua em Enfermagem, 24, 5–11.
20.
go back to reference Fernandes, M. d G. M., & Garcia, T. R. (2009). Tension attributes of the family caregiver of frail older adults. Revista da Escola de Enfermagem da USP, 43, 818–824.CrossRef Fernandes, M. d G. M., & Garcia, T. R. (2009). Tension attributes of the family caregiver of frail older adults. Revista da Escola de Enfermagem da USP, 43, 818–824.CrossRef
21.
go back to reference Pereira, M Jd S B, & Filgueiras, M. S. T. (2009). A dependência no processo de envelhecimiento: Uma revisão sobre cuidadores informais de idosos. Revista de Atenção Primária à Saúde, 12, 72–82. Pereira, M Jd S B, & Filgueiras, M. S. T. (2009). A dependência no processo de envelhecimiento: Uma revisão sobre cuidadores informais de idosos. Revista de Atenção Primária à Saúde, 12, 72–82.
22.
go back to reference Shaw, C., McNamara, R., Abrams, K., Cannings-John, R., Hood, K., Longo, M., et al. (2009). Systematic review of respite care in the frail elderly. Health Technology Assessment, 13, 1–224.PubMedCrossRef Shaw, C., McNamara, R., Abrams, K., Cannings-John, R., Hood, K., Longo, M., et al. (2009). Systematic review of respite care in the frail elderly. Health Technology Assessment, 13, 1–224.PubMedCrossRef
23.
go back to reference Gonçalves, L. H. T., Costa, M. A. M., Martins, M. M., Nassar, S. M., & Zunino, R. (2011). The family dynamics of elder elderly in the context of Porto, Portugal. Revista Latino-Americana de Enfermagem, 19, 458–466.CrossRef Gonçalves, L. H. T., Costa, M. A. M., Martins, M. M., Nassar, S. M., & Zunino, R. (2011). The family dynamics of elder elderly in the context of Porto, Portugal. Revista Latino-Americana de Enfermagem, 19, 458–466.CrossRef
24.
go back to reference Cuéllar Flores, I., & Sánchez López, M. P. (2012). Adaptación psicológica en personas cuidadoras de familiares dependientes. Clínica y Salud, 23, 141–152.CrossRef Cuéllar Flores, I., & Sánchez López, M. P. (2012). Adaptación psicológica en personas cuidadoras de familiares dependientes. Clínica y Salud, 23, 141–152.CrossRef
25.
go back to reference Neri, A. L., Yassuda, M. S., Fortes-Burgos, A. C., Mantovani, E. P., Arbex, F. S., De Souza Torres, S. V., et al. (2012). Relationships between gender, age, family conditions, physical and mental health, and social isolation of elderly caregivers. International Psychogeriatrics, 24, 472–483.PubMedCrossRef Neri, A. L., Yassuda, M. S., Fortes-Burgos, A. C., Mantovani, E. P., Arbex, F. S., De Souza Torres, S. V., et al. (2012). Relationships between gender, age, family conditions, physical and mental health, and social isolation of elderly caregivers. International Psychogeriatrics, 24, 472–483.PubMedCrossRef
26.
go back to reference Limpawattana, P., Theeranut, A., Chindaprasirt, J., Sawanyawisuth, K., & Pimporm, J. (2013). Caregivers burden of older adults with chronic illnesses in the community: A cross-sectional study. Journal of Community Health, 38, 40–45.PubMedCrossRef Limpawattana, P., Theeranut, A., Chindaprasirt, J., Sawanyawisuth, K., & Pimporm, J. (2013). Caregivers burden of older adults with chronic illnesses in the community: A cross-sectional study. Journal of Community Health, 38, 40–45.PubMedCrossRef
27.
go back to reference Pimenta, G. M. F., Costa, M. A. S., Goncalves, L. H. T., & Alvarez, A. M. (2009). Profile of the caregiver of dependent elderly family members in a home environment in the city of Porto, Portugal. Revista da Escola de Enfermagem da USP, 43, 609–614.CrossRef Pimenta, G. M. F., Costa, M. A. S., Goncalves, L. H. T., & Alvarez, A. M. (2009). Profile of the caregiver of dependent elderly family members in a home environment in the city of Porto, Portugal. Revista da Escola de Enfermagem da USP, 43, 609–614.CrossRef
28.
go back to reference Liu, Z. R., Albanese, E., Li, S. R., Huang, Y. Q., Ferri, C. P., Yan, F., et al. (2009) Chronic disease prevalence and care among the elderly in urban and rural Beijing, China—A 10/66 Dementia Research Group cross-sectional survey. BMC Public Health, 9, 394.PubMedPubMedCentralCrossRef Liu, Z. R., Albanese, E., Li, S. R., Huang, Y. Q., Ferri, C. P., Yan, F., et al. (2009) Chronic disease prevalence and care among the elderly in urban and rural Beijing, China—A 10/66 Dementia Research Group cross-sectional survey. BMC Public Health, 9, 394.PubMedPubMedCentralCrossRef
29.
go back to reference Uwakwe, R., Ibeh, C. C., Modebe, A. I., Bo, E., Ezeama, N., Njelita, I., et al. (2009). The epidemiology of dependence in older people in Nigeria: Prevalence, determinants, informal care, and health service utilization. A 10/66 Dementia Research Group cross-sectional survey. Journal of the American Geriatrics Society, 57, 1620–1627.PubMedCrossRef Uwakwe, R., Ibeh, C. C., Modebe, A. I., Bo, E., Ezeama, N., Njelita, I., et al. (2009). The epidemiology of dependence in older people in Nigeria: Prevalence, determinants, informal care, and health service utilization. A 10/66 Dementia Research Group cross-sectional survey. Journal of the American Geriatrics Society, 57, 1620–1627.PubMedCrossRef
30.
go back to reference Ferri, C. P., Schoenborn, C., Kalra, L., Acosta, D., Guerra, M., Huang, Y. Q., et al. (2011). Prevalence of stroke and related burden among older people living in Latin America, India and China. Journal of Neurology, Neurosurgery and Psychiatry, 82, 1074–1082.PubMedPubMedCentralCrossRef Ferri, C. P., Schoenborn, C., Kalra, L., Acosta, D., Guerra, M., Huang, Y. Q., et al. (2011). Prevalence of stroke and related burden among older people living in Latin America, India and China. Journal of Neurology, Neurosurgery and Psychiatry, 82, 1074–1082.PubMedPubMedCentralCrossRef
31.
go back to reference Moya-Martinez, P., Escribano-Sotos, F., & Pardo-Garcia, I. (2012). La participación en el mercado laboral de los cuidadores informales de personas mayores en España. Innovar-Revista de Ciencias Administrativas y Sociales, 22, 55–66. Moya-Martinez, P., Escribano-Sotos, F., & Pardo-Garcia, I. (2012). La participación en el mercado laboral de los cuidadores informales de personas mayores en España. Innovar-Revista de Ciencias Administrativas y Sociales, 22, 55–66.
32.
go back to reference Canga, A., Vivar, C. G., & Naval, C. (2011). Dependencia y familia cuidadora: Reflexiones para un abordaje familiar. Anales del Sistema Sanitario de Navarra, 34, 463–469.CrossRef Canga, A., Vivar, C. G., & Naval, C. (2011). Dependencia y familia cuidadora: Reflexiones para un abordaje familiar. Anales del Sistema Sanitario de Navarra, 34, 463–469.CrossRef
33.
go back to reference Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., & Ingham, J. M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26, 922–953.PubMedCrossRef Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., & Ingham, J. M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom Management, 26, 922–953.PubMedCrossRef
34.
go back to reference Van Durme, T., Macq, J., Jeanmart, C., & Gobert, M. (2012). Tools for measuring the impact of informal caregiving of the elderly: A literature review. International Journal of Nursing Studies, 49, 490–504.PubMedCrossRef Van Durme, T., Macq, J., Jeanmart, C., & Gobert, M. (2012). Tools for measuring the impact of informal caregiving of the elderly: A literature review. International Journal of Nursing Studies, 49, 490–504.PubMedCrossRef
35.
go back to reference IMSERSO. (2005). Libro Blanco. Atención a las personas en situación de dependencia en España (1st ed.). Madrid: Instituto de Mayores y Servicios Sociales (IMSERSO). IMSERSO. (2005). Libro Blanco. Atención a las personas en situación de dependencia en España (1st ed.). Madrid: Instituto de Mayores y Servicios Sociales (IMSERSO).
36.
go back to reference García Calvente, M. M., & Del Río Lozano, M. (2012) El papel del cuidado informal en la atención a la dependencia: ¿Cuidamos a quiénes nos cuidan? Actas de la dependencia, 6, 99–116. García Calvente, M. M., & Del Río Lozano, M. (2012) El papel del cuidado informal en la atención a la dependencia: ¿Cuidamos a quiénes nos cuidan? Actas de la dependencia, 6, 99–116.
37.
go back to reference Ferrans, C. E., Zerwic, J. J., Wilbur, J. E., & Larson, J. L. (2005). Conceptual model of health-related quality of life. Journal of Nursing Scholarship, 37, 336–342.PubMedCrossRef Ferrans, C. E., Zerwic, J. J., Wilbur, J. E., & Larson, J. L. (2005). Conceptual model of health-related quality of life. Journal of Nursing Scholarship, 37, 336–342.PubMedCrossRef
38.
go back to reference Bakas, T., McLennon, S. M., Carpenter, J. S., Buelow, J. M., Otte, J. L., Hanna, K. M., et al. (2012) Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10, 134.PubMedPubMedCentralCrossRef Bakas, T., McLennon, S. M., Carpenter, J. S., Buelow, J. M., Otte, J. L., Hanna, K. M., et al. (2012) Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10, 134.PubMedPubMedCentralCrossRef
39.
go back to reference Aaronson, N., Alonso, J., Burnam, A., Lohr, K. N., Patrick, D. L., Perrin, E., & Stein, R. E. (2002). Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 11, 193–205.PubMedCrossRef Aaronson, N., Alonso, J., Burnam, A., Lohr, K. N., Patrick, D. L., Perrin, E., & Stein, R. E. (2002). Assessing health status and quality-of-life instruments: Attributes and review criteria. Quality of Life Research, 11, 193–205.PubMedCrossRef
40.
go back to reference Fernandes, Md G M, & Garcia, T. R. (2009). Estrutura conceitual da tensão do cuidador familiar de idosos dependentes. Revista Eletrônica de Enfermagem, 11, 469–476.CrossRef Fernandes, Md G M, & Garcia, T. R. (2009). Estrutura conceitual da tensão do cuidador familiar de idosos dependentes. Revista Eletrônica de Enfermagem, 11, 469–476.CrossRef
41.
go back to reference Pinto, M. F., Barbosa, D. A., Ferreti, C Ed L, de Souza, L. F., Fram, D. S., & Belasco, A. G. S. (2009). Qualidade de vida de cuidadores de idosos com doença de Alzheimer. Acta Paulista de Enfermagem, 22, 652–657.CrossRef Pinto, M. F., Barbosa, D. A., Ferreti, C Ed L, de Souza, L. F., Fram, D. S., & Belasco, A. G. S. (2009). Qualidade de vida de cuidadores de idosos com doença de Alzheimer. Acta Paulista de Enfermagem, 22, 652–657.CrossRef
42.
go back to reference Salin, S., Kaunonen, M., & Astedt-Kurki, P. (2009). Informal carers of older family members: How they manage and what support they receive from respite care. Journal of Clinical Nursing, 18, 492–501.PubMedCrossRef Salin, S., Kaunonen, M., & Astedt-Kurki, P. (2009). Informal carers of older family members: How they manage and what support they receive from respite care. Journal of Clinical Nursing, 18, 492–501.PubMedCrossRef
43.
go back to reference Clark, M. C., & Diamond, P. M. (2010). Depression in family caregivers of elders: A theoretical model of caregiver burden, sociotropy, and autonomy. Research in Nursing & Health, 33, 20–34. Clark, M. C., & Diamond, P. M. (2010). Depression in family caregivers of elders: A theoretical model of caregiver burden, sociotropy, and autonomy. Research in Nursing & Health, 33, 20–34.
44.
go back to reference Garlo, K., O’Leary, J. R., Van Ness, P. H., & Fried, T. R. (2010). Burden in caregivers of older adults with advanced illness. Journal of the American Geriatrics Society, 58, 2315–2322.PubMedPubMedCentralCrossRef Garlo, K., O’Leary, J. R., Van Ness, P. H., & Fried, T. R. (2010). Burden in caregivers of older adults with advanced illness. Journal of the American Geriatrics Society, 58, 2315–2322.PubMedPubMedCentralCrossRef
45.
go back to reference García-Alberca, J. M., Lara, J. P., & Berthier, M. L. (2011). Anxiety and depression in caregivers are associated with patient and caregiver characteristics in Alzheimer’s disease. The International Journal of Psychiatry in Medicine, 41, 57–69.PubMedCrossRef García-Alberca, J. M., Lara, J. P., & Berthier, M. L. (2011). Anxiety and depression in caregivers are associated with patient and caregiver characteristics in Alzheimer’s disease. The International Journal of Psychiatry in Medicine, 41, 57–69.PubMedCrossRef
46.
go back to reference Guerra-Silla, M. G., Gutiérrez-Robledo, L. M., Villalpando-Berumen, J. M., Pérez-Zepeda, M. U., Montaña-Álvarez, M., Reyes-Guerrero, J., & Rosas-Carrasco, Ó. (2011). Psychometric evaluation of a Spanish language version of the Screen for Caregiver Burden (SCB) in caregivers of patients with mixed, vascular and Alzheimer’s dementia. Journal of Clinical Nursing, 20, 3443–3451.PubMedCrossRef Guerra-Silla, M. G., Gutiérrez-Robledo, L. M., Villalpando-Berumen, J. M., Pérez-Zepeda, M. U., Montaña-Álvarez, M., Reyes-Guerrero, J., & Rosas-Carrasco, Ó. (2011). Psychometric evaluation of a Spanish language version of the Screen for Caregiver Burden (SCB) in caregivers of patients with mixed, vascular and Alzheimer’s dementia. Journal of Clinical Nursing, 20, 3443–3451.PubMedCrossRef
47.
go back to reference Kuzuya, M., Enoki, H., Hasegawa, J., Izawa, S., Hirakawa, Y., Shimokata, H., & Akihisa, I. (2011). Impact of caregiver burden on adverse health outcomes in community-dwelling dependent older care recipients. The American Journal of Geriatric Psychiatry, 19, 382–391.PubMedCrossRef Kuzuya, M., Enoki, H., Hasegawa, J., Izawa, S., Hirakawa, Y., Shimokata, H., & Akihisa, I. (2011). Impact of caregiver burden on adverse health outcomes in community-dwelling dependent older care recipients. The American Journal of Geriatric Psychiatry, 19, 382–391.PubMedCrossRef
48.
go back to reference Casado, B., & Sacco, P. (2012). Correlates of caregiver burden among family caregivers of older Korean Americans. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 67, 331–336.CrossRef Casado, B., & Sacco, P. (2012). Correlates of caregiver burden among family caregivers of older Korean Americans. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 67, 331–336.CrossRef
49.
go back to reference Werner, S., Auslander, G. K., Shoval, N., Gitlitz, T., Landau, R., & Heinik, J. (2012). Caregiving burden and out-of-home mobility of cognitively impaired care-recipients based on GPS tracking. International Psychogeriatrics, 24, 1836–1845.PubMedCrossRef Werner, S., Auslander, G. K., Shoval, N., Gitlitz, T., Landau, R., & Heinik, J. (2012). Caregiving burden and out-of-home mobility of cognitively impaired care-recipients based on GPS tracking. International Psychogeriatrics, 24, 1836–1845.PubMedCrossRef
50.
go back to reference Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Lopez-Pousa, S., & Vilalta-Franch, J. (2009). Factors related to perceived quality of life in patients with Alzheimer’s disease: The patient’s perception compared with that of caregivers. International Journal of Geriatric Psychiatry, 24, 585–594.PubMedCrossRef Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Lopez-Pousa, S., & Vilalta-Franch, J. (2009). Factors related to perceived quality of life in patients with Alzheimer’s disease: The patient’s perception compared with that of caregivers. International Journal of Geriatric Psychiatry, 24, 585–594.PubMedCrossRef
51.
go back to reference Machnicki, G., Allegri, R. F., Dillon, C., Serrano, C. M., & Taragano, F. E. (2009). Cognitive, functional and behavioral factors associated with the burden of caring for geriatric patients with cognitive impairment or depression: Evidence from a South American sample. International Journal of Geriatric Psychiatry, 24, 382–389.PubMedCrossRef Machnicki, G., Allegri, R. F., Dillon, C., Serrano, C. M., & Taragano, F. E. (2009). Cognitive, functional and behavioral factors associated with the burden of caring for geriatric patients with cognitive impairment or depression: Evidence from a South American sample. International Journal of Geriatric Psychiatry, 24, 382–389.PubMedCrossRef
52.
go back to reference Losada, A., Pérez-Peñaranda, A., Rodriguez-Sanchez, E., Gomez-Marcos, M. A., Ballesteros-Rios, C., Ramos-Carrera, I. R., et al. (2010). Leisure and distress in caregivers for elderly patients. Archives of Gerontology and Geriatrics, 50, 347–350.PubMedCrossRef Losada, A., Pérez-Peñaranda, A., Rodriguez-Sanchez, E., Gomez-Marcos, M. A., Ballesteros-Rios, C., Ramos-Carrera, I. R., et al. (2010). Leisure and distress in caregivers for elderly patients. Archives of Gerontology and Geriatrics, 50, 347–350.PubMedCrossRef
53.
go back to reference Mohamed, S., Rosenheck, R., Lyketsos, C. G., & Schneider, L. S. (2010). Caregiver burden in Alzheimer disease: Cross-sectional and longitudinal patient correlates. The American Journal of Geriatric Psychiatry, 18, 917–927.PubMedPubMedCentralCrossRef Mohamed, S., Rosenheck, R., Lyketsos, C. G., & Schneider, L. S. (2010). Caregiver burden in Alzheimer disease: Cross-sectional and longitudinal patient correlates. The American Journal of Geriatric Psychiatry, 18, 917–927.PubMedPubMedCentralCrossRef
54.
go back to reference Canonici, A. P., Andrade, L. P., Gobbi, S., Santos-Galduroz, R. F., Gobbi, L. T., & Stella, F. (2012). Functional dependence and caregiver burden in Alzheimer’s disease: A controlled trial on the benefits of motor intervention. Psychogeriatrics, 12, 186–192.PubMedCrossRef Canonici, A. P., Andrade, L. P., Gobbi, S., Santos-Galduroz, R. F., Gobbi, L. T., & Stella, F. (2012). Functional dependence and caregiver burden in Alzheimer’s disease: A controlled trial on the benefits of motor intervention. Psychogeriatrics, 12, 186–192.PubMedCrossRef
55.
go back to reference Clark, M. C., Nicholas, J. M., Wassira, L. N., & Gutierrez, A. P. (2013). Psychosocial and biological indicators of depression in the caregiving population. Biological Research for Nursing, 15, 112–121.PubMedCrossRef Clark, M. C., Nicholas, J. M., Wassira, L. N., & Gutierrez, A. P. (2013). Psychosocial and biological indicators of depression in the caregiving population. Biological Research for Nursing, 15, 112–121.PubMedCrossRef
56.
go back to reference Izawa, S., Hasegawa, J., Enoki, H., Iguch, A., & Kuzuya, M. (2010). Depressive symptoms of informal caregivers are associated with those of community-dwelling dependent care recipients. International Psychogeriatrics, 22, 1310–1317.PubMedCrossRef Izawa, S., Hasegawa, J., Enoki, H., Iguch, A., & Kuzuya, M. (2010). Depressive symptoms of informal caregivers are associated with those of community-dwelling dependent care recipients. International Psychogeriatrics, 22, 1310–1317.PubMedCrossRef
57.
go back to reference Turró-Garriga, O., López-Pousa, S., Vilalta-Franch, J., Turon-Estrada, A., Pericot-Nierga, I., Lozano-Gallego, M., et al. (2010). Valor económico anual de la asistencia informal en la enfermedad de Alzheimer. Revista de Neurología, 51, 201–207.PubMed Turró-Garriga, O., López-Pousa, S., Vilalta-Franch, J., Turon-Estrada, A., Pericot-Nierga, I., Lozano-Gallego, M., et al. (2010). Valor económico anual de la asistencia informal en la enfermedad de Alzheimer. Revista de Neurología, 51, 201–207.PubMed
58.
go back to reference Uesugui, H. M., Fagundes, D. S., & Pinho, D. L. M. (2011). Profile and degree of dependency of the elderly and overload of their caregivers. Acta Paulista de Enfermagem, 24, 689–694. Uesugui, H. M., Fagundes, D. S., & Pinho, D. L. M. (2011). Profile and degree of dependency of the elderly and overload of their caregivers. Acta Paulista de Enfermagem, 24, 689–694.
59.
go back to reference Gratão, A. C. M., Talmelli, L. F. D., Figueiredo, L. C., Rosset, I., Freitas, C. P., & Rodrigues, R. A. P. (2013). Functional dependency of older individuals and caregiver burden. Revista da Escola de Enfermagem da USP, 47, 134–141.CrossRef Gratão, A. C. M., Talmelli, L. F. D., Figueiredo, L. C., Rosset, I., Freitas, C. P., & Rodrigues, R. A. P. (2013). Functional dependency of older individuals and caregiver burden. Revista da Escola de Enfermagem da USP, 47, 134–141.CrossRef
60.
go back to reference Garcés, J., Carretero, S., Rodenas, F., & Sanjosé, V. (2009). Variables related to the informal caregivers’ burden of dependent senior citizens in Spain. Archives of Gerontology and Geriatrics, 48, 372–379.PubMedCrossRef Garcés, J., Carretero, S., Rodenas, F., & Sanjosé, V. (2009). Variables related to the informal caregivers’ burden of dependent senior citizens in Spain. Archives of Gerontology and Geriatrics, 48, 372–379.PubMedCrossRef
61.
go back to reference Martín-Carrasco, M., Franco Martín, M., Pelegrín Valero, C., Roy Millan, P., Iglesias García, C., Ros Montalbán, S., et al. (2009). Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer’s disease patients’ caregivers. International Journal of Geriatric Psychiatry, 24, 489–499.PubMedCrossRef Martín-Carrasco, M., Franco Martín, M., Pelegrín Valero, C., Roy Millan, P., Iglesias García, C., Ros Montalbán, S., et al. (2009). Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer’s disease patients’ caregivers. International Journal of Geriatric Psychiatry, 24, 489–499.PubMedCrossRef
62.
go back to reference Orueta-Sánchez, R., Gómez-Calcerrada, R. M., Gómez-Caro, S., Sánchez-Oropesa, A., López-Gil, M. J., & Toledano-Sierra, P. (2011). Impacto sobre el cuidador principal de una intervencion realizada a personas mayores dependientes. Atención Primaria, 43, 490–496.PubMedCrossRef Orueta-Sánchez, R., Gómez-Calcerrada, R. M., Gómez-Caro, S., Sánchez-Oropesa, A., López-Gil, M. J., & Toledano-Sierra, P. (2011). Impacto sobre el cuidador principal de una intervencion realizada a personas mayores dependientes. Atención Primaria, 43, 490–496.PubMedCrossRef
63.
go back to reference Tremont, G., Davis, J., Papandonatos, G. D., Grover, C., Ott, B. R., Fortinsky, R. H., et al. (2013). A telephone intervention for dementia caregivers: Background, design, and baseline characteristics. Contemporary Clinical Trials, 36, 338–347.PubMedCrossRef Tremont, G., Davis, J., Papandonatos, G. D., Grover, C., Ott, B. R., Fortinsky, R. H., et al. (2013). A telephone intervention for dementia caregivers: Background, design, and baseline characteristics. Contemporary Clinical Trials, 36, 338–347.PubMedCrossRef
64.
go back to reference Fialho, P. P. A., Koenig, A. M., dos Santos, E. L., Guimarães, H. C., Beato, R. G., Carvalho, V. A., et al. (2009). Dementia caregiver burden in a Brazilian sample: Association to neuropsychiatric symptoms. Dementia & Neuropsychologia, 3, 132–135. Fialho, P. P. A., Koenig, A. M., dos Santos, E. L., Guimarães, H. C., Beato, R. G., Carvalho, V. A., et al. (2009). Dementia caregiver burden in a Brazilian sample: Association to neuropsychiatric symptoms. Dementia & Neuropsychologia, 3, 132–135.
65.
go back to reference Pereira, M. D. G., & Carvalho, H. (2012). Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional. Temas em Psicologia, 20, 369–383.CrossRef Pereira, M. D. G., & Carvalho, H. (2012). Qualidade vida, sobrecarga, suporte social, ajustamento conjugal e morbidade psicológica em cuidadores de idosos com dependência funcional. Temas em Psicologia, 20, 369–383.CrossRef
66.
go back to reference Yan, E., & Kwok, T. (2011). Abuse of older Chinese with dementia by family caregivers: An inquiry into the role of caregiver burden. International Journal of Geriatric Psychiatry, 26, 527–535.PubMedCrossRef Yan, E., & Kwok, T. (2011). Abuse of older Chinese with dementia by family caregivers: An inquiry into the role of caregiver burden. International Journal of Geriatric Psychiatry, 26, 527–535.PubMedCrossRef
67.
go back to reference Burgio, L. D., Collins, I. B., Schmid, B., Wharton, T., McCallum, D., & Decoster, J. (2009). Translating the REACH caregiver intervention for use by area agency on aging personnel: The REACH OUT program. The Gerontologist, 49, 103–116.PubMedPubMedCentralCrossRef Burgio, L. D., Collins, I. B., Schmid, B., Wharton, T., McCallum, D., & Decoster, J. (2009). Translating the REACH caregiver intervention for use by area agency on aging personnel: The REACH OUT program. The Gerontologist, 49, 103–116.PubMedPubMedCentralCrossRef
68.
go back to reference Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). Targeting and managing behavioral symptoms in individuals with dementia: A randomized trial of a nonpharmacological intervention. Journal of the American Geriatrics Society, 58, 1465–1474.PubMedPubMedCentralCrossRef Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). Targeting and managing behavioral symptoms in individuals with dementia: A randomized trial of a nonpharmacological intervention. Journal of the American Geriatrics Society, 58, 1465–1474.PubMedPubMedCentralCrossRef
69.
go back to reference Black, B. S., Johnston, D., Morrison, A., Rabins, P. V., Lyketsos, C. G., & Samus, Q. M. (2012). Quality of life of community-residing persons with dementia based on self-rated and caregiver-rated measures. Quality of Life Research, 21, 1379–1389.PubMedPubMedCentralCrossRef Black, B. S., Johnston, D., Morrison, A., Rabins, P. V., Lyketsos, C. G., & Samus, Q. M. (2012). Quality of life of community-residing persons with dementia based on self-rated and caregiver-rated measures. Quality of Life Research, 21, 1379–1389.PubMedPubMedCentralCrossRef
70.
go back to reference Rodriguez-Sanchez, E., Patino-Alonso, M. C., Mora-Simón, S., Gómez-Marcos, M. A., Pérez-Peñaranda, A., Losada-Baltar, A., & García-Ortiz, L. (2013). Effects of a psychological intervention in a primary health care center for caregivers of dependent relatives: A randomized trial. The Gerontologist, 53, 397–406.PubMedCrossRef Rodriguez-Sanchez, E., Patino-Alonso, M. C., Mora-Simón, S., Gómez-Marcos, M. A., Pérez-Peñaranda, A., Losada-Baltar, A., & García-Ortiz, L. (2013). Effects of a psychological intervention in a primary health care center for caregivers of dependent relatives: A randomized trial. The Gerontologist, 53, 397–406.PubMedCrossRef
71.
go back to reference World Health Organization. (1993). Report of WHOQOL focus group work (MNH/PSF/93.4). Geneva: WHO. World Health Organization. (1993). Report of WHOQOL focus group work (MNH/PSF/93.4). Geneva: WHO.
72.
go back to reference Novelli, M. M., Nitrini, R., & Caramelli, P. (2010). Validation of the Brazilian version of the quality of life scale for patients with Alzheimer’s disease and their caregivers (QOL-AD). Aging & Mental Health, 14, 624–631.CrossRef Novelli, M. M., Nitrini, R., & Caramelli, P. (2010). Validation of the Brazilian version of the quality of life scale for patients with Alzheimer’s disease and their caregivers (QOL-AD). Aging & Mental Health, 14, 624–631.CrossRef
73.
go back to reference Baumann, M., Couffignal, S., Le, B. E., & Chau, N. (2012). Life satisfaction two-years after stroke onset: The effects of gender, sex occupational status, memory function and quality of life among stroke patients (Newsqol) and their family caregivers (Whoqol-bref) in Luxembourg. BMC Neurology, 12, 105.PubMedPubMedCentralCrossRef Baumann, M., Couffignal, S., Le, B. E., & Chau, N. (2012). Life satisfaction two-years after stroke onset: The effects of gender, sex occupational status, memory function and quality of life among stroke patients (Newsqol) and their family caregivers (Whoqol-bref) in Luxembourg. BMC Neurology, 12, 105.PubMedPubMedCentralCrossRef
74.
go back to reference Inouye, K., Pedrazzani, E. S., Pavarini, S. C., & Toyoda, C. Y. (2009). Perceived quality of life of elderly patients with dementia and family caregivers: Evaluation and correlation. Revista Latino-Americana de Enfermagem, 17, 187–193.PubMedCrossRef Inouye, K., Pedrazzani, E. S., Pavarini, S. C., & Toyoda, C. Y. (2009). Perceived quality of life of elderly patients with dementia and family caregivers: Evaluation and correlation. Revista Latino-Americana de Enfermagem, 17, 187–193.PubMedCrossRef
75.
go back to reference Arons, A. M., Krabbe, P. F., Scholzel-Dorenbos, C. J., van der Wilt, G. J., & Rikkert, M. G. (2013). Quality of life in dementia: A study on proxy bias. BMC Medical Research Methodology, 13, 110.PubMedPubMedCentralCrossRef Arons, A. M., Krabbe, P. F., Scholzel-Dorenbos, C. J., van der Wilt, G. J., & Rikkert, M. G. (2013). Quality of life in dementia: A study on proxy bias. BMC Medical Research Methodology, 13, 110.PubMedPubMedCentralCrossRef
76.
go back to reference Löckenhoff, C. E., Duberstein, P. R., Friedman, B., & Costa, P. T, Jr. (2011). Five-factor personality traits and subjective health among caregivers: The role of caregiver strain and self-efficacy. Psychology and Aging, 26, 592–604.PubMedPubMedCentralCrossRef Löckenhoff, C. E., Duberstein, P. R., Friedman, B., & Costa, P. T, Jr. (2011). Five-factor personality traits and subjective health among caregivers: The role of caregiver strain and self-efficacy. Psychology and Aging, 26, 592–604.PubMedPubMedCentralCrossRef
77.
go back to reference Zacher, H., Jimmieson, N. L., & Winter, G. (2011). Eldercare demands, mental health, and work performance: The moderating role of satisfaction with eldercare tasks. Journal of Occupational Health Psychology, 17, 52–64.PubMedCrossRef Zacher, H., Jimmieson, N. L., & Winter, G. (2011). Eldercare demands, mental health, and work performance: The moderating role of satisfaction with eldercare tasks. Journal of Occupational Health Psychology, 17, 52–64.PubMedCrossRef
78.
go back to reference Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: The COPE randomized trial. Journal of American Medical Association, 304, 983–991.CrossRef Gitlin, L. N., Winter, L., Dennis, M. P., Hodgson, N., & Hauck, W. W. (2010). A biobehavioral home-based intervention and the well-being of patients with dementia and their caregivers: The COPE randomized trial. Journal of American Medical Association, 304, 983–991.CrossRef
79.
go back to reference Yeh, P. M., & Bull, M. (2009). Influences of spiritual well-being and coping on mental health of family caregivers for elders. Research in Gerontological Nursing, 2, 173–181.PubMedCrossRef Yeh, P. M., & Bull, M. (2009). Influences of spiritual well-being and coping on mental health of family caregivers for elders. Research in Gerontological Nursing, 2, 173–181.PubMedCrossRef
80.
go back to reference Gottlieb, B. H., & Wolfe, J. (2002). Coping with family caregiving to persons with dementia: A critical review. Aging & Mental Health, 6, 325–342.CrossRef Gottlieb, B. H., & Wolfe, J. (2002). Coping with family caregiving to persons with dementia: A critical review. Aging & Mental Health, 6, 325–342.CrossRef
81.
go back to reference Fredrickson, B. L., & Branigan, C. (2005). Positive emotions broaden the scope of attention and thought-action repertoires. Cognition and Emotion, 19, 313–332.PubMedPubMedCentralCrossRef Fredrickson, B. L., & Branigan, C. (2005). Positive emotions broaden the scope of attention and thought-action repertoires. Cognition and Emotion, 19, 313–332.PubMedPubMedCentralCrossRef
82.
go back to reference Barbosa, A., Figueiredo, D., Sousa, L., & Demain, S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15, 490–499.CrossRef Barbosa, A., Figueiredo, D., Sousa, L., & Demain, S. (2011). Coping with the caregiving role: Differences between primary and secondary caregivers of dependent elderly people. Aging & Mental Health, 15, 490–499.CrossRef
83.
go back to reference Ducharme, F. C., Levesque, L. L., Lachance, L. M., Kergoat, M. J., Legault, A. J., Beaudet, L. M., & Zarit, S. H. (2011). “Learning to become a family caregiver”. Efficacy of an intervention program for caregivers following diagnosis of dementia in a relative. The Gerontologist, 51, 484–494.PubMedCrossRef Ducharme, F. C., Levesque, L. L., Lachance, L. M., Kergoat, M. J., Legault, A. J., Beaudet, L. M., & Zarit, S. H. (2011). “Learning to become a family caregiver”. Efficacy of an intervention program for caregivers following diagnosis of dementia in a relative. The Gerontologist, 51, 484–494.PubMedCrossRef
84.
go back to reference Chan, S. W. (2010). Family caregiving in dementia: The Asian perspective of a global problem. Dementia and Geriatric Cognitive Disorders, 30, 469–478.PubMedCrossRef Chan, S. W. (2010). Family caregiving in dementia: The Asian perspective of a global problem. Dementia and Geriatric Cognitive Disorders, 30, 469–478.PubMedCrossRef
85.
go back to reference World Health Organization. (2001). A public health approach to mental health. In A. Haden & B. Campanini (Eds.), The world health report 2001—Mental health: New understanding, new hope (pp. 2–17). Geneva: WHO. World Health Organization. (2001). A public health approach to mental health. In A. Haden & B. Campanini (Eds.), The world health report 2001—Mental health: New understanding, new hope (pp. 2–17). Geneva: WHO.
86.
go back to reference Masanet, E., & La Parra, D. (2011). Relación entre el número de horas de cuidado informal y el estado de salud mental de las personas cuidadoras. Revista Española de Salud Pública, 85, 257–266.PubMedCrossRef Masanet, E., & La Parra, D. (2011). Relación entre el número de horas de cuidado informal y el estado de salud mental de las personas cuidadoras. Revista Española de Salud Pública, 85, 257–266.PubMedCrossRef
87.
go back to reference Mackenzie, C. S., Wiprzycka, U. J., Hasher, L., & Goldstein, D. (2009). Associations between psychological distress, learning, and memory in spouse caregivers of older adults. Journal of Gerontology: Psychological Sciences, 64B, 742–746.CrossRef Mackenzie, C. S., Wiprzycka, U. J., Hasher, L., & Goldstein, D. (2009). Associations between psychological distress, learning, and memory in spouse caregivers of older adults. Journal of Gerontology: Psychological Sciences, 64B, 742–746.CrossRef
88.
go back to reference Schoenmakers, B., Buntinx, F., & DeLepeleire, J. (2010). Supporting the dementia family caregiver: The effect of home care intervention on general well-being. Aging & Mental Health, 14, 44–56.CrossRef Schoenmakers, B., Buntinx, F., & DeLepeleire, J. (2010). Supporting the dementia family caregiver: The effect of home care intervention on general well-being. Aging & Mental Health, 14, 44–56.CrossRef
89.
go back to reference Rezende, T. C., Coimbra, A. M., Costallat, L. T., & Coimbra, I. B. (2010). Factors of high impacts on the life of caregivers of disabled elderly. Archives of Gerontology and Geriatrics, 51, 76–80.PubMedCrossRef Rezende, T. C., Coimbra, A. M., Costallat, L. T., & Coimbra, I. B. (2010). Factors of high impacts on the life of caregivers of disabled elderly. Archives of Gerontology and Geriatrics, 51, 76–80.PubMedCrossRef
90.
go back to reference Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26, 1–14.PubMedPubMedCentralCrossRef Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26, 1–14.PubMedPubMedCentralCrossRef
91.
go back to reference Meeuwsen, E. J., Melis, R. J., Van Der Aa, G. C., Goluke-Willemse, G. A., De Leest, B. J., Van Raak, F. H., et al. (2012). Effectiveness of dementia follow-up care by memory clinics or general practitioners: Randomised controlled trial. BMJ, 344, e3086.PubMedPubMedCentralCrossRef Meeuwsen, E. J., Melis, R. J., Van Der Aa, G. C., Goluke-Willemse, G. A., De Leest, B. J., Van Raak, F. H., et al. (2012). Effectiveness of dementia follow-up care by memory clinics or general practitioners: Randomised controlled trial. BMJ, 344, e3086.PubMedPubMedCentralCrossRef
92.
go back to reference Losada, A., Márquez-González, M., & Romero-Moreno, R. (2011). Mechanisms of action of a psychological intervention for dementia caregivers: Effects of behavioral activation and modification of dysfunctional thoughts. International Journal of Geriatric Psychiatry, 26, 1119–1127.PubMed Losada, A., Márquez-González, M., & Romero-Moreno, R. (2011). Mechanisms of action of a psychological intervention for dementia caregivers: Effects of behavioral activation and modification of dysfunctional thoughts. International Journal of Geriatric Psychiatry, 26, 1119–1127.PubMed
93.
go back to reference Martikainen, P., Bartley, M., & Lahelma, E. (2002). Psychosocial determinants of health in social epidemiology. International Journal of Epidemiology, 31, 1091–1093.PubMedCrossRef Martikainen, P., Bartley, M., & Lahelma, E. (2002). Psychosocial determinants of health in social epidemiology. International Journal of Epidemiology, 31, 1091–1093.PubMedCrossRef
94.
go back to reference Salgueiro, H., & Lopes, M. (2010). A dinâmica da família que coabita e cuida de um idoso dependente. Revista Gaúcha de Enfermagem, 31, 26–32.PubMedCrossRef Salgueiro, H., & Lopes, M. (2010). A dinâmica da família que coabita e cuida de um idoso dependente. Revista Gaúcha de Enfermagem, 31, 26–32.PubMedCrossRef
95.
go back to reference Germain, S., Adam, S., Olivier, C., Cash, H., Ousset, P. J., Andrieu, S., et al. (2009). Does cognitive impairment influence burden in caregivers of patients with Alzheimer’s disease? Journal of Alzheimer’s Disease, 17, 105–114.PubMed Germain, S., Adam, S., Olivier, C., Cash, H., Ousset, P. J., Andrieu, S., et al. (2009). Does cognitive impairment influence burden in caregivers of patients with Alzheimer’s disease? Journal of Alzheimer’s Disease, 17, 105–114.PubMed
96.
go back to reference Akpinar, B., Küçükgüçlü, O., & Yener, G. (2011). Effects of gender on burden among caregivers of Alzheimer’s patients. Journal of Nursing Scholarship, 43, 248–254.PubMed Akpinar, B., Küçükgüçlü, O., & Yener, G. (2011). Effects of gender on burden among caregivers of Alzheimer’s patients. Journal of Nursing Scholarship, 43, 248–254.PubMed
97.
go back to reference Di Rosa, M., Melchiorre, M. G., Lucchetti, M., & Lamura, G. (2012). The impact of migrant work in the elder care sector: Recent trends and empirical evidence in Italy. European Journal of Social Work, 15, 9–27.CrossRef Di Rosa, M., Melchiorre, M. G., Lucchetti, M., & Lamura, G. (2012). The impact of migrant work in the elder care sector: Recent trends and empirical evidence in Italy. European Journal of Social Work, 15, 9–27.CrossRef
98.
go back to reference Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846–855.PubMedCrossRef Kim, H., Chang, M., Rose, K., & Kim, S. (2012). Predictors of caregiver burden in caregivers of individuals with dementia. Journal of Advanced Nursing, 68, 846–855.PubMedCrossRef
99.
go back to reference Li, H., Zhang, H. H., Huang, H., Wang, Y. Z., & Huang, H. L. (2012). Caring burden and associated factors of care providers for senile dementia patients in an urban–rural fringe of Fuzhou City, China. Aging Clinical and Experimental Research, 24, 707–713.PubMed Li, H., Zhang, H. H., Huang, H., Wang, Y. Z., & Huang, H. L. (2012). Caring burden and associated factors of care providers for senile dementia patients in an urban–rural fringe of Fuzhou City, China. Aging Clinical and Experimental Research, 24, 707–713.PubMed
100.
go back to reference Chiatti, C., Di Rosa, M., Melchiorre, M. G., Manzoli, L., Rimland, J. M., & Lamura, G. (2013). Migrant care workers as protective factor against caregiver burden: Results from a longitudinal analysis of the EUROFAMCARE study in Italy. Aging & Mental Health, 17, 609–614.CrossRef Chiatti, C., Di Rosa, M., Melchiorre, M. G., Manzoli, L., Rimland, J. M., & Lamura, G. (2013). Migrant care workers as protective factor against caregiver burden: Results from a longitudinal analysis of the EUROFAMCARE study in Italy. Aging & Mental Health, 17, 609–614.CrossRef
101.
go back to reference Shirai, Y., Silverberg Koerner, S., & Baete Kenyon, D. (2009). Reaping caregiver feelings of gain: The roles of socio-emotional support and mastery. Aging & Mental Health, 13, 106–117.CrossRef Shirai, Y., Silverberg Koerner, S., & Baete Kenyon, D. (2009). Reaping caregiver feelings of gain: The roles of socio-emotional support and mastery. Aging & Mental Health, 13, 106–117.CrossRef
102.
go back to reference Zambrano-Domínguez, E. M., & Guerra-Martín, M. D. (2012). Formación del cuidador informal: Relación con el tiempo de cuidado de personas dependientes mayores de 65 años. Aquichan, 12, 241–251.CrossRef Zambrano-Domínguez, E. M., & Guerra-Martín, M. D. (2012). Formación del cuidador informal: Relación con el tiempo de cuidado de personas dependientes mayores de 65 años. Aquichan, 12, 241–251.CrossRef
103.
go back to reference Crespo, L. & Mira, P. (2011). Cuidar a padres en situación de dependencia y trabajar. Autonomía Personal, 3, 26–39. Crespo, L. & Mira, P. (2011). Cuidar a padres en situación de dependencia y trabajar. Autonomía Personal, 3, 26–39.
104.
go back to reference Rocha, B. M. P., & Pacheco, J. E. P. (2013). Elderly persons in a situation of dependence: Informal caregiver stress and coping. Acta Paulista de Enfermagem, 26, 50–56.CrossRef Rocha, B. M. P., & Pacheco, J. E. P. (2013). Elderly persons in a situation of dependence: Informal caregiver stress and coping. Acta Paulista de Enfermagem, 26, 50–56.CrossRef
105.
go back to reference United Nations. (2012). Population ageing and development 2012. New York, NY: Population Division, Department of Economic and Social Affairs, United Nations. United Nations. (2012). Population ageing and development 2012. New York, NY: Population Division, Department of Economic and Social Affairs, United Nations.
106.
go back to reference Saraceno, C. (2010). Social inequalities in facing old-age dependency: A bi-generational perspective. Journal of European Social Policy, 20, 32–44.CrossRef Saraceno, C. (2010). Social inequalities in facing old-age dependency: A bi-generational perspective. Journal of European Social Policy, 20, 32–44.CrossRef
107.
go back to reference Crespo, L., & Mira, P. (2010). Caregiving to elderly parents and employment status of European mature women. CEMFI working paper no. 1007. 2010. Crespo, L., & Mira, P. (2010). Caregiving to elderly parents and employment status of European mature women. CEMFI working paper no. 1007. 2010.
108.
go back to reference Whalen, K. J., & Buchholz, S. W. (2009). The reliability, validity and feasibility of tools used to screen for caregiver burden: A systematic review. JBI Library of Systematic Reviews, 7, 1372–1429. Whalen, K. J., & Buchholz, S. W. (2009). The reliability, validity and feasibility of tools used to screen for caregiver burden: A systematic review. JBI Library of Systematic Reviews, 7, 1372–1429.
109.
go back to reference Streiner, D. L. (2003). Starting at the beginning: An introduction to coefficient alpha and internal consistency. Journal of Personality Assessment, 80, 99–103.PubMedCrossRef Streiner, D. L. (2003). Starting at the beginning: An introduction to coefficient alpha and internal consistency. Journal of Personality Assessment, 80, 99–103.PubMedCrossRef
110.
go back to reference Family Caregiver Alliance & Benjamin Rose Institute on Aging. (2012). Selected caregiver assessment measures: A resource inventory for practitioners (2nd ed.). CA: Family Caregiver Alliance. Family Caregiver Alliance & Benjamin Rose Institute on Aging. (2012). Selected caregiver assessment measures: A resource inventory for practitioners (2nd ed.). CA: Family Caregiver Alliance.
111.
go back to reference Bastawrous, M. (2013). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50, 431–441.PubMedCrossRef Bastawrous, M. (2013). Caregiver burden—A critical discussion. International Journal of Nursing Studies, 50, 431–441.PubMedCrossRef
112.
go back to reference Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655.PubMedCrossRef Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20, 649–655.PubMedCrossRef
113.
go back to reference Prince, M., Brodaty, H., Uwakwe, R., Acosta, D., Ferri, C. P., Guerra, M., et al. (2012). Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey. International Journal of Geriatric Psychiatry, 27, 670–682.PubMedPubMedCentralCrossRef Prince, M., Brodaty, H., Uwakwe, R., Acosta, D., Ferri, C. P., Guerra, M., et al. (2012). Strain and its correlates among carers of people with dementia in low-income and middle-income countries. A 10/66 Dementia Research Group population-based survey. International Journal of Geriatric Psychiatry, 27, 670–682.PubMedPubMedCentralCrossRef
114.
go back to reference Kim, M. D., Hong, S. C., Lee, C. I., Kim, S. Y., Kang, I. O., & Lee, S. Y. (2009). Caregiver burden among caregivers of Koreans with dementia. Gerontology, 55, 106–113.PubMedCrossRef Kim, M. D., Hong, S. C., Lee, C. I., Kim, S. Y., Kang, I. O., & Lee, S. Y. (2009). Caregiver burden among caregivers of Koreans with dementia. Gerontology, 55, 106–113.PubMedCrossRef
115.
go back to reference Taemeeyapradit, U., Udomittipong, D., & Assanangkornchai, S. (2014). Development of a burden scale for caregivers of dementia patients. Asian Journal of Psychiatry, 8, 22–25.PubMedCrossRef Taemeeyapradit, U., Udomittipong, D., & Assanangkornchai, S. (2014). Development of a burden scale for caregivers of dementia patients. Asian Journal of Psychiatry, 8, 22–25.PubMedCrossRef
116.
go back to reference Álvarez, L., González, A. M., & Muñoz, P. (2008). El cuestionario de sobrecarga del cuidador de Zarit. Cómo administrarlo e interpretarlo. Gaceta Sanitaria, 22, 618–619.PubMedCrossRef Álvarez, L., González, A. M., & Muñoz, P. (2008). El cuestionario de sobrecarga del cuidador de Zarit. Cómo administrarlo e interpretarlo. Gaceta Sanitaria, 22, 618–619.PubMedCrossRef
118.
go back to reference Hoefman, R. J., van, E. J., & Brouwer, W. B. (2013). Measuring the impact of caregiving on informal carers: A construct validation study of the CarerQol instrument. Health and Quality of Life Outcomes, 11, 173.PubMedPubMedCentralCrossRef Hoefman, R. J., van, E. J., & Brouwer, W. B. (2013). Measuring the impact of caregiving on informal carers: A construct validation study of the CarerQol instrument. Health and Quality of Life Outcomes, 11, 173.PubMedPubMedCentralCrossRef
119.
go back to reference Comans, T., et al. (2011). Factors associated with quality of life and caregiver strain amongst frail older adults referred to a community rehabilitation service: Implications for service delivery. Disability and Rehabilitation, 33, 1215–1221.PubMedCrossRef Comans, T., et al. (2011). Factors associated with quality of life and caregiver strain amongst frail older adults referred to a community rehabilitation service: Implications for service delivery. Disability and Rehabilitation, 33, 1215–1221.PubMedCrossRef
120.
go back to reference Joling, K. J., van Hout, H. P., Schellevis, F. G., van der Horst, H. E., Scheltens, P., Knol, D. L., & van Marwijk, H. W. (2010). Incidence of depression and anxiety in the spouses of patients with dementia: A naturalistic cohort study of recorded morbidity with a 6-year follow-up. American Journal of Geriatric Psychiatry, 18, 146–153.PubMedCrossRef Joling, K. J., van Hout, H. P., Schellevis, F. G., van der Horst, H. E., Scheltens, P., Knol, D. L., & van Marwijk, H. W. (2010). Incidence of depression and anxiety in the spouses of patients with dementia: A naturalistic cohort study of recorded morbidity with a 6-year follow-up. American Journal of Geriatric Psychiatry, 18, 146–153.PubMedCrossRef
121.
go back to reference Reese, J. P., Hessmann, P., Seeberg, G., Henkel, D., Hirzmann, P., Rieke, J., et al. (2011). Cost and care of patients with Alzheimer’s disease: Clinical predictors in German health care settings. Journal of Alzheimer’s Disease, 27, 723–736.PubMed Reese, J. P., Hessmann, P., Seeberg, G., Henkel, D., Hirzmann, P., Rieke, J., et al. (2011). Cost and care of patients with Alzheimer’s disease: Clinical predictors in German health care settings. Journal of Alzheimer’s Disease, 27, 723–736.PubMed
122.
go back to reference Sørbye, L. W., Finne-Soveri, H., Ljunggren, G., Topinkova, E., Garms-Homolova, V., Jensdóttir, A. B., & Bernabei, R. (2009). Urinary incontinence and use of pads—Clinical features and need for help in home care at 11 sites in Europe. Scandinavian Journal of Caring Sciences, 23, 33–44.PubMedCrossRef Sørbye, L. W., Finne-Soveri, H., Ljunggren, G., Topinkova, E., Garms-Homolova, V., Jensdóttir, A. B., & Bernabei, R. (2009). Urinary incontinence and use of pads—Clinical features and need for help in home care at 11 sites in Europe. Scandinavian Journal of Caring Sciences, 23, 33–44.PubMedCrossRef
123.
go back to reference Davis, K. L., Marin, D. B., Kane, R., Patrick, D., Peskind, E. R., Raskind, M. A., & Puder, K. L. (1997). The Caregiver Activity Survey (CAS): Development and validation of a new measure for caregivers of persons with Alzheimer’s disease. International Journal of Geriatric Psychiatry, 12, 978–988.PubMedCrossRef Davis, K. L., Marin, D. B., Kane, R., Patrick, D., Peskind, E. R., Raskind, M. A., & Puder, K. L. (1997). The Caregiver Activity Survey (CAS): Development and validation of a new measure for caregivers of persons with Alzheimer’s disease. International Journal of Geriatric Psychiatry, 12, 978–988.PubMedCrossRef
124.
go back to reference Given, C. W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15, 271–283.CrossRef Given, C. W., Given, B., Stommel, M., Collins, C., King, S., & Franklin, S. (1992). The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing & Health, 15, 271–283.CrossRef
125.
go back to reference Hooyman, N., Gonyea, J., & Montgomery, R. (1985). The impact of in-home services termination on family caregivers. The Gerontologist, 25, 141–145.PubMedCrossRef Hooyman, N., Gonyea, J., & Montgomery, R. (1985). The impact of in-home services termination on family caregivers. The Gerontologist, 25, 141–145.PubMedCrossRef
126.
go back to reference Balducci, C., Mnich, E., McKee, K. J., Lamura, G., Beckmann, A., Krevers, B., et al. (2008). Negative impact and positive value in caregiving: Validation of the COPE index in a six-country sample of carers. The Gerontologist, 48, 276–286.PubMedCrossRef Balducci, C., Mnich, E., McKee, K. J., Lamura, G., Beckmann, A., Krevers, B., et al. (2008). Negative impact and positive value in caregiving: Validation of the COPE index in a six-country sample of carers. The Gerontologist, 48, 276–286.PubMedCrossRef
127.
go back to reference Vernooij-Dassen, M. J., Persoon, J. M., & Felling, A. J. (1996). Predictors of sense of competence in caregivers of demented persons. Social Science and Medicine, 43, 41–49.PubMedCrossRef Vernooij-Dassen, M. J., Persoon, J. M., & Felling, A. J. (1996). Predictors of sense of competence in caregivers of demented persons. Social Science and Medicine, 43, 41–49.PubMedCrossRef
128.
go back to reference Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594.PubMedCrossRef Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594.PubMedCrossRef
129.
go back to reference Kaufer, D. I., Cummings, J. L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., et al. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and Clinical Neurosciences, 12, 233–239.PubMedCrossRef Kaufer, D. I., Cummings, J. L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., et al. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and Clinical Neurosciences, 12, 233–239.PubMedCrossRef
130.
go back to reference Martín, M., Salvadó, I., Nadal, S., Miji, L. C., Rico, J. M., Lanz, P., & Taussig, M. I. (1996). Adaptación para nuestro medio de la Escala de Sobrecarga del Cuidador (Caregiver Burden Interview) de Zarit. Revista Multidisciplinar de Gerontología, 6, 338–346. Martín, M., Salvadó, I., Nadal, S., Miji, L. C., Rico, J. M., Lanz, P., & Taussig, M. I. (1996). Adaptación para nuestro medio de la Escala de Sobrecarga del Cuidador (Caregiver Burden Interview) de Zarit. Revista Multidisciplinar de Gerontología, 6, 338–346.
131.
go back to reference Taub, A., Andreoli, S. B., & Bertolucci, P. H. (2004). Dementia caregiver burden: Reliability of the Brazilian version of the Zarit caregiver burden interview. Cadernos de Saúde Pública, 20, 372–376.PubMedCrossRef Taub, A., Andreoli, S. B., & Bertolucci, P. H. (2004). Dementia caregiver burden: Reliability of the Brazilian version of the Zarit caregiver burden interview. Cadernos de Saúde Pública, 20, 372–376.PubMedCrossRef
132.
go back to reference Scazufca, M. (2002). Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses. Revista Brasileira de Psiquiatria, 24, 12–17. Scazufca, M. (2002). Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses. Revista Brasileira de Psiquiatria, 24, 12–17.
133.
go back to reference Gort, A. M., March, J., Gómez, X., de Miguel, M., Mazarico, S., & Ballesté, J. (2005). Escala de Zarit reducida en cuidados paliativos. Medicina Clínica, 124, 651–653.PubMedCrossRef Gort, A. M., March, J., Gómez, X., de Miguel, M., Mazarico, S., & Ballesté, J. (2005). Escala de Zarit reducida en cuidados paliativos. Medicina Clínica, 124, 651–653.PubMedCrossRef
134.
go back to reference Gitlin, L. N., Winter, L., Dennis, M. P., & Hauck, W. W. (2006). Assessing perceived change in the well-being of family caregivers: Psychometric properties of the Perceived Change Index and response patterns. American Journal of Alzheimer’s Disease & Other Dementias, 21, 304–311.CrossRef Gitlin, L. N., Winter, L., Dennis, M. P., & Hauck, W. W. (2006). Assessing perceived change in the well-being of family caregivers: Psychometric properties of the Perceived Change Index and response patterns. American Journal of Alzheimer’s Disease & Other Dementias, 21, 304–311.CrossRef
135.
go back to reference Pukrop, R., Schlaak, V., Moller-Leimkuhler, A. M., Albus, M., Czernik, A., Klosterkotter, J., & Moller, H. J. (2003). Reliability and validity of Quality of Life assessed by the Short-Form 36 and the Modular System for Quality of Life in patients with schizophrenia and patients with depression. Psychiatry Research, 119, 63–79.PubMedCrossRef Pukrop, R., Schlaak, V., Moller-Leimkuhler, A. M., Albus, M., Czernik, A., Klosterkotter, J., & Moller, H. J. (2003). Reliability and validity of Quality of Life assessed by the Short-Form 36 and the Modular System for Quality of Life in patients with schizophrenia and patients with depression. Psychiatry Research, 119, 63–79.PubMedCrossRef
136.
go back to reference Ware, J, Jr, Kosinski, M., & Keller, S. D. (1996). A 12-Item Short-Form Health Survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34, 220–233.PubMedCrossRef Ware, J, Jr, Kosinski, M., & Keller, S. D. (1996). A 12-Item Short-Form Health Survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34, 220–233.PubMedCrossRef
137.
go back to reference Alonso, J., Anto, J. M., & Moreno, C. (1990). Spanish version of the Nottingham Health Profile: Translation and preliminary validity. American Journal of Public Health, 80, 704–708.PubMedPubMedCentralCrossRef Alonso, J., Anto, J. M., & Moreno, C. (1990). Spanish version of the Nottingham Health Profile: Translation and preliminary validity. American Journal of Public Health, 80, 704–708.PubMedPubMedCentralCrossRef
138.
go back to reference Fleck, M. P. A., Louzada, S., Xavier, M., Chachamovich, E., Vieira, G., Santos, L., & Pinzon, V. (2000). Aplicaçao da versão em português do instrumento abreviado de avaliação da qualidades de vida “WHOQOL-bref”. Revista de Saúde Pública, 34, 178–183.PubMedCrossRef Fleck, M. P. A., Louzada, S., Xavier, M., Chachamovich, E., Vieira, G., Santos, L., & Pinzon, V. (2000). Aplicaçao da versão em português do instrumento abreviado de avaliação da qualidades de vida “WHOQOL-bref”. Revista de Saúde Pública, 34, 178–183.PubMedCrossRef
139.
go back to reference Skevington, S. M., Lotfy, M., O’Connell, K. A., & WHOQOL Group. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13, 299–310.PubMedCrossRef Skevington, S. M., Lotfy, M., O’Connell, K. A., & WHOQOL Group. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13, 299–310.PubMedCrossRef
140.
go back to reference Steffen, A. M., McKibbin, C., Zeiss, A. M., Gallagher-Thompson, D., & Bandura, A. (2002). The revised scale for caregiving self-efficacy: Reliability and validity studies. Journals of Gerontology: Psychological Sciences, 57B, 74–86.CrossRef Steffen, A. M., McKibbin, C., Zeiss, A. M., Gallagher-Thompson, D., & Bandura, A. (2002). The revised scale for caregiving self-efficacy: Reliability and validity studies. Journals of Gerontology: Psychological Sciences, 57B, 74–86.CrossRef
141.
go back to reference Fortinsky, R. H., Kercher, K., & Burant, C. J. (2002). Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging & Mental Health, 6, 153–160.CrossRef Fortinsky, R. H., Kercher, K., & Burant, C. J. (2002). Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging & Mental Health, 6, 153–160.CrossRef
142.
go back to reference Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Rubert, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26, 429–453.CrossRef Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Rubert, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: Contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26, 429–453.CrossRef
143.
go back to reference Sörensen, S., & Pinquart, M. (2001). Developing a measure of older adults’ preparation for future care needs. International Journal of Aging and Human Development, 53, 137–165.PubMedCrossRef Sörensen, S., & Pinquart, M. (2001). Developing a measure of older adults’ preparation for future care needs. International Journal of Aging and Human Development, 53, 137–165.PubMedCrossRef
144.
go back to reference Kuhn, D., & Fulton, B. R. (2004). Efficacy of an educational program for relatives of persons in the early stages of Alzheimer’s disease. Journal of Gerontological Social Work, 42, 109–130.CrossRef Kuhn, D., & Fulton, B. R. (2004). Efficacy of an educational program for relatives of persons in the early stages of Alzheimer’s disease. Journal of Gerontological Social Work, 42, 109–130.CrossRef
145.
go back to reference Gitlin, L. N., Schinfeld, S., Winter, L., Corcoran, M., Boyce, A. A., & Hauck, W. (2002). Evaluating home environments of persons with dementia: Interrater reliability and validity of the Home Environmental Assessment Protocol (HEAP). Disability and Rehabilitation, 24, 59–71.PubMedCrossRef Gitlin, L. N., Schinfeld, S., Winter, L., Corcoran, M., Boyce, A. A., & Hauck, W. (2002). Evaluating home environments of persons with dementia: Interrater reliability and validity of the Home Environmental Assessment Protocol (HEAP). Disability and Rehabilitation, 24, 59–71.PubMedCrossRef
146.
go back to reference Togari, T., Yamazaki, Y., Nakayama, K., & Shimizu, J. (2007). Development of a short version of the sense of coherence scale for population survey. Journal of Epidemiology and Community Health, 61, 921–922.PubMedPubMedCentralCrossRef Togari, T., Yamazaki, Y., Nakayama, K., & Shimizu, J. (2007). Development of a short version of the sense of coherence scale for population survey. Journal of Epidemiology and Community Health, 61, 921–922.PubMedPubMedCentralCrossRef
147.
go back to reference Losada-Baltar, A., Montorio Cerrato, I., Izal Fernández de Trocóniz, M., & Márquez González, M. (2006) Estudio e intervención sobre el malestar psicológico de los cuidadores de personas con demencia. El papel de los pensamientos disfuncionales (1ª ed.). Madrid: Instituto de Mayores y Servicios Sociales (IMSERSO). Losada-Baltar, A., Montorio Cerrato, I., Izal Fernández de Trocóniz, M., & Márquez González, M. (2006) Estudio e intervención sobre el malestar psicológico de los cuidadores de personas con demencia. El papel de los pensamientos disfuncionales (1ª ed.). Madrid: Instituto de Mayores y Servicios Sociales (IMSERSO).
148.
go back to reference Sánchez-López, Md P, & Dresch, V. (2008). The 12-item General Health Questionnaire (GHQ-12): Reliability, external validity and factor structure in the Spanish population. Psicothema, 20, 839–843. Sánchez-López, Md P, & Dresch, V. (2008). The 12-item General Health Questionnaire (GHQ-12): Reliability, external validity and factor structure in the Spanish population. Psicothema, 20, 839–843.
149.
go back to reference Montón, C., Pérez Echeverría, M. J., Campos, R., García Campayo, J., Lobo, A., & GMPPZ. (1993). Escalas de ansiedad y depresión de Goldberg: Una guía de entrevista eficaz para la detección del malestar psíquico. Atención Primaria, 12, 345–349.PubMed Montón, C., Pérez Echeverría, M. J., Campos, R., García Campayo, J., Lobo, A., & GMPPZ. (1993). Escalas de ansiedad y depresión de Goldberg: Una guía de entrevista eficaz para la detección del malestar psíquico. Atención Primaria, 12, 345–349.PubMed
150.
go back to reference Harpham, T., Reichenheim, M., Oser, R., Thomas, E., Hamid, N., Jaswal, S., et al. (2003). Measuring mental health in a cost-effective manner. Health Policy & Planning, 18, 344–349.CrossRef Harpham, T., Reichenheim, M., Oser, R., Thomas, E., Hamid, N., Jaswal, S., et al. (2003). Measuring mental health in a cost-effective manner. Health Policy & Planning, 18, 344–349.CrossRef
151.
go back to reference Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. O. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17, 37–49.CrossRef Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. O. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17, 37–49.CrossRef
152.
go back to reference Almeida, O. P., & Almeida, S. A. (1999). Short versions of the geriatric depression scale: A study of their validity for the diagnosis of a major depressive episode according to ICD-10 and DSM-IV. International Journal of Geriatric Psychiatry, 14, 858–865.PubMedCrossRef Almeida, O. P., & Almeida, S. A. (1999). Short versions of the geriatric depression scale: A study of their validity for the diagnosis of a major depressive episode according to ICD-10 and DSM-IV. International Journal of Geriatric Psychiatry, 14, 858–865.PubMedCrossRef
153.
go back to reference Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001). The PHQ-9. Validity of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.PubMedPubMedCentralCrossRef Kroenke, K., Spitzer, R. L., & Williams, J. B. W. (2001). The PHQ-9. Validity of a brief depression severity measure. Journal of General Internal Medicine, 16, 606–613.PubMedPubMedCentralCrossRef
154.
go back to reference Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24, 385–396.PubMedCrossRef Cohen, S., Kamarck, T., & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24, 385–396.PubMedCrossRef
155.
go back to reference Clark, P. C., Shields, C. G., Aycock, D., & Wolf, S. L. (2003). Preliminary reliability and validity of a family caregiver conflict scale for stroke. Progress in Cardiovascular Nursing, 18(77–82), 92. Clark, P. C., Shields, C. G., Aycock, D., & Wolf, S. L. (2003). Preliminary reliability and validity of a family caregiver conflict scale for stroke. Progress in Cardiovascular Nursing, 18(77–82), 92.
156.
go back to reference Lubben, J., Blozik, E., Gillmann, G., Iliffe, S., von Renteln, K. W., Beck, J. C., & Stuck, A. E. (2006). Performance of an abbreviated version of the Lubben Social Network Scale among three European community-dwelling older adult populations. The Gerontologist, 46, 503–513.PubMedCrossRef Lubben, J., Blozik, E., Gillmann, G., Iliffe, S., von Renteln, K. W., Beck, J. C., & Stuck, A. E. (2006). Performance of an abbreviated version of the Lubben Social Network Scale among three European community-dwelling older adult populations. The Gerontologist, 46, 503–513.PubMedCrossRef
157.
go back to reference Bellón Saameño, J. A., Delgado Sánchez, A., de Dios Luna del Castillo, J., & Lardelli Claret, P. (1996). Validez y fiabilidad del cuestionario de apoyo social funcional Duke-UNC-11. Atención Primaria, 18, 153–163.PubMed Bellón Saameño, J. A., Delgado Sánchez, A., de Dios Luna del Castillo, J., & Lardelli Claret, P. (1996). Validez y fiabilidad del cuestionario de apoyo social funcional Duke-UNC-11. Atención Primaria, 18, 153–163.PubMed
158.
go back to reference de la Revilla Ahumada, L., Bailón, E., de Dios Luna, J., Delgado, A., Prados, M. A., & Fleitas, L. (1991). Validación de una escala de apoyo social funcional para su uso en la consulta del médico de familia. Atención Primaria, 8, 688–692.PubMed de la Revilla Ahumada, L., Bailón, E., de Dios Luna, J., Delgado, A., Prados, M. A., & Fleitas, L. (1991). Validación de una escala de apoyo social funcional para su uso en la consulta del médico de familia. Atención Primaria, 8, 688–692.PubMed
159.
go back to reference Buysse, D. J., Reynolds, C. F, I. I. I., Monk, T. H., Berman, S. R., & Kupfer, D. J. (1988). The Pittsburgh Sleep Quality Index: A new instrument for psychiatric practice and research. Psychiatry Research, 28, 193–213.CrossRef Buysse, D. J., Reynolds, C. F, I. I. I., Monk, T. H., Berman, S. R., & Kupfer, D. J. (1988). The Pittsburgh Sleep Quality Index: A new instrument for psychiatric practice and research. Psychiatry Research, 28, 193–213.CrossRef
Metagegevens
Titel
Measuring the impact of informal elderly caregiving: a systematic review of tools
Auteurs
Isabel Mosquera
Itziar Vergara
Isabel Larrañaga
Mónica Machón
María del Río
Carlos Calderón
Publicatiedatum
01-05-2016
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 5/2016
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1159-4

Andere artikelen Uitgave 5/2016

Quality of Life Research 5/2016 Naar de uitgave