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Quality of Life Research
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01-08-2013 | Review

Measuring the health-related quality of life (HRQoL) of young children in resource-limited settings: a review of existing measures

Auteurs: Jason Paltzer, Emily Barker, Whitney P. Witt

Gepubliceerd in: Quality of Life Research | Uitgave 6/2013

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Abstract

Purpose

This review sought to identify and summarize the instruments adapted or developed for measuring HRQoL among young children (<8 years) living in resource-limited settings.

Methods

A review of the literature was conducted in two phases. Phase one searched the PubMed, PsycInfo, Web of Knowledge (Web of Science), African Index Medicus, and SocINDEX databases and identified widely used child HRQoL instruments. Phase two reviewed the articles using the selected HRQoL instruments and extracted information on their use in resource-limited settings including adaption processes.

Results

Seven instruments were identified that measured the HRQoL of young children. Six had been used in resource-limited settings. Of the 452 articles using these instruments, a total of 23 (5 %) studies used one of the identified HRQoL instruments in a resource-limited setting. Among these studies, 39 % employed an adaptation process for the use of that instrument. No instruments had been developed specifically for measuring the HRQoL of young children in resource-limited settings.

Conclusions

If pediatric HRQoL instruments are to be used in resource-limited settings, it is critical that they be developed and adequately adapted to those settings. Only then will interventions lead to larger increases in the overall HRQoL and well-being of children.
vorige artikel Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards
volgende artikel Biological pathways and genetic mechanisms involved in social functioning
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Metagegevens
Titel
Measuring the health-related quality of life (HRQoL) of young children in resource-limited settings: a review of existing measures
Auteurs
Jason Paltzer
Emily Barker
Whitney P. Witt
Publicatiedatum
01-08-2013
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 6/2013
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-012-0260-1

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