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Quality of Life Research

Gepubliceerd in:

01-08-2009

Measurement accuracy in assessing patient’s quality of life: to weight or not to weight domains of quality of life

Auteurs: Errol J. Philip, Thomas V. Merluzzi, Amy Peterman, Lisa B. Cronk

Gepubliceerd in: Quality of Life Research | Uitgave 6/2009

Abstract

Purpose

Health-related quality of life (HRQOL) measures typically do not incorporate patients’ preferences for domains such as physical, emotional, functional and social/family well-being, which may compromise precision.

Method

A forced-choice domain-preference measure was developed to assess the importance of HRQOL domains. About 194 cancer patients completed the domain-preference measure, along with measures of HRQOL, coping, adjustment, and life satisfaction.

Results

Patients ranked emotional well-being as most important and the loss of social-family well-being as the most difficult to do without. A weighting algorithm revealed no advantage to incorporating individuals’ domain preferences in HRQOL assessment; however, preliminary evidence suggested that HRQOL measurement may be more accurate in predicting outcomes for individuals with no distinct domain preferences than those with distinct preference profiles.

Conclusion

This study provides preliminary evidence for the validity of current measures of HRQOL, which may inherently take into account patients’ domain preferences.

vorige artikel Content comparisons of stroke-specific quality of life based upon the international classification of functioning, disability, and health

volgende artikel Predicting EuroQol (EQ-5D) scores from the patient-reported outcomes measurement information system (PROMIS) global items and domain item banks in a United States sample

Jemal, A., Siegel, R., Ward, E., Murray, T., Xu, J., & Thun, M. (2007). Cancer statistics, 2007. CA: A Cancer Journal for Clinicians, 57, 43–66. doi:10.3322/canjclin.57.1.43.CrossRef

American Cancer Society. (2009). Cancer facts and Figs 2009. Atlanta: American Cancer Society.

Cella, D., & Tulksy, D. (1993). Quality of life in cancer: Definition, purpose, and method of measurement. Cancer Investigation, 11, 327–336. doi:10.3109/07357909309024860.PubMedCrossRef

Soni, M., & Cella, D. (2002). Quality of life and symptom measures in oncology: An overview. The American Journal of Managed Care, 8, S560–S573.PubMed

Smith, A., Velikova, G., Wright, E., Lynch, P., & Selby, P. (2006). Computer-assisted questionnaires may facilitate quality-of-life (QOL) data: At a cost. Computers in Human Behavior, 22, 991–1000. doi:10.1016/j.chb.2004.03.019.CrossRef

Guyatt, G., Feeny, D., & Patrick, D. (1993). Measuring health-related quality of life. Annals of Internal Medicine, 118, 622–629.PubMed

Nanda, U., & Andresen, E. (1998). Health-related quality of life. A guide for the health professional. Evaluation & the Health Professions, 21, 179–215. doi:10.1177/016327879802100204.CrossRef

Velikova, G., Booth, L., Smith, A., Brown, P., Lynch, P., Brown, J., et al. (2004). Measuring quality of life in oncology practice improves communication and patient well-being: A randomized controlled trial. Journal of Clinical Oncology, 22, 714–724. doi:10.1200/JCO.2004.06.078.PubMedCrossRef

Oldridge, N. (1996). Outcomes measurement: Health-related quality of life. Assistive Technology, 8, 82–93.PubMed

10.

Gelber, R., Goldhirsch, A., & Cavalli, F. (1991). Quality-of-life-adjusted evaluation of adjuvant therapies for operable breast cancer. Annals of Internal Medicine, 114, 621–628.PubMed

11.

Tamburini, M. (2001). Health-related quality of life measures in cancer. Annals of Oncology, 12, S7–S10. doi:10.1023/A:1013078511828.PubMedCrossRef

12.

Varricchio, C. (2006). Measurement issues in quality of life assessments. Oncology Nursing Forum, 33, S13–S21. doi:10.1188/06.ONF.S1.13-21.CrossRef

13.

Cella, D., et al. (1993). The functional assessment of cancer therapy scale: Development and validation of the general measure. Journal of Clinical Oncology, 11, 570–579.PubMed

14.

Cheung, Y., Khoo, K., Wong, Z., See, H., Toh, H., Epstein, R., et al. (2003). Quick-FLIC: A short questionnaire for assessing quality of life in cancer patients. Acta Oncologica, 42, 36–42. doi:10.1080/0891060310002212.PubMedCrossRef

15.

Degi, C. (2006). An analysis of the effectiveness of psycho-oncological interventions in view of quality of life and survival outcomes of cancer patients. Psychiatria Hungarica, 21, 138–146.PubMed

16.

Browne, J., O’Boyle, C., McGee, H., McDonald, N., & Joyce, C. (1997). Development of a direct weighting procedure for quality of life domains. Quality of Life Research, 6, 301–309. doi:10.1023/A:1018423124390.PubMedCrossRef

17.

Muldoon, M., Barger, S., Flory, J., & Manuck, S. (1998). What are quality of life measurements measuring? British Medical Journal, 316, 542–545.PubMed

18.

Ruta, D., Garratt, A., Leng, M., Russell, I., & MacDonald, L. (1994). A new approach to the measurement of quality of life: The patient generated index (PGI). Medical Care, 32, 1109–1126. doi:10.1097/00005650-199411000-00004.PubMedCrossRef

19.

O’Boyle, C., Browne, J., Hickey, A., McGee, H., & Joyce, C. (1995). Schedule for the evaluation of individual quality of life (SEIQoL): A direct weighting procedure for quality of life domains (SEIQoLDW). Dublin, UK: Administration Manual; Department of Psychology, Royal College of Surgeons.

20.

Gorbatenko-Roth, K., Levin, I., Altmaier, E., & Doebbeling, B. (2001). Accuracy of health-related quality of life assessment: What is the benefit of incorporating patients’ preferences for domain functioning? Health Psychology, 20, 136–140. doi:10.1037/0278-6133.20.2.136.PubMedCrossRef

21.

Osoba, D., Hsu, M., Copley-Merriman, C., Coombs, J., Johnson, F., Hauber, B., et al. (2006). Stated preferences of patients with cancer for health-related quality-of-life (HRQL) domains during treatment. Quality of Life Research, 15, 273–283. doi:10.1007/s11136-005-0580-5.PubMedCrossRef

22.

Merluzzi, T. V., Nairn, R. C., Hegde, K., Martinez Sanchez, M. A., & Dunn, L. (2001). Self-efficacy for coping with cancer: Revision of the cancer behavior inventory (version 2.0). Psycho-Oncology, 10, 206–217. doi:10.1002/pon.511.PubMedCrossRef

23.

Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71–75. doi:10.1207/s15327752jpa4901_13.PubMedCrossRef

24.

Derogatis, L. R., & Derogatis, M. F. (1990). The psychological adjustment to illness scale: Administration scoring, and procedures manual. Towson, MD: Clinical Psychometric Research.

25.

Cole, D. A., Howard, G. S., & Maxwell, S. E. (1981). Effects of mono- versus multiple operationalization in construct validity efforts. Journal of Consulting and Clinical Psychology, 49, 395–405. doi:10.1037/0022-006X.49.3.395.CrossRef

26.

Dobrez, D., Cella, D., Pickard, S., Lai, J., & Nickolov, A. (2007). Estimation of patient preference-based utility weights from the Functional Assessment of Cancer Therapy–General. Value in Health, 10(4), 266–272. doi:10.1111/j.1524-4733.2007.00181.x.PubMedCrossRef

Titel: Measurement accuracy in assessing patient’s quality of life: to weight or not to weight domains of quality of life
Auteurs: Errol J. Philip
Thomas V. Merluzzi
Amy Peterman
Lisa B. Cronk
Publicatiedatum: 01-08-2009
Uitgeverij: Springer Netherlands
Gepubliceerd in: Quality of Life Research / Uitgave 6/2009
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-009-9492-0

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Abstract

Purpose

Method

Results

Conclusion

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