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Gepubliceerd in: Journal of Autism and Developmental Disorders 7/2013

01-07-2013 | Original Paper

Logging On: Evaluating an Online Support Group for Parents of Children with Autism Spectrum Disorders

Auteurs: Tessen Clifford, Patricia Minnes

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 7/2013

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Abstract

Twenty mothers participated in an online support group for parents of children with autism spectrum disorders. Twenty-five unrelated parents participated in a no-treatment control group. The participants completed online questionnaires prior to and following the 4-month support group, to evaluate changes in mood, anxiety, parenting stress, and positive perceptions. No significant differences between the groups or across time were found. However, parents who participated in the group reported being satisfied with the support they received and finding the group helpful. Issues related to participant recruitment and retention are discussed. Further research is required to investigate the efficacy of online support groups for parents of children with ASD.
Voetnoten
1
Listservs allow participants to share information by sending messages to the email addresses of subscribers.
 
2
These categories were not mutually exclusive; some parents indicated that their child had both Autism and Autism Spectrum Disorder.
 
Literatuur
go back to reference Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230.PubMedCrossRef Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230.PubMedCrossRef
go back to reference Barnes, L. L. B., Harp, D., & Jung, W. S. (2002). Reliability generalization of scores on the Spielberger State-Trait Anxiety Inventory. Educational and Psychological Measurement, 62, 603–618.CrossRef Barnes, L. L. B., Harp, D., & Jung, W. S. (2002). Reliability generalization of scores on the Spielberger State-Trait Anxiety Inventory. Educational and Psychological Measurement, 62, 603–618.CrossRef
go back to reference Baron, R. M., & Kenny, D. A. (1986). The moderator–mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173–1182.PubMedCrossRef Baron, R. M., & Kenny, D. A. (1986). The moderator–mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173–1182.PubMedCrossRef
go back to reference Behr, S. K., Murphy, D. L., & Summers, J. A. (1992). User’s manual: Kansas inventory of parental perceptions (KIPP). Lawrence: Beach Center on Families and Disability. Behr, S. K., Murphy, D. L., & Summers, J. A. (1992). User’s manual: Kansas inventory of parental perceptions (KIPP). Lawrence: Beach Center on Families and Disability.
go back to reference Bitsika, V., & Sharpley, C. (1999). An exploratory examination of the effects of support groups on the well-being of parents of children with autism-I: General counselling. Journal of Applied Health Behaviour, 1, 16–22. Bitsika, V., & Sharpley, C. (1999). An exploratory examination of the effects of support groups on the well-being of parents of children with autism-I: General counselling. Journal of Applied Health Behaviour, 1, 16–22.
go back to reference Bitsika, V., & Sharpley, C. (2000). Development and testing of the effects of support groups on the well-being of parents of children with autism-II: Specific stress management techniques. Journal of Applied Health Behaviour, 2, 8–14. Bitsika, V., & Sharpley, C. (2000). Development and testing of the effects of support groups on the well-being of parents of children with autism-II: Specific stress management techniques. Journal of Applied Health Behaviour, 2, 8–14.
go back to reference Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorders. Australian Journal of Guidance & Counselling, 14, 151–161. Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorders. Australian Journal of Guidance & Counselling, 14, 151–161.
go back to reference Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198.PubMedCrossRef Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50, 184–198.PubMedCrossRef
go back to reference Bruininks, R. H., Woodcock, R. W., Weatherman, R. E., & Hill, B. K. (1996). Scales of independent behavior: Revised (SIB-R). Itasca: Riverside Publishing. Bruininks, R. H., Woodcock, R. W., Weatherman, R. E., & Hill, B. K. (1996). Scales of independent behavior: Revised (SIB-R). Itasca: Riverside Publishing.
go back to reference Carter, I. (2009). Positive and negative experiences of parents involved in online self-help groups for autism. Journal on Developmental Disabilities, 15, 44–52. Carter, I. (2009). Positive and negative experiences of parents involved in online self-help groups for autism. Journal on Developmental Disabilities, 15, 44–52.
go back to reference Chandler, S., Charman, T., Baird, G., Simonoff, E., Loucas, T., Meldrum, D., et al. (2007). Validation of the Social Communication Questionnaire in a population cohort of children with autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 36, 1324–1332.CrossRef Chandler, S., Charman, T., Baird, G., Simonoff, E., Loucas, T., Meldrum, D., et al. (2007). Validation of the Social Communication Questionnaire in a population cohort of children with autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 36, 1324–1332.CrossRef
go back to reference Cohen, S., & Wills, T. A. (1985). Stress, social support and the buffering hypothesis. Psychological Bulletin, 98, 310–357.PubMedCrossRef Cohen, S., & Wills, T. A. (1985). Stress, social support and the buffering hypothesis. Psychological Bulletin, 98, 310–357.PubMedCrossRef
go back to reference Corsello, C., Hus, V., Pickles, A., Risi, S., Cook, E. H, Jr, Leventhal, B. L., et al. (2007). Between a ROC and a hard place: Decision making and making decisions about using the SCQ. Journal of Child Psychology and Psychiatry, 48, 932–940.PubMedCrossRef Corsello, C., Hus, V., Pickles, A., Risi, S., Cook, E. H, Jr, Leventhal, B. L., et al. (2007). Between a ROC and a hard place: Decision making and making decisions about using the SCQ. Journal of Child Psychology and Psychiatry, 48, 932–940.PubMedCrossRef
go back to reference Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54, 266–280.PubMedCrossRef Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54, 266–280.PubMedCrossRef
go back to reference Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2012). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders, 42, 257–265.PubMedCrossRef Daniels, A. M., Rosenberg, R. E., Anderson, C., Law, J. K., Marvin, A. R., & Law, P. A. (2012). Verification of parent-report of child autism spectrum disorder diagnosis to a web-based autism registry. Journal of Autism and Developmental Disorders, 42, 257–265.PubMedCrossRef
go back to reference Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.PubMedCrossRef Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671.PubMedCrossRef
go back to reference Faul, F., Erdfelder, E., Buchner, A., & Lang, A.-G. (2009). Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41, 1149–1160.PubMedCrossRef Faul, F., Erdfelder, E., Buchner, A., & Lang, A.-G. (2009). Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41, 1149–1160.PubMedCrossRef
go back to reference Faul, F., Erdfelder, E., Lang, A.-G., & Buchner, A. (2007). G*Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175–191.PubMedCrossRef Faul, F., Erdfelder, E., Lang, A.-G., & Buchner, A. (2007). G*Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175–191.PubMedCrossRef
go back to reference Fontana, C. A., Fleischman, A. R., McCarton, C., Meltzer, A., & Ruff, H. (1988). A neonatal preventive intervention study: Issues of recruitment and retention. Journal of Primary Prevention, 9, 164–176.CrossRef Fontana, C. A., Fleischman, A. R., McCarton, C., Meltzer, A., & Ruff, H. (1988). A neonatal preventive intervention study: Issues of recruitment and retention. Journal of Primary Prevention, 9, 164–176.CrossRef
go back to reference Hamlyn-Wright, S., Draghi-Lorenz, R., & Ellis, J. (2007). Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder. Autism, 11, 489–501.PubMedCrossRef Hamlyn-Wright, S., Draghi-Lorenz, R., & Ellis, J. (2007). Locus of control fails to mediate between stress and anxiety and depression in parents of children with a developmental disorder. Autism, 11, 489–501.PubMedCrossRef
go back to reference Kerr, S. M., & McIntosh, J. B. (2000). Coping when a child has a disability: Exploring the impact of parent-to-parent support. Child: Care, Health and Development, 26, 309–322.CrossRef Kerr, S. M., & McIntosh, J. B. (2000). Coping when a child has a disability: Exploring the impact of parent-to-parent support. Child: Care, Health and Development, 26, 309–322.CrossRef
go back to reference Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.PubMedCrossRef Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172–183.PubMedCrossRef
go back to reference Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11, 111–122.PubMedCrossRef Mandell, D. S., & Salzer, M. S. (2007). Who joins support groups among parents of children with autism? Autism, 11, 111–122.PubMedCrossRef
go back to reference Nachshen, J., Woodford, L., & Minnes, P. (2003). The family stress and coping interview for families of individuals with developmental disabilities: A lifespan perspective on family adjustment. Journal of Intellectual Disability Research, 47, 285–290.PubMedCrossRef Nachshen, J., Woodford, L., & Minnes, P. (2003). The family stress and coping interview for families of individuals with developmental disabilities: A lifespan perspective on family adjustment. Journal of Intellectual Disability Research, 47, 285–290.PubMedCrossRef
go back to reference Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168, 969–973.PubMed Preyde, M., & Ardal, F. (2003). Effectiveness of a parent “buddy” program for mothers of very preterm infants in a neonatal intensive care unit. Canadian Medical Association Journal, 168, 969–973.PubMed
go back to reference Rutter, M., Bailey, A., & Lord, C. (2003). Social communication questionnaire. Los Angeles, CA: Western Psychological Services. Rutter, M., Bailey, A., & Lord, C. (2003). Social communication questionnaire. Los Angeles, CA: Western Psychological Services.
go back to reference Sharpley, C. F., Bitsika, V., & Ephrimidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with ASD. Journal of Intellectual and Developmental Disabilities, 22, 19–28.CrossRef Sharpley, C. F., Bitsika, V., & Ephrimidis, B. (1997). Influence of gender, parental health, and perceived expertise of assistance upon stress, anxiety, and depression among parents of children with ASD. Journal of Intellectual and Developmental Disabilities, 22, 19–28.CrossRef
go back to reference Singer, G. H. S., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parents programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–229.CrossRef Singer, G. H. S., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parents programs for parents of children with disabilities. Journal of Early Intervention, 22, 217–229.CrossRef
go back to reference Smith, K., Gabard, D., Dale, D., & Drucker, A. (1994). Parental opinions about attending parent support groups. Children’s Health Care, 23, 127–136.PubMedCrossRef Smith, K., Gabard, D., Dale, D., & Drucker, A. (1994). Parental opinions about attending parent support groups. Children’s Health Care, 23, 127–136.PubMedCrossRef
go back to reference Solomon, M., Pistrang, N., & Barker, C. (2001). The benefits of mutual support groups for parents of children with disabilities. American Journal of Community Psychology, 29, 113–132.PubMedCrossRef Solomon, M., Pistrang, N., & Barker, C. (2001). The benefits of mutual support groups for parents of children with disabilities. American Journal of Community Psychology, 29, 113–132.PubMedCrossRef
go back to reference Spielberger, C. D. (1983). Manual for the state-trait anxiety inventory. Palo Alto, CA: Consulting Psychologists Press. Spielberger, C. D. (1983). Manual for the state-trait anxiety inventory. Palo Alto, CA: Consulting Psychologists Press.
go back to reference Spielberger, C. D., Ritterband, L. M., Reheiser, E. C., & Brunner, T. M. (2003). The nature and measurement of depression. International Journal of Clinical and Health Psychology, 3, 209–234. Spielberger, C. D., Ritterband, L. M., Reheiser, E. C., & Brunner, T. M. (2003). The nature and measurement of depression. International Journal of Clinical and Health Psychology, 3, 209–234.
go back to reference Troester, J. D. (2000). A parent support group project in special education. Journal of Child and Adolescent Group Therapy, 10, 57–64.CrossRef Troester, J. D. (2000). A parent support group project in special education. Journal of Child and Adolescent Group Therapy, 10, 57–64.CrossRef
go back to reference Vaux, A. (1988). Social support: Theory, research and intervention. New York: Praeger Publishers. Vaux, A. (1988). Social support: Theory, research and intervention. New York: Praeger Publishers.
go back to reference Viecili, M. A., Weiss, J. A., & Lunsky, Y. (2010, November). Benefits of parents support groups: Where we’re seeing change. Poster presented at the Geneva Centre for Autism International Symposium, Toronto, Ontario, Canada. Viecili, M. A., Weiss, J. A., & Lunsky, Y. (2010, November). Benefits of parents support groups: Where we’re seeing change. Poster presented at the Geneva Centre for Autism International Symposium, Toronto, Ontario, Canada.
Metagegevens
Titel
Logging On: Evaluating an Online Support Group for Parents of Children with Autism Spectrum Disorders
Auteurs
Tessen Clifford
Patricia Minnes
Publicatiedatum
01-07-2013
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 7/2013
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-012-1714-6

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