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Gepubliceerd in: Quality of Life Research 9/2017

05-05-2017

Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health

Auteurs: Alex W. K. Wong, Stephen C. L. Lau, David Cella, Jin-Shei Lai, Guanli Xie, Lidian Chen, Chetwyn C. H. Chan, Allen W. Heinemann

Gepubliceerd in: Quality of Life Research | Uitgave 9/2017

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Abstract

Background

The quality of life in neurological disorders (Neuro-QoL) is a U.S. National Institutes of Health initiative that produced a set of self-report measures of physical, mental, and social health experienced by adults or children who have a neurological condition or disorder.

Objective

To describe the content of the Neuro-QoL at the item level using the World Health Organization’s international classification of functioning, disability and health (ICF).

Methods

We assessed the Neuro-QoL for its content coverage of functioning and disability relative to each of the four ICF domains (i.e., body functions, body structures, activities and participation, and environment). We used second-level ICF three-digit codes to classify items into categories within each ICF domain and computed the percentage of categories within each ICF domain that were represented in the Neuro-QoL items.

Results

All items of Neuro-QoL could be mapped to the ICF categories at the second-level classification codes. The activities and participation domain and the mental functions category of the body functions domain were the areas most often represented by Neuro-QoL. Neuro-QoL provides limited coverage of the environmental factors and body structure domains.

Conclusions

Neuro-QoL measures map well to the ICF. The Neuro-QoL–ICF-mapped items provide a blueprint for users to select appropriate measures in ICF-based measurement applications.
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Metagegevens
Titel
Linking of the quality of life in neurological disorders (Neuro-QoL) to the international classification of functioning, disability and health
Auteurs
Alex W. K. Wong
Stephen C. L. Lau
David Cella
Jin-Shei Lai
Guanli Xie
Lidian Chen
Chetwyn C. H. Chan
Allen W. Heinemann
Publicatiedatum
05-05-2017
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 9/2017
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-017-1590-9

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