An open future? The principle of autonomy within medical ‘codes of conduct’ versus the heteronomy effects of predictive medicine

[1] De Vries G., Voorspellende geneeskunde. Ethische en politiek-filosofische problemen rond een nieuw paradigma, Ethische perspectieven, 1999, 9, 183–197 http://dx.doi.org/10.2143/EPN.9.3.51685910.2143/EPN.9.3.516859Search in Google Scholar

[2] King J.S., Moulton B.W., Rethinking Informed Consent: The Case for Shared Medical Decision-Making, American Journal of Law & Medicine, 2006, 32, 429–502 10.1177/009885880603200401Search in Google Scholar PubMed

[3] Hedayat K.M., The possibility of a universal declaration of biomedical ethics, Journal of Medical Ethics, 2007, 33, 17–20 http://dx.doi.org/10.1136/jme.2006.01617010.1136/jme.2006.016170Search in Google Scholar PubMed PubMed Central

[4] Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 454; Huibers A.K. and Spijker A., The autonomy paradox: predictive genetic testing and autonomy: three essential problems, Patient Education and Counseling, 1998, 35, 53–62 Search in Google Scholar

[5] Oliffe J., Thorne S., Hislop T., Gregory Msc, Armstrong E.A., ’Truth Telling’ and Cultural Assumptions in an Era of Informed Consent, Family & Community Health, 2007, 30, 5–15 10.1097/00003727-200701000-00003Search in Google Scholar PubMed

[6] The ‘ethics in medicine’ from the University of Washington School of Medicine’ (http://depts.washington.edu/bioethx/topics/consent.html); see also Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 79 Search in Google Scholar

[7] See King J.S., Moulton B.W., Rethinking Informed Consent: The Case for Shared Medical Decision-Making, American Journal of Law & Medicine, 2006, 32, 429–502 10.1177/009885880603200401Search in Google Scholar

[8] Beauchamp C., Principles of biomedical ethics, Oxford, Oxford University Press, 2001, 454 Search in Google Scholar

[9] Horstman K., De Vries G.H., Haveman O., Gezondheidspolitiek in een risicocultuur: burgerschap in het tijdperk van de voorspellende geneeskunde, Den Haag, Rathenau Instituut, 1999, 106–107 Search in Google Scholar

[10] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 144 Search in Google Scholar

[11] Nestle M., Food politics. How the food industry influences nutrition and health, Berkeley, University of California Press, 2002 Search in Google Scholar

[12] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 143 Search in Google Scholar

[13] ’Trim u fit’ (1967), ’sportreal’ (1976), ’sport, zelfs ik doe het’ (1988) ‘Flash’ (2005). This list is only a selection; for further information see: http://www.minvws.nl/dossiers/sport/default.asp) Search in Google Scholar

[14] Di Pietro M.L., Giuli A., Spagnolo A.G., Ethical implications of predictive DNA testing for hereditary breast cancer, Annals of Oncology, 2004, 15, i65–i70 http://dx.doi.org/10.1093/annonc/mdh66210.1093/annonc/mdh662Search in Google Scholar PubMed

[15] Di Pietro M.L., Giuli A., Spagnolo A.G., Ethical implications of predictive DNA testing for hereditary breast cancer, Annals of Oncology, 2004, 15, i65–i70 http://dx.doi.org/10.1093/annonc/mdh66210.1093/annonc/mdh662Search in Google Scholar

[16] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 147 Search in Google Scholar

[17] ’Preventive maintenance for the human body’, brochure of The Institute for Predictive medicine’: http://www.predictivemedicine.us Search in Google Scholar

[18] Horstman K., De Vries G.H., Haveman O., Gezondheidspolitiek in een risicocultuur: burgerschap in het tijdperk van de voorspellende geneeskunde, Den Haag, Rathenau Instituut, 1999, 36 Search in Google Scholar

[19] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 147 Search in Google Scholar

[20] Macintyre A., Whose justice, which rationality?, Indiana, University of Notre Dame Press, 1988 Search in Google Scholar

[21] Beckman L., Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy, Theoretical Medicine and Bioethics, 2004, 25, 387–398 http://dx.doi.org/10.1007/s11017-004-2047-z10.1007/s11017-004-2047-zSearch in Google Scholar PubMed

[22] Rogowski W., Current impact of gene technology on healthcare: A map of economic assessments, Health Policy, 2007, 80, 340–357 http://dx.doi.org/10.1016/j.healthpol.2006.03.00910.1016/j.healthpol.2006.03.009Search in Google Scholar PubMed

[23] “Zum Fragen gehört außer dem Gefragten ein Befragtes. In der untersuchenden, d.h. spezifisch theoretischen Frage soll das Gefragte bestimmt und zu Begriff gebracht werden. Im Gefragten liegt dann als das eigentlich Intendierte das Erfragte, das, wobei das Fragen ins Ziel kommt. […] Das Eigentümliche dieser liegt darin, daß das Fragen sich zuvor nach all den genannten konstitutiven Charakteren der Frage selbst durchsichtig wird” (Heidegger M., Sein und Zeit, Tübingen, Max Niemayer Verlag, 1993, 5 Search in Google Scholar

[24] The World Medical Association Statement on Genetics and Medicine. Adopted by the WMA General Assembly, Santiago 2005: http://www.wma.net/e/policy/g11.htm Search in Google Scholar

[25] Beauchamp B.(eds), New ethics for the public’s health, Oxford, Oxford University Press, 1999, 344 Search in Google Scholar

[26] Kruijf A.F., Schroeder R.F., Toekomstscenario’s voorspellende geneeskunde, Den Haag, Rathenau, 1999, 121 (my translation) Search in Google Scholar

[27] Henn W., Schindelhauer-Deutscher H., Kommunikation genetischer Risiken aus der Sicht der humangenetischen Beratung: Erfordernisse und Probleme, Bundesgesundheitsblatt-Gesundheitsforschung-Gesundheitsschutz, 2007, 50, 174–180 http://dx.doi.org/10.1007/s00103-007-0138-510.1007/s00103-007-0138-5Search in Google Scholar PubMed

[28] Summers C., Realities of decision-making and social issues: Implications for developing and implementing ethics guidelines, Science of The Total Environment, 1996, 184, 17–23 http://dx.doi.org/10.1016/0048-9697(95)04983-510.1016/0048-9697(95)04983-5Search in Google Scholar

[29] Gaunt N., Practical approaches to creating a security culture, International Journal of Medical Informatics, 2000, 60, 151–157 http://dx.doi.org/10.1016/S1386-5056(00)00115-510.1016/S1386-5056(00)00115-5Search in Google Scholar