Cent Eur J Nurs Midw 2020, 11(4):196-206 | DOI: 10.15452/cejnm.2020.11.0015

Burnout in parents of sick children and its risk factors: a literature review

Slávka Mrosková1, Martina Reľovská2, Alena Schlosserová3
1 Department of Nursing, Faculty of Health Care, University of Presov, Slovakia
2 Department of Urgent Health Care, Faculty of Health Care, University of Presov, Slovakia
3 Department of Midwifery, Faculty of Health Care, University of Presov, Slovakia

Aim: The aim of the review is to analyze burnout in parents who provide care for children with various physical and psychosocial diseases and disabilities using available literature sources, and, subsequently, to assess the factors that increase the risk of burnout.

Design: A literature review.

Methods: Content analysis of research published in the years 1/2004 – 12/2018 in electronic databases (Pubmed, Scopus, Science Direct, and EBSCO) was applied. Following application of the selection criteria, 14 surveys were included in the final analysis.

Results: The studies integrated into the review show considerable methodological variation (i.e., different types of tools used to assess burnout, different respondent selection) and differences in the presentation of results. The analysis of the results indicates that caring for sick children is a risk factor for parent burnout. Burnout intensity is probably influenced more by parents’ subjective perception of childrenʼs diseases than the objective nature of the diseases (e.g., degree of disability, duration of disease, disease compensation). However, having a sick child is only one of many predictors of parent burnout. Some research suggests that social support, personality traits of parents, or how effectively family and partner relationships function can be more significant factors predisposing parents to burnout.

Conclusion: Parental burnout is an area requiring attention from nurses in view of the potential negative impact on the health of both parents and children.

Keywords: burnout, care, parent, sick children

Received: March 19, 2020; Revised: April 27, 2020; Accepted: May 15, 2020; Prepublished online: October 28, 2020; Published: December 4, 2020  Show citation

ACS AIP APA ASA Harvard Chicago IEEE ISO690 MLA NLM Turabian Vancouver
Mrosková S, Reľovská M, Schlosserová A. Burnout in parents of sick children and its risk factors: a literature review. Central European Journal of Nursing and Midwifery. 2020;11(4):196-206. doi: 10.15452/cejnm.2020.11.0015.
Download citation

References

  1. Basaran, A., Karadavut, K. I., Uneri, S. O., Balbaloglu, O., & Atasoy, N. (2013). The effect of having children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. European Journal of Physical and Rehabilitation Medicine, 49(6), 815-822. Go to PubMed...
  2. Boledovičová, M., Czaková, Z., Krištofová, E., Líšková, M., Mesárošová, J., Nádaská, I., Padyšáková, H., Pavelová, Ľ., Polhorská, M., Rybárová, Ľ., Schmidtová, Z., Slamková, A., Tuchyňová, Ľ., Vöröšová, G., Zrubcová, D. (2006). Pediatrické ošetrovateľstvo [Pediatric nursing]. Osveta.
  3. Carona, C., Silva, N., Crespo, C., & Canavarro, M. C. (2014). Caregiving burden and parent-child quality of life outcomes in neurodevelopmental conditions: the mediating role of behavioral disengagement. Journal of Clinical Psychology in Medical Setting, 21(4), 320-328. https://doi.org/10.1007/s10880-014-9412-5 Go to original source... Go to PubMed...
  4. Family Caregiver Alliance. National center on Caregiving. (2014). Definitions. https://www.caregiver.org/definitions-0.
  5. Gérain, P., & Zech, E. (2018). Does informal caregiving lead to parental burnout? Comparing parents having children with mental and physical issues. Frontiers in Psychology, 9, 884. https://doi.org/10.3389/fpsyg.2018.00884 Go to original source... Go to PubMed...
  6. Jaramillo, S., Moreno, S., & Rodríguez, V. (2016). Emotional burden in parents of children with trisomy 21: descriptive study in a Colombian population. Universitas Psychologica, 15(1), 29-38. http://dx.doi.org/10.11144/Javeriana.upsy15-1.ebpc Go to original source...
  7. Karadavut, K. I., & Uneri, S. O. (2011). Burnout, depression and anxiety levels in mothers of infants with brachial plexus injury and the effects of recovery on mothers' mental health. European Journal of Obstetrics & Gynecology and Reproductive Biology, 157(1), 43-47. https://doi.org/10.1016/j.ejogrb.2011.03.001 Go to original source... Go to PubMed...
  8. Kobos, E., Imiela, J., & Leńczuk-Gruba, A. (2017). Diabetes, childcare, and performance of family functions. Medical Studies/Studia Medyczne, 33(1), 17-25. https://doi.org/10.5114/ms.2017.66952 Go to original source...
  9. Lindahl Norberg, A. (2007). Burnout in mothers and fathers of children surviving brain tumour. Journal of Clinical Psychology in Medical Setting, 14(2), 130-137. https://doi.org/10.1007/s10880-007-9063-x Go to original source...
  10. Lindahl Norberg, A. (2010). Parents of children surviving a brain tumor: burnout and the perceived disease-related influence on everyday life. Journal of Pediatric Hematology/Oncology, 32(7), e285-e289. https://doi.org/10.1097/MPH.0b013e3181e7dda6 Go to original source... Go to PubMed...
  11. Lindahl Norberg, A., Mellgren, K., Winiarski, J., & Forinder, U. (2014). Relationship between problems related to child late effects and parent burnout after pediatric hematopoietic stem cell transplantation. Pediatric Transplantation, 18(3), 302-309. https://doi.org/10.1111/petr.12228 Go to original source... Go to PubMed...
  12. Lindahl Norberg, A., & Forinder, U. (2016). Different aspects of psychological ill health in a national sample of swedish parents after successful paediatric stem cell transplantation. Pediatric Blood & Cancer, 63(6), 1065-1069. https://doi.org/10.1002/pbc.25908 Go to original source... Go to PubMed...
  13. Lindström, C., Aman, J., & Norberg, A. L. (2010). Increased prevalence of burnout symptoms in parents of chronically ill children. Acta Pædiatrica, 99(3), 427-432. https://doi.org/10.1111/j.1651-2227.2009.01586.x Go to original source... Go to PubMed...
  14. Lindström, C., Aman, J., & Norberg, A. L. (2011). Parental burnout in relation to sociodemographic, psychosocial and personality factors as well as disease duration and glycaemic control in children with Type 1 diabetes mellitus. Acta Pædiatrica, 100(7), 1011-1017. https://doi.org/10.1111/j.1651-2227.2011.02198.x Go to original source... Go to PubMed...
  15. Maslach, C., & Jackson, S. E. (1981). The measurement of experienced burnout. Journal of Organizational Behavior, 2(2), 99-113. https://doi.org/10.1002/job.4030020205 Go to original source...
  16. Mendelová, E. (2014). Súčasná postmoderná rodina a vnútrorodinná deľba práce [The Contemporary Postmodern Family and the Division of Work Insidethe Family]. Sociální pedagogika, 2(1), 11-21. http://doi.org/10.7441/soced.2014.02.01.01 Go to original source...
  17. Mikolajczak, M., &Roskam, I. (2018). A theoretical and clinical framework for parental burnout: the balance between risks and resources (BR2). Frontiers in Psychology, 9:886. https://doi.org/10.3389/fpsyg.2018.00886 Go to original source... Go to PubMed...
  18. Mikolajczak, M., Brianda, M. E., Avalosse, H., & Roskam, I. (2018a). Consequences of parental burnout: its specific effect on child neglect and violence. Child Abuse and Neglect, 80, 134-155. https://doi.org/10.1016/j.chiabu.2018.03.025 Go to original source... Go to PubMed...
  19. Mikolajczak, M., Raes, M. E., Avalosse, H., & Roskam, I. (2018b). Exhausted parents: sociodemographic, child-related, parent-related, parenting and family-functioning correlates of parental burnout. Journal of Child and Family Studies, 27(2), 602-614. https://doi.org/10.1007/s10826-017-0892-4 Go to original source...
  20. Potančok, J. (2010). Zmeny v chápaní úlohy otca v súčasnej rodine [Changes in Understanding the Role of a Father in Contemporary Family]. Sociológia, 42(2), 113-133.
  21. Riva, R., Forinder, U., Arvidson, J., Mellgren, K., Toporski, J., Winiarski, J., & Norberg, A. L. (2014). Patterns of psychological responses in parents of children that underwent stem cell transplantation. Psycho-Oncology, 23(11), 1307-1313. https://doi.org/10.1002/pon.3567 Go to original source... Go to PubMed...
  22. Roskam, I., Raes, M. E., & Mikolajczak, M. (2017). Exhausted parents: development and preliminary validation of the Parental Burnout Inventory. Frontiers in Psychology, 8, 163. https://doi.org/10.3389/fpsyg.2017.00163 Go to original source... Go to PubMed...
  23. Roskam, I., Brianda, M., & Mikolajczak, M. (2018). A step forward in the conceptualization and measurement of parental burnout: theParental Burnout Assessment (PBA). Frontiers in Psychology, 9, 758. https://doi.org/10.3389/fpsyg.2018.00758 Go to original source... Go to PubMed...
  24. Sairanen, E., Lappalainen, P., & Hiltunen, A. (2018). Psychological inflexibility explains distress in parents whose children have chronic conditions. PLoS ONE, 13(7), e0201155. https://doi.org/10.1371/journal.pone.0201155 Go to original source... Go to PubMed...
  25. Sobotková I. (2007). Psychologie rodiny [Family psychology]. Portál.
  26. Šulová. L. (2005). Raný psychický vývoj dítěte [Early mental development of the child]. Karlova univerzita.
  27. Tsai, T. C., Liu, S. I., Tsai, J. D., & Chou, L. H. (2006). Psychosocial effects on caregivers for children on chronic peritoneal dialysis. Kidney International, 70(11), 1983-1987. https://doi.org/10.1038/sj.ki.5001811 Go to original source... Go to PubMed...
  28. Van Bakel, H. J. A., Van Engel, M. L., & Peters, P. (2018). Validity of the parental burnout inventory among Dutch employees. Frontiers in Psychology, 9, 697. https://doi.org/10.3389/fpsyg.2018.00697 Go to original source... Go to PubMed...
  29. Vymětal, J. (2003). Lékařská psychologie [Medical psychology]. Praha: Portál.
  30. Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and coping strategies of chinese families with children with autism and other developmental disabilities. Journal of Autism and Developmental Disorders, 41(6), 783-795. https://doi.org/10.1007/s10803-010-1099-3 Go to original source... Go to PubMed...
  31. Weiss, J. A., & Lunsky, Y. (2011). The Brief Family Distress scale: a measure of crisis in caregivers of individuals with autism spectrum disorders. Journal of Child and Family Studies, 20(4), 521-528. https://doi.org/10.1007/s10826-010-9419-y Go to original source...

This is an open access article distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0), which permits non-comercial use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.