A community-based intervention for siblings and parents of children with chronic illness or disability: the ISEE study☆
Section snippets
Study design
The study was a randomized, three-group, repeated-measures (panel) design consisting of assessments of the performance of groups at baseline and at four postintervention periods: 5 days, 4 months, 9 months, and 12 months after baseline. Outcomes were measured on 6 interval scales: Sibling Knowledge About Illness (SKNOW), Sibling Social Support (SSUP), Sibling Self-Esteem (SSELF), Sibling Mood (SMOOD), Sibling Behavior Problems (SBEHV), and Sibling Attitude Towards Illness (SATT).
The full
Sample characteristics at baseline
Parent–sibling dyads (n = 292) were entered into the study, with 252 completing all periods of observation and data collection. Seven of the 40 withdrawals occurred because the same parent did not accompany the sibling to all five data collection sessions. No statistically significant differences were found between subjects withdrawn from the study and those subjects who remained.
A total of 79, 71, and 102 siblings were in the full treatment, partial treatment, and control groups, respectively.
Discussion
These findings must be used cautiously when reference is made to low-income socioeconomic status minority populations, because they were not well represented in this study. Further studies are needed on these populations. Findings of the current study, however, do indicate that the full intervention had anticipated treatment effects on the subjects.
These effects were strongest in the full intervention group relative to the partial intervention and control groups in the transmission of sibling
Acknowledgements
Invaluable assistance was provided to the project by Stephanie Schwartz, MPH, CNS, CDE, RN, of the Children's Mercy Hospital, Diabetes Clinic, Kansas City, MO; Anne Guthrie, MEd; Catherine DeVoge, MSN, RN; and Ubolrat Piamjariyakul, PhD, RN, of the University of Kansas School of Nursing. The Missouri Association for Social Welfare acted as subcontractor for the maintenance of study databases. Tom Gould, MPA, Western Regional Coordinator, Missouri Association for Social Welfare, assisted in the
References (31)
Siblings and pediatric chronic illness: review of the literature
Int J Nurs Studies
(1997)- et al.
What diagnosis does not tell: the case for a noncategorical approach to chronic illness in childhood
Soc Sci Med
(1989) - et al.
Fatigue in mothers of infants discharged to the home on apnea monitors
Appl Nurs Res
(1999) - et al.
Childhood chronic illness: prevalence, severity, and impact
Am J Public Health
(1992) - et al.
Sibling adaptation to childhood cancer collaborative study: parental views of pre- and postdiagnosis adjustment of siblings of children with cancer
J Psychosoc Oncol
(1995) - et al.
The Ontario Health Study: social adjustment and mental health of siblings of children with chronic health problems
J Dev Behav Pediatr
(1988) - et al.
Pediatric cancer: predicting sibling adjustment
J Clin Psych
(1995) - et al.
Siblings of disabled children: effects of chronic stress in the family
Arch Gen Psychiatry
(1987) - et al.
Evaluation of a camp program for siblings of children with cancer
Am J Dis Child
(1989) - et al.
Chronically ill children and their families
(1985)
Outcomes of a nursing intervention on siblings of children with chronic illness
J Soc Pediatr Nurs
Maternal mood, family cohesion, and perceptions of social support, self-esteem, and mood among siblings of chronically ill children
Childrens Health Care
Well siblings and mothers of children with chronic illness: a structural equation model
J Behav Med
Marriage and family development
Home caregivers and children on apnea monitors
Fam Sys Med
Cited by (78)
Impact of psoriasis in the quality of life of children, adolescents and their families: A cross-sectional study
2018, Anais Brasileiros de DermatologiaCitation Excerpt :In agreement with the published data, we have demonstrated an impaired quality of life of the family members of the patients, confirming the impact of disease on family life. Since parental response to any chronic illness can affect the child’s adaptation, interventions such as counseling, especially on stress management and problem solving strategies, will promote better mental health in parents.21 This will probably lead to a better family functioning and a better care for their children.
Effectiveness of a Brief Psychosocial Intervention on Quality of Life of Primary Caregivers of Iranian Children With Cancer: A Randomized Controlled Trial
2016, Journal of Pediatric NursingCitation Excerpt :PCCCs who participated in BPI (intervention group) reported significant improvements in quality of life compared with control group in post-intervention and follow-up. Interventions that have been reported in literature frequently influenced single or a few domains of psychosocial distress and quality of life (Kazak et al., 2004; Khanjari et al., 2013; Lotfi-Kashani et al., 2012a; Williams et al., 2003). In this study, there were significant improvements in mental/emotional burden, lifestyle disruption, and positive adaptation subscales for the intervention group over time.
A controlled trial of the SibworkS group program for siblings of children with special needs
2015, Research in Developmental DisabilitiesCitation Excerpt :The aim of this study was to evaluate the efficacy of SibworkS in promoting sibling wellbeing. A review of previous intervention evaluations suggests the need for a control group, as only five studies to date have used a randomised controlled design (Feinberg et al., 2013; Giallo & Gavidia-Payne, 2008; McLinden et al., 1991; Phillips, 1999; Williams et al., 2003). Another desirable design feature is the inclusion of a longer-term follow-up.
Managing Children with Rheumatic Diseases
2015, Textbook of Pediatric RheumatologyNursing Interventions for Children with Atopic Dermatitis and Their Families: A Scoping Review
2023, MCN The American Journal of Maternal/Child Nursing
- ☆
Supported in 1998 through 2002 by a grant (RO1 NR947110) awarded to the primary investigator, PDW., by the National Institutes of Health, National Institute of Nursing Research.