Measuring health outcomes in stroke survivors

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Abstract

Doyle PJ. Measuring health outcomes in stroke survivors. Arch Phys Med Rehabil 2002;83 Suppl 2:S39-43. Stroke frequently results in psychologic distress and activity limitations across multiple domains of functioning. However, most stroke outcome measurement tools and clinical trial endpoints are narrowly focused on neurologic symptom status and physical aspects of functioning, and rarely assess other important components of health. In this article, I discuss the limitations in the measurement of nonfatal stroke outcomes; propose a minimum set of fundamental assessment domains comprising a comprehensive assessment of health status in stroke survivors; and describe the conceptual development of the Burden of Stroke Scale, a comprehensive, patient-reported measure of functioning and well-being for stroke survivors. © 2002 by the American Congress of Rehabilitation Medicine

Section snippets

Conclusion

In conclusion, the psychometric development of any assessment instrument is an iterative process, requiring several validation studies. To date, research on the BOSS has focused on its item reduction, scaling properties, discriminant validity, and factor structure (PI Doyle et al, unpublished data, 2002). In addition, the BOSS has been validated in a well-described subsample of stroke survivors with communication disorders.36 Continued development of The BOSS will examine its temporal stability

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    Copyright © 2002 by the American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation. Published by Elsevier Inc. All rights reserved.