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Original Articles and Reviews

Coping with a Chronic Pediatric Health Condition and Health-Related Quality of Life

Published Online:https://doi.org/10.1027/1016-9040.11.1.50

Background: Health-related quality of life (HRQOL) is increasingly considered an important outcome variable in pediatric research. Despite the growing interest little is known about the relationship between HRQOL and other significant constructs such as coping with a chronic health condition. Objective: The current paper examined age, gender, and health condition effects on coping and HRQOL scales and explored the relationship between both constructs. Methods: A study with 295 children and adolescents (8-16 years) with three different chronic health conditions (asthma, diabetes mellitus, and arthritis) was conducted in five European countries. Coping was assessed with the CODI questionnaire and HRQOL with the chronic generic module of the DISABKIDS instrument set, which was developed within the European DISABKIDS study. Results: Significant gender differences were found for the Emotional Reaction and Acceptance scale of the CODI and the Physical and Emotion domain of HRQOL. Age differences were noted for the Wishful Thinking and Avoidance scale as well as the Emotion domain of HRQOL. Interaction effects between age and gender were not detected. Significant differences were also found regarding the type of chronic health condition and the coping scales Wishful Thinking and Distance, as well as Avoidance. Moderate significant correlations were found between the coping scales Emotional Reaction and Acceptance and the HRQOL scales. Conclusion: Gender, age, and health condition differences with regard to the use of different coping strategies need to be taken into consideration. Coping and HRQOL are closely related, especially regarding the Emotional domain where a potential overlap was noted. Here, a more precise separation of constructs is needed.

References

  • Aaronson, N.K. (1992). Assessing the quality of life of patients in cancer clinical trials: Common sense problems and common sense solutions. European Journal of Cancer, 28, 1304– 1307 First citation in articleCrossrefGoogle Scholar

  • Baker, F. , Intagliata, J. (1982). Quality of life in the evaluation of community support systems. Evaluation and Program Planning, 5, 69– 79 First citation in articleCrossrefGoogle Scholar

  • Band, E.B. , Weisz, J.R. (1990). Developmental differences in primary and secondary control: Coping and adjustment to juvenile diabetes. Journal of Clinical Child Psychology, 19, 150– 158 First citation in articleCrossrefGoogle Scholar

  • Boekaerts, M. , Röder, I. (1999). Stress, coping, and adjustment in children with a chronic disease: A review of the literature. Disability and Rehabilitation, 21, 311– 337 First citation in articleCrossrefGoogle Scholar

  • Bullinger, M. , Schmidt, S. , Petersen, C. DISABKIDS Group (2002). Assessing quality of life of children with chronic health conditions and disabilities: A European approach. International Journal of Rehabilitation Research, 25, 197– 206 First citation in articleCrossrefGoogle Scholar

  • Compas, B.E. , Connor-Smith, J.K. , Saltzman, H. , Thomsen, A.H. , Wadsworth, M.E. (2001). Coping with stress during childhood and adolescence: Problems, progress, and potential in theory and research. Psychological Bulletin, 127, 87– 127 First citation in articleCrossrefGoogle Scholar

  • Eiser, C. (1990). Psychological effects of chronic disease. Journal of Child Psychology and Psychiatry, 31, 85– 98 First citation in articleCrossrefGoogle Scholar

  • Eiser, C. , Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 1– 157 First citation in articleGoogle Scholar

  • Ellerton, M.L. , Ritchie, J.A. , Caty, S. (1994). Factors influencing young children's coping behaviors during stressful healthcare encounters. Maternal Child Nursing Journal, 22, 74– 82 First citation in articleGoogle Scholar

  • Felce, D. , Perry, J. (1995). Quality of life: Its definition and measurement. Research in Developmental Disabilities, 16, 51– 74 First citation in articleCrossrefGoogle Scholar

  • Grey, M. , Boland, E.A. , Davidson, M. , Li, J. , Tamborlane, W.V. (2000). Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. Journal of Pediatrics, 137, 107– 113 First citation in articleCrossrefGoogle Scholar

  • Lavigne, J.V. , Faier-Routman, J. (1992). Psychological adjustment to pediatric physical disorders: A meta-analytic review. Journal of Pediatric Psychology, 17, 133– 157 First citation in articleCrossrefGoogle Scholar

  • Lazarus, R.S. (1966). Psychological stress and the coping process . New York: McGraw-Hill First citation in articleGoogle Scholar

  • McCarty, C.A. , Weisz, J.R. , Wanitromanee, K. , Eastman, K.L. , Suwanlert, S. , Chaiyasit, W. , Band, E.B. (1999). Culture, coping, and context: Primary and secondary control among Thai and American youth. Journal of Child Psychology and Psychiatry, 40, 809– 818 First citation in articleCrossrefGoogle Scholar

  • Milousheva, J. , Kobayashi, N. , Matsui, I. (1996). Psychosocial problems of children and adolescents with a chronic disease: Coping strategies. Acta Pediatrica Japonica, 38, 41– 45 First citation in articleCrossrefGoogle Scholar

  • Perrin, J.M. , Shonkoff, J.P. (2000). Developmental disabilities and chronic illness: An overview. In R.E. Behrman, R.M. Kliegman, & H.B. Jenson (Eds.), Textbook of pediatrics (pp. 121-129). Philadelphia: WB Saunders Company First citation in articleGoogle Scholar

  • Petersen, C. , Schmidt, S. , Bullinger, M. DISABKIDS Group (2004). Brief report: Development and pilot-testing of a coping questionnaire for children and adolescents with chronic health conditions. Journal of Pediatric Psychology, 29, 635– 640 First citation in articleCrossrefGoogle Scholar

  • Petersen, C. , Schmidt, S. , Bullinger, M. DISABKIDS Group (2005). Brief report: Development and pilot-testing of a coping questionnaire for children and adolescents with chronic health conditions. Quality of Life Research, 14, 1065– 1077 First citation in articleCrossrefGoogle Scholar

  • Ravens-Sieberer, U. , Redegeld, M. , Bullinger, M. (2001). Quality of life after in-patient rehabilitation in children with obesity. International Journal of Obesity and Related Metabolic Disorders, 25, 63– 65 First citation in articleCrossrefGoogle Scholar

  • Ryan-Wenger, N.M. (1992). A taxonomy of children's coping strategies. American Orthopsychiatric Association, 62, 256– 263 First citation in articleCrossrefGoogle Scholar

  • Seiffge-Krenke, I. (1992). Coping behavior of Finnish adolescents: Remarks on a cross-cultural comparison. Scandinavian Journal of Psychology, 33, 301– 314 First citation in articleCrossrefGoogle Scholar

  • Spieth, L.E. , Harris, C.V. (1996). Assessment of health-related quality of life in children and adolescents: An integrative review. Journal of Pediatric Psychology, 21, 175– 193 First citation in articleCrossrefGoogle Scholar

  • Spilker, B. (1990). Introduction. Quality of life assessments in clinical trials. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (pp. 3-9). New York: Raven First citation in articleGoogle Scholar

  • Spirito, A. , Stark, L.J. , Gil, K.M. , Tyc, V.L. (1995). Coping with everyday and disease-related stressors by chronically ill children and adolescents. Journal of the American Academy of Child & Adolescent Psychiatry, 34, 283– 290 First citation in articleCrossrefGoogle Scholar

  • Staab, D. , Wenninger, K. , Gebert, N. , Rupprath, K. , Bisson, S. , Trettin, M. , Paul, K.D. , Keller, K.M. , Wahn, U. (1998). Quality of life in patients with cystic fibrosis and their parents: What is important besides disease severity?. Thorax, 53, 727– 731 First citation in articleCrossrefGoogle Scholar

  • Strand, C.V. , Russell, A.S. (1997). WHO/ILAR Taskforce on quality of life. Journal of Rheumatology, 24, 1630– 1633 First citation in articleGoogle Scholar