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Measurement of the Role of Families in Prevention and Adaptation to HIV/AIDS

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Abstract

HIV is a family disease. Family research in HIV is challenging because of complexities of family measurement, the range of family constellations across cultures, and the issues specific to HIV-affected families. A Consortium of NIMH-funded investigators is conducting HIV research on families—defined as networks of mutual commitments. A procedure for identifying the “family” is proposed. This article reviews assessment strategies from two research traditions, both of which have been greatly concerned with social context: family assessment tradition—family membership, parenting, and interactional dynamics; HIV/AIDS research tradition—HIV-relevant constructs generalized to minority families. Initially, a systematic procedure for defining family membership is provided. Constructs and measures derived from the family assessment tradition are described, including self-report and observational procedures. Constructs and measures of relevance to family research that originated in the HIV/AIDS research tradition are described: HIV knowledge, stigma, disclosure, and social support. Constructs presented derive from the Consortium's research on the role of families in prevention and adaptation to HIV/AIDS. Most of the research conducted by the Consortium has taken place with inner-city, minority, heterosexual families. By informing the selection of constructs and measures relevant to investigating the role of families in HIV prevention, and adaptation to living with HIV/AIDS, it is the Consortium's intention to enhance the quality and quantity of research at the intersection of families and HIV/AIDS.

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Authors and Affiliations

  1. Center for Mental Health Research on AIDS, National Institute of Mental Health, National Institutes of Health, Bethesda, Maryland, 20852

    Willo Pequegnat

  2. Department of Pediatrics, Albert Einstein College of Medicine, New York

    Laurie J. Bauman

  3. Department of Family Medicine, Baylor College of Medicine, Houston

    James H. Bray

  4. Rollins School of Public Health, Emory University, USA

    Ralph DiClemente

  5. Department of Sociology, University of Texas, San Antonio, Texas

    Colleen DiIorio

  6. School of Nursing, University of Pennsylvania, Pennsylvania

    Sue Keir Hoppe

  7. Institute on AIDS Research, National Development Research Institute, Inc, USA

    Loretta Sweet Jemmott

  8. School of Nursing, University of North Carolina, USA

    Beatrice Krauss

  9. Institute for Juvenile Research, University of Illinois at Chicago, Illinois

    Margaret Miles

  10. Memorial Sloan-Kettering Cancer Center, USA

    Roberta Paikoff

  11. Center for Community Health, University of California at Los Angeles, California

    Bruce Rapkin

  12. Center for Family Studies, Department of Psychiatry and Behavioral Sciences, Miami University, USA

    Mary Jane Rotheram-Borus

  13. Center for Mental Health Research on AIDS, National Institute of Mental Health, National Institutes of Health, 6001 Executive Boulevard, Room 6205, MSC 9616, Bethesda, Maryland, 20852

    José Szapocznik

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Pequegnat, W., Bauman, L.J., Bray, J.H. et al. Measurement of the Role of Families in Prevention and Adaptation to HIV/AIDS. AIDS Behav 5, 1–19 (2001). https://doi.org/10.1023/A:1009557103659

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