Hostname: page-component-8448b6f56d-gtxcr Total loading time: 0 Render date: 2024-04-18T20:29:45.394Z Has data issue: false hasContentIssue false
  • English
  • Français

Follow-up in patients with congenital cardiac disease more complex than haemodynamic assessment

Published online by Cambridge University Press:  21 January 2005

Per Morten Fredriksen ,
Anne Marit Mengshoel ,
Aina Frydenlund ,
Øystein Sørbye  and
Erik Thaulow
Per Morten Fredriksen
Affiliation:
Physiotherapy Department, Rikshospitalet University Hospital, Oslo, Norway
Anne Marit Mengshoel
Affiliation:
Section of Health Science, Faculty of Medicine, University of Oslo, Oslo, Norway
Aina Frydenlund
Affiliation:
Section of Child and Adolescent Psychiatry, Psychiatric Division, Ullevål University Hospital, Oslo, Norway
Øystein Sørbye
Affiliation:
Sogn Centre for Child and Adolescent Psychiatry, Section of Child and Adolescent Psychiatry, Psychiatric Division, Ullevål University Hospital, Oslo, Norway
Erik Thaulow
Affiliation:
Paediatric Heart Section, Children's Clinic, Rikshospitalet University Hospital, Oslo, Norway
Get access Rights & Permissions [Opens in a new window]

Abstract

The objective of the study was to assess behavioural and emotional problems, as well as physical capacity, in children and adolescents with congenital cardiac disease. From the database of Paediatric Heart Section, Children's Clinic, Rikshospitalet University Hospital, Oslo, Norway, we identified 430 patients whose parents received questionnaires using the Child Behaviour Check-List. The response rate was 75.8%. In addition, the parents received a questionnaire focusing on special issues with regard to physical activity. Parents of children and adolescents with congenital cardiac diseases reported significantly more behavioural problems than did a reference population and boys were scored higher compared to girls. Analysis showed a significant impact of physical capacity on the score representing total problems, as well as scores for externalising and internalising behaviour. Compared to a reference population, parents of children and adolescents with congenital cardiac disease score their children higher on most scales when rated using the Child Behaviour Check-List. The type of diagnosis did not affect the scores reflecting the total problem. The main factor of impact on behavioural problems was, as evaluated by the parents, the physical capacity of the children.

Keywords

Child Behaviour Check-Listphysical capacitycongenital heart diseasechildrenadolescents
Type
Original Article
Information
Cardiology in the Young , Volume 14 , Issue 4 , August 2004 , pp. 373 - 379
Copyright
© 2004 Cambridge University Press

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Linde LM. Psychiatric aspects of congenital heart disease. Psychiatric Clinics North Am 1982; 5: 399–407.Google Scholar
Linde LM, Rasof B, Dunn OJ. Longitudinal studies of intellectual and behavioral development in children with congenital heart disease. Acta Paediatr Scand 1970; 59: 169–176.Google Scholar
Lavigne JV, Ryan M. Psychologic adjustment of siblings and children with chronic illness. Pediatrics 1979; 63: 616–626.Google Scholar
Kramer HH, Awiszus D, Sterzel U, van Halteren A, Classen R. Development of personality and intelligence in children with congenital heart disease. J Child Psychol Psychiatry 1989; 30: 299–308.Google Scholar
Spurkland I, Bjornstad PG, Lindberg H, Seem E. Mental health and psychosocial functioning in adolescents with congenital heart disease. A comparison between adolescents born with severe heart defect and atrial septal defect. Acta Paediatr 1993; 82: 71–76.Google Scholar
Utens EM, Verhulst FC, Erdman RA, Meijboom FJ, Duivenvoorden HJ, Bos E, et al. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. J Psychosom Res 1994; 38: 745–758.Google Scholar
Utens EM, Verhulst FC, Meijboom FJ, Duivenvoorden HJ, Erdman RA, Bos E, et al. Behavioural and emotional problems in children and adolescents with congenital heart disease. Psychol Med 1993; 23: 415–424.Google Scholar
Paridon SM. Congenital Heart Disease: cardiac performance and adaptions to exercise. Ped Ex Sci 1997; 9: 308–323.Google Scholar
Fredriksen PM, Ingjer F, Nystad W, Thaulow E. A comparison of VO2peak between patients with CHD and healthy subjects, all aged 8–17 years. Eur J Appl Physiol Occup Physiol 999; 80: 409–416.
DeMaso DR, Beardslee WR, Silbert AR, Fyler DC. Psychological functioning in children with cyanotic heart defects. Dev Behav Pediatr 1990; 11: 289–294.Google Scholar
O'Dougherty M, Wright FS, Garmenzy N, Loewson RB. Later competence and adaption in infants who survive severe heart defects. Child Dev 1983; 54: 1129–1142.Google Scholar
Achenbach TM. Integrative Guide for the 1991 CBCL/4-18, YSR and TRF-profiles. 1991. Department of Psychiatry, University of Vermont.Google Scholar
Tonstad S, Nøvik TS, Vandvik IH. Psychosocial function during treatment for familial hypercholesterolemia. Pediatrics 1996; 98: 249–255.Google Scholar
Statistical Add-in for Microsoft Excel. User's Guide. University of Leeds, UK: DDU Software, 1993.
Nøvik TS. Validity of the Child Behavior Checklist in a Norwegian sample. Eur Child Adol Psych 1999; 8: 247–254.Google Scholar
Donovan E. The pediatric cardiologist and adolescents with congenital heart disease. Int J Cardiol 1983; 9: 493–495.Google Scholar
Cohn DA, Patterson CJ, Christopoulos C. The family and children's peer relation. Journal of Social and Personal Relationships 1991; 8: 315–346.Google Scholar
Brandhagen DJ, Feldt RH, Williams DE. Long-term psychologic implications of congenital heart disease: a 25-year follow-up. Mayo Clin Proc 1991; 66: 474–479.Google Scholar
Utens EM, Verhulst FC, Duivenvoorden HJ, Meijboom FJ, Erdman RA, Hess J. Prediction of behavioural and emotional problems in children and adolescents with operated congenital heart disease. Eur Heart J 1998; 19: 801–807.Google Scholar
Fredriksen PM, Karhs N, Blaasvaer S, Sigurdsen E, Gundersen O, Roeksund O, et al. The effect of physical training in children and adolescents with congenital heart disease. Cardiology in the Young 2000; 10: 107–114.Google Scholar
Therrien J, Fredriksen PM, Walker M, Granton J, Reid G, Webb GD. A pilot study of exercise training in adult patients with repaired tetralogy of Fallot. Can J Cardiol 2003; 19: 685–689.Google Scholar
Wells FC, Coghill S, Caplan HL, Lincoln C. Duration of circulatory arrest does influence the psychological development of children after cardiac operation in early life. J Thorac Cardiovasc Surg 1983; 86: 823–831.Google Scholar