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Treatment Comfort of Adult Neurologists in Childhood Onset Conditions

Published online by Cambridge University Press:  02 December 2014

M. Oskoui*
Affiliation:
Department of Pediatric Neurology, McGill University Health Centre, Montreal, Quebec, Canada
C. Wolfson
Affiliation:
Research Institute, McGill University Health Centre, Montreal, Quebec, Canada
*
Department of Pediatrics and Neurology & Neurosurgery, McGill University, 2300 Tupper street, A-512, Montreal, Quebec, H3H 1P3, Canada.
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Abstract

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Background:

The majority of children with chronic neurodevelopmental disabilities are surviving to adulthood. Our goal was to assess how prepared and comfortable adult neurologists are in treating young adults with childhood onset chronic neurological conditions and evaluate the difficulty pediatric neurologists experience when transferring these patients to adult care.

Methods:

We conducted a cross-sectional study using two postal surveys of all pediatric and adult neurologists in the province of Quebec, Canada.

Results:

The response rate was 51.5%, with 119 neurologists completing the survey. Half of neurologists agreed that adult neurologists may not have adequate training in childhood onset disorders to prepare them to manage the disorders in adulthood, and 60% of pediatric neurologists reported having difficulty finding an adult provider for their patients. Adult neurologists were least comfortable treating patients with autism, chromosomal or metabolic disorders, and cognitive or behavioral disorders.

Conclusion:

Almost half of those surveyed believed that adult neurologists are not adequately trained to care for this growing patient population. Improving treatment comfort and knowledge among adult neurologists in childhood onset chronic neurological conditions may smooth the transition of these young adults from pediatric to adult care.

Type
Research Article
Copyright
Copyright © The Canadian Journal of Neurological 2012

References

1Blum, RW, Hirsch, D, Kastner, TA, et al.A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002 Dec;110:13046.Google Scholar
2Blum, RW, Garell, D, Hodgman, CH, et al.Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health. 1993 Nov;14(7):5706.Google Scholar
3Plioplys, AV, Kasnicka, I, Lewis, S, Moller, D.Survival rates among children with severe neurologic disabilities. South Med J. 1998 Feb;91(2):16172.Google Scholar
4Crichton, JU, Mackinnon, M, White, CP.The life-expectancy of persons with cerebral palsy. Dev Med Child Neurol. 1995 Jul;37 (7):56776.Google Scholar
5Hunt, GM, Oakeshott, P.Outcome in people with open spina bifida at age 35: prospective community based cohort study. BMJ. 2003 Jun 21;326(7403): 13656.Google Scholar
6Kohler, M, Clarenbach, CF, Bahler, C, Brack, T, Russi, EW, Bloch, KE.Disability and survival in Duchenne muscular dystrophy. J Neurol Neurosurg Psych. 2009 Mar;80(3):3205.Google Scholar
7Binks, JA, Barden, WS, Burke, TA, Young, NL.What do we really know about the transition to adult-centered health care? A focus on cerebral palsy and spina bifida. Arch Phys Med Rehabil. 2007 Aug;88(8):106473.Google Scholar
8Young, NL, Gilbert, TK, McCormick, A, et al.Youth and young adults with cerebral palsy: their use of physician and hospital services. Arch Phys Med Rehabil. 2007 Jun;88(6):696702.Google Scholar
9Donaldson, SI, Grant-Vallone, EJ.Understanding Self-Report Bias in Organizational Behavior Research. J Bus Psych. 2002;17 2: 24560.Google Scholar