Elsevier

Epilepsy & Behavior

Volume 23, Issue 1, January 2012, Pages 90-91
Epilepsy & Behavior

Letter to the Editor
What about dads? An exploratory analysis of depressive symptoms in paternal primary caregivers of children with epilepsy

https://doi.org/10.1016/j.yebeh.2011.10.004Get rights and content

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  • Do subjective and objective measures of stress agree in a clinical sample of youth and their parents?

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    A large body of research demonstrates that adolescent females perceive higher levels of stress compared to their male peers [16]. This sex difference generally appears in adulthood as well [54], however, we did not observe this difference in the current study; this may be related to all parents in the study being the primary caregiver for their child, given previous evidence suggesting that the primary caregiving role may be a more important determinant of psychological distress than biological sex [55]. The results also found female sex to be associated with lower HCC in parents, which is consistent with previous research [49,56].

  • Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers

    2020, Epilepsy and Behavior
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    Mothers of young children with epilepsy (aged 1–7 years) reported poorer sleep quality than fathers [14], and mothers were more likely than fathers to experience sleep disturbances [12]. It has been suggested that this effect is not sex related (i.e. mothers are less likely to cope) but instead is a consequence of which parent is the primary caregiver [16] as in our group. The impact of having a child with DS extends to the parents' social life and relationships with family and friends; this finding has been reported in other studies and was confirmed by our survey.

  • Quality of life and correlating factors in children, adolescents with epilepsy, and their caregivers: A cross-sectional multicenter study from Germany

    2019, Seizure
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    Looking at the single items of the EQ-5D questionnaire, a differentiated pattern of significant sub scores for every factor correlating with a poorer QoL in caregivers became visible. For most tested categories, the item of “anxiety/depression” reached levels of significance, which underlines the strong effect of epilepsy on the mood of caregivers, which has been extensively shown for mothers and fathers in previous studies [22–24]. The item “Self-care” did not reach any level of significance in all analyzed factors, which might be explained by the fact that parents are usually not suffering from chronic illnesses themselves.

  • Parents experience problems in psychological and family functioning two to four years after their child's epilepsy surgery

    2018, Epilepsy and Behavior
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    This may explain why mothers reported more psychological problems than fathers: as primary caregivers, they were confronted more often with their child's difficult situation. This has been suggested previously [2,5], but research including paternal primary caregivers is scarce [29]. Parental hostility and problems in family communication both relate to anger and conflict in interaction (see Appendices 1 & 2).

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