Scaling methods to measure psychopathology in persons with intellectual disabilities

https://doi.org/10.1016/j.ridd.2011.10.023Get rights and content

Abstract

Psychopathology prior to the last four decades was generally viewed as a set of problems and disorders that did not occur in persons with intellectual disabilities (ID). That notion now seems very antiquated. In no small part, a revolutionary development of scales worldwide has occurred for the assessment of emotional problems in persons with ID. The first standardized test to emerge was the Psychopathology Instrument for Mentally Retarded Adults (PIMRA) in 1984. Since that time, an impressive number of measures of general psychopathology have emerged for adults and children as well as for persons across the full range of levels of ID. The purpose of this review was to provide a description of available measures, to review papers published on these measures, and to discuss emerging trends in test development. The trends in this body of information for enhancing differential diagnosis of psychopathology in persons with ID are discussed.

Section snippets

History

The first scale for assessing psychopathology for persons with ID appeared in 1983 (Kazdin, Matson, & Senatore, 1983). The authors describe the Psychopathology Instrument for Adults with Mental Retardation (PIMRA). This scale, which is still in widespread use today and has been translated into many languages, was designed by the second author and modeled after structured interviews such as the Schedule for Affective Disorders and Schizophrenia which were very popular at the time (Endicott &

The scales

Fourteen general measures of psychopathology were located with published studies employing persons with ID. A number of these scales have been studied infrequently. For the purposes of this paper, we are defining infrequently studied scales as those where six or fewer papers have been published. Refer to Table 1 for a list of infrequently studied measures discussed in this paper. The second category is labeled frequently studied scales and is defined as measures with seven or more papers

Final remarks

The development of measures of psychopathology for persons with ID has made great strides in the last three decades. A large number of measures for adults and children have emerged. A few of these measures have been studies extensively in both North America and Europe. One issue that is evident at this point is that no one measure will be sufficient. Measures specific to children and adults with scales for mild and moderate ID as well as other measures for severe and profound ID are needed.

References (175)

  • P.J. Embregts

    Reliability of the Child Behavior Checklist for the assessment of behavioral problems of children and youth with mild mental retardation

    Research in Developmental Disabilities

    (2000)
  • P.J.C.M. Embregts et al.

    Behavior problems in children with mild intellectual disabilities: An initial step towards prevention

    Research in Developmental Disabilities

    (2010)
  • R.L. Findling et al.

    Effectiveness, safety, and pharmacokinetics of quetiapine in aggressive children with conduct disorder

    Journal of the American Academy of Child and Adolescent Psychiatry

    (2006)
  • C. Gustafsson et al.

    A psychometric evaluation of a Swedish version of the psychopathology inventory for mentally retarded adults (PIMRA)

    Research in Developmental Disabilities

    (2005)
  • M.A. Hattier et al.

    The effect of gender and age on repetitive and/or restricted behaviors and interests in adults with autism spectrum disorders and intellectual disability

    Research in Developmental Disabilities

    (2011)
  • H. Hermans et al.

    Characteristics of instruments screening for depression in adults with intellectual disabilities: Systematic review

    Research in Developmental Disabilities

    (2010)
  • H. Hermans et al.

    Instruments assessing anxiety in adults with intellectual disabilities: A systematic review

    Research in Developmental Disabilities

    (2011)
  • J. Hill et al.

    Patterns of emotional and behavioural disturbance associated with autistic traits in young people with severe intellectual disabilities and challenging behaviours

    Research in Developmental Disabilities

    (2006)
  • B. Holden et al.

    The relationship between psychiatric symptomatology and motivation of challenging behaviour: A preliminary study

    Research in Developmental Disabilities

    (2008)
  • M. Horovitz et al.

    Incidence and trends in psychopathology symptoms over time in adults with severe to profound intellectual disability

    Research in Developmental Disabilities

    (2011)
  • O. Hove et al.

    Psychometric properties of Psychopathology checklists for Adults with Intellectual Disability (P-AID) on a community sample of adults with intellectual disability

    Research in Developmental Disabilities

    (2008)
  • J.C. Iverson et al.

    Prevalence of psychopathology among mentally retarded adults

    Research in Developmental Disabilities

    (1989)
  • D.S. Kearney et al.

    Investigating the relationship between challenging behavior, co-morbid psychopathology and social skills in adults with moderate to severe intellectual disabilities in Ireland

    Research in Developmental Disabilities

    (2011)
  • T. Koskentausta et al.

    CBCL in the assessment of psychopathology in Finnish children with intellectual disability

    Research in Developmental Disabilities

    (2004)
  • D.E. Kuhn et al.

    The relationship of social skills as measured by the MESSIER to rumination in persons with profound mental retardation

    Research in Developmental Disabilities

    (2001)
  • G. La Malfa et al.

    Psychopathology and mental retardation: An Italian epidemiological study using the PIMRA

    Research in Developmental Disabilities

    (1997)
  • G. La Malfa et al.

    The relationship between autism and psychiatric disorders in intellectually disabled adults

    Research in Autism Spectrum Disorders

    (2007)
  • G. Lambrechts et al.

    Staff reactions to challenging behavior: An observational study

    Research in Developmental Disabilities

    (2010)
  • G.E. Lancioni et al.

    An overview of intervention options for promoting adaptive behavior of persons with acquired brain injury and minimally conscious state

    Research in Developmental Disabilties

    (2010)
  • K. Lante et al.

    Energy expended by adults with and without intellectual disabilities during activities of daily living

    Research in Developmental Disabilities

    (2010)
  • C. Leung et al.

    Development of a preschoool developmental assessment scale for assessment of developmental disabilities

    Research in Developmental Disabilities

    (2010)
  • O. Linaker

    DSM-III diagnosis compared with factor structure of the Psychopathology Instrument for Mentally Retarded Adults (PIMRA) in an institutionalized, mostly severely retarded population

    Research in Developmental Disabilities

    (1991)
  • O.M. Linaker et al.

    Validity of the schizophrenia diagnosis of the Psychopathology Instrument for Mentally Retarded Adults (PIMRA): A comparions of Schizophrenic patients with and without mental retardation

    Research in Developmental Disabilties

    (1994)
  • H.Y. Liu et al.

    The impact of dietary and tooth-brushing habits to dental caries of special school children with disability

    Research in Developmental Disabilties

    (2010)
  • J.L. Matson et al.

    Reliability of the assessment of dual diagnosis (ADD)

    Research in Developmental Disabilities

    (1998)
  • J.L. Matson et al.

    The convergent validity of the Matson Evaluation of Social Skills for Individuals with Severe Retardation (MESSIER)

    Research in Developmental Disabilties

    (1998)
  • J.L. Matson et al.

    Psychometric properties of the psychometric instrument for mentally retarded adults

    Applied Research in Mental Retardation

    (1984)
  • J.L. Matson et al.

    The effect of stereotypies on adaptive skills as assessed with the DASH-II and Vineland adaptive beahvior scales

    Research in Developmental Disabilites

    (1997)
  • M.G. Aman et al.

    Risperidone effects in the presence/absence of psychostimulant medicine in children with ADHD, other disruptive behavior disorders, and subaverage IQ

    Journal of Child and Adolescent Psychopharmacology

    (2004)
  • M.G. Aman et al.

    Double-blind placebo-controlled study of risperidone for the treatment of disruptive behavior in children with subaverage intelligence

    American Journal of Psychiatry

    (2002)
  • M. Aman et al.

    The Nisonger Child Behavior Rating Form: Typical IQ version

    International Clinical Psychopharmacology

    (2008)
  • K. Asada et al.

    Atypical verbal communication pattern according to others’ attention in children with Williams syndrome

    Research in Developmental Disabilities

    (2010)
  • J.W. Bamburg et al.

    Assessment of schizophrenia in persons with severe and profound mental retardation using the Diagnostic Assessment for the Severely Handicapped (DASH II)

    Journal of Developmental and Physical Disabilities

    (2001)
  • R. Bhattacharyya et al.

    Correlation between physical anomaly and behavioral abnormalilities in Down Syndrome

    Journal of Pediatric Neurosciences

    (2010)
  • A. Boyle et al.

    A cohort study of the prevalence of sleep problems in adults with intellectual disabilities

    Journal of Sleep Research

    (2010)
  • A.V. Brereton et al.

    Psychopathology in children and adolescents with autism compared to young people with intellectual disability

    Journal of Autism and Developmental Disorders

    (2006)
  • K.E. Cherry et al.

    Psychopathology in older adults with severe and profound mental retardation

    American Journal of Mental Retardation

    (1997)
  • K.E. Cherry et al.

    Characteristics of schizophrenia in persons with severe and profound mental retardation

    Psychiatric Services

    (2000)
  • D.J. Chitty et al.

    Prevalence of dual diagnosis in an institution for individuals who are developmentally handicapped

    Behavioral Residential Treatment

    (1993)
  • M.C. Chung et al.

    Assessing the need for challenging behaviour services in an English health district

    Scandinavian Journal of Caring Sciences

    (1997)
  • Cited by (0)

    View full text