Original research
Emerging models for facilitating contact between people genetically related through donor conception: a preliminary analysis and discussion

https://doi.org/10.1016/j.rbms.2015.10.001Get rights and content
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Abstract

Previous research indicates interest among some donor-conceived people, donors and recipient parents in having contact. Outcomes of such contact appear largely, but not universally, positive. This paper seeks to understand better the characteristics of associated support services. Information gathered using the authors' direct experiences and professional and personal networks in different parts of the world indicates the emergence of four main groupings: (i) publically funded services outside of treatment centers; (ii) services provided by fertility treatment or gamete bank services; (iii) services provided privately by independent psychosocial or legal practitioners; and (4) services organized by offspring and/or recipient parents. Key operational features examined were: (i) who can access such services and when; (ii) what professional standards and funding are in place to provide them; and (iii) how ‘matching’ and contact processes are managed. Differences appear influenced variously by the needs of those directly affected, local policies, national legislation and the interests of the fertility services which recruit gamete donors and/or deliver donor conception treatments. The paper is intended to inform fuller debate about how best to meet the needs of those seeking information and contact, the implications for the way that fertility treatment and gametes donation services are currently provided and future research needs.

Keywords

donor-conceived people
donor conception
donors
information exchange/contact
intermediary services

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Marilyn Crawshaw

An Independent Researcher and Practitioner and Honorary Fellow, University of York, Marilyn Crawshaw has long standing professional and academic psychosocial interests in donor conception, surrogacy, cancer-related fertility and adoption. Marilyn has been a Social and Ethical Inspector and External Adviser to the HFEA; was the National Adviser to the UK DonorLink voluntary register for adults affected by donor conception pre-1991 from 2003 to 2013; is a founder member of the British Infertility Counselling Association and editor of its Practice Guide series; and chairs UK PROGAR the multi-agency group concerned with child and family welfare following assisted reproduction.