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Licensed Unlicensed Requires Authentication Published by De Gruyter January 9, 2015

Quality of life in terminally ill patients – a challenge for future research

  • Cornelia Meffert EMAIL logo and Gerhild Becker
From the journal Public Health Forum

Summary

Recent statistics reveal a substantial and even growing need for palliative care in present-day society. Providing adequate pain therapy remains a largely unsolved problem, mainly because of the small number of clinical studies in palliative medicine. Hence, clinical research is urgently needed – and therefore suitable tools to measure outcomes must be developed. Contrary to typical clinical studies, the usual outcome parameters such as decreased mortality and/or morbidity are unsuitable. Future research should focus on developing an instrument which allows to measure quality of life as the central outcome criterion of clinical studies in palliative medicine.

Einleitung

Neuere Statistiken zeigen einen substanziellen und wachsenden Bedarf an palliativer Versorgung in der heutigen Gesellschaft. Eine adäquate schmerztherapeutische Versorgung stellt aufgrund der geringen Anzahl klinischer Studien in der Palliativmedizin ein weitgehend ungelöstes Problem dar. Daher brauchen wir dringend klinische Forschung – und somit geeignete Instrumente zur Outcome-Messung. Im Gegensatz zu,,normalen“ klinischen Studien sind die üblichen Outcome-Parameter wie gesunkene Mortalität und/oder Morbidität ungeeignet. Der Fokus zukünftiger Forschung sollte auf der Entwicklung eines Instruments liegen, das in der Lage ist, Lebensqualität als das zentrale Outcome-Kriterium klinischer Studien in der Palliativmedizin zu messen.

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Published Online: 2015-1-9
Published in Print: 2013-10-1

© 2015 by Walter de Gruyter Berlin/Boston

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