The Taxonomy of Everyday Self-management Strategies (TEDSS): A framework derived from the literature and refined using empirical data

https://doi.org/10.1016/j.pec.2018.08.034Get rights and content
Under a Creative Commons license
open access

Highlights

  • A preliminary self-management framework, derived from literature, was tested using interview data.

  • The Taxonomy of Everyday Self-management Strategies (TEDSS) includes seven broad domains.

  • People with neurological conditions self-manage by using many and varied strategies.

  • TEDSS operationalizes role and emotional management using a patient-lens.

  • TEDSS may be used by health-care providers to tailor self-management support.

Abstract

Objective

To extend our understanding of self-management by using original data and a recent concept analysis to propose a unifying framework for self-management strategies.

Methods

Longitudinal interview data with 117 people with neurological conditions were used to test a preliminary framework derived from the literature. Statements from the interviews were sorted according to the predefined categories of the preliminary framework to investigate the fit between the framework and the qualitative data. Data on frequencies of strategies complemented the qualitative analysis.

Results

The Taxonomy of Every Day Self-management Strategies (TEDSS) Framework includes five Goal-oriented Domains (Internal, Social Interaction, Activities, Health Behaviour and Disease Controlling), and two additional Support-oriented Domains (Process and Resource). The Support-oriented Domain strategies (such as information seeking and health navigation) are not, in and of themselves, goal focused. Instead, they underlie and support the Goal-oriented Domain strategies. Together, the seven domains create a comprehensive and unified framework for understanding how people with neurological conditions self-manage all aspects of everyday life.

Conclusions

The resulting TEDSS Framework provides a taxonomy that has potential to resolve conceptual confusion within the field of self-management science.

Practice Implications

The TEDSS Framework may help to guide health service delivery and research.

Keywords

Adaptation
Chronic disease
Neurological conditions
Qualitative
Self-care
Self-management
Taxonomy
TEDSS framework

Cited by (0)