Original articleViews of Young People With Chronic Conditions on Transition From Pediatric to Adult Health Services
Section snippets
Methods
Q methodology combines quantitative and qualitative methods to investigate the range of possible views about a particular subject. Watts and Stenner [22], in their guide to Q methodological work, recommend it where the answer is “Yes” to the questions “Does it really matter what people…think about this issue?” and “Can revelation of their views really make a difference?” It has been used widely with young people [23], [24], [25], [26], including in studies on health and chronic disease
Results
Figure 1 shows the Q-set development process. A total of 200 statements were discarded because they were study context or condition specific, for example, mentioning specific medications or limitations associated with having a particular condition that may not be relevant across all chronic conditions. After consultation with the young people, the Q-set of 39 statements was finalized (see Table 1).
Forty-four participants were recruited between March 2013 and November 2013; 23 female, 21 male;
Discussion
This research is among the first to use Q methodology with young people from across a broad range of chronic health conditions to identify their views about transition. We identified four clearly distinct views toward transition: a relaxed view of the process (F1: “A laid-back view of transition”); an anxious attitude (F2: “anxiety about transition”); a desire for greater responsibility within and outside health (F3: “Wanting independence and autonomy during transition”); and a focus on social
Acknowledgments
The authors would like to thank all the young people who kindly took part in this study. We would also like to acknowledge the clinicians who helped us recruit young people to this study: Alan Anderson, Laura Baines, Steve Ball, Katherine Barlow, William Bliss, Nicola Brown, Su Bunn, Penny Burt, Tim Cheetham, Denise Chisholm, Lucy Craig, Jean Crosier, Anita Devlin, Simon Doe, Peter Dryden, Anna Eden, Rob Forsyth, Helen Foster, Dee Frost, Hany Gabra, Binu George, Helen Hanson, Sally Harding,
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Conflicts of Interest: The authors have no conflicts of interest or financial disclosures to report.
Disclaimer: The views expressed in this article are those of the authors and not necessarily those of the NHS, the NIHR, or the Department of Health.