Systems of care, featherless bipeds, and the measure of all things

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Abstract

For more than 20 years, the system of care philosophy has comprised a central strategy of service reform in children's mental health at the federal, state, tribal, and local levels. System of care terminology has become widely used in many different service sectors but often without a shared understanding of what a system of care is. This manuscript, the feature article for this special issue of Evaluation and Program Planning, briefly traces the history of the system of care movement, discusses the more widely used definitions in the field of children's mental health, and offers an expanded version of the definition that takes into account the complex nature of systems of care. This manuscript was the product of a process used by the Case Studies of System Implementation research team to identify established system of care communities for inclusion in the research study. The purpose of this manuscript is to describe the process the research team engaged in while developing the revised definition and to open a public dialogue about how to characterize the essential properties of a system of care.

Introduction

Plato's definition of human as animal, biped and featherless was celebrated in ancient Greece. As the story goes, Diogenes of Sinope demonstrated his dissent by plucking a fowl and bringing it into the lecture room with the words, “Here is Plato's human being.” (Laertius, 1979). The dialogue of ancient Greek philosophers regarding the essential properties of human beings and other featherless bipeds provides useful, if humorous, impetus for exploring the definition of systems of care, our understanding of the essential properties of this concept, and its impact on the field of children's mental health.

The system of care concept was initially defined by Stroul and Friedman in 19861 in response to the crisis of inadequate and fragmented services for children with serious emotional disturbance. For more than 20 years, the system of care philosophy has comprised a central strategy of service reform in children's mental health at the federal, state, tribal, and local levels. The impact of the system of care concept is evidenced by the use of this term as a referent in the Surgeon General's report on children's mental health (U.S. Department of Health and Human Services, 1999) and the report of The President's New Freedom Commission on Mental Health (2003). It has been used to frame federal and state legislation (Comprehensive Services Act, 1992, Public Law 102-321, 1992, The California AB 377 Evaluation Project, 1988, Vermont Act 264, 1988) through funding and regulatory mechanisms that enable providers to work with families in a more collaborative, culturally sensitive manner. It is present in court rulings mandating services for children and youth with serious emotional disturbance (Felix v. Cayetano Consent Decree, 1993, Katie, 2002, Rosie, 2006).

Although it originated in the field of children's mental health, the term ‘system of care’ is now in use across the United States as a common referent for other public child-serving sectors such as education (No Child Left Behind Act of 2001), child welfare (U.S. Department of Health and Human Services, 2003a, U.S. Department of Health and Human Services, 2003b), and juvenile justice (Skowyra & Cocozza, 2006). Given the time and distance this concept has traveled since its inception, we should consider whether there exists a common and shared understanding of systems of care. We might also consider whether the definition for systems of care, like Plato's definition of human, should be expanded to provide a more comprehensive understanding of this concept in its current use and application.

The purpose of this paper is to describe the process that our research team used for defining systems of care and to open a public dialogue about how to characterize the essential properties of this concept. An expanded definition of systems of care was developed by the authors as part of a national investigation of system of care implementation funded through the Research and Training Center for Children's Mental Health (2004). This paper reviews the existing definitions for systems of care and presents an expanded definition that attempts to capture the complexity and dynamics of ongoing system development. The authors analyze the components of their definition for the purpose of articulating a logic regarding the essential properties of the system of care concept. The authors believe that clarity around the definition will increase fidelity of system of care implementation across diverse and evolving community contexts. Readers should note that the process and results described in this paper reflect the point in time at which this research study was initiated and aspects of the definition may have since evolved.

The immediate question raised by such an undertaking is, “What use is a definition, much less a redefinition?” Practically, defining a concept facilitates the efficient communication of a set of information. Definitions provide a basis for common understanding of phenomena. For systems of care, clarity about the concept of systems of care facilitates our understanding of the purpose and goals of such a system reform as well as our evaluation of its impact (Rosenblatt, 1998). As a scientific enterprise, defining a concept also opens it to logical, empirical, and experiential challenges. These challenges may serve as catalysts for re-examination and revision of the content and scope of a concept, as well as its lawful relations with other concepts. This has practical implications for service providers and families to the extent that new definitions of concepts are translated into structures, decision rules, and new concepts that are translated into novel action.

There are a number of reasons that this is an appropriate juncture to examine the definition of systems of care. The concept has been redefined since 1986, and multiple versions are currently in use. The initial concept of systems of care was redefined in an updated monograph by Stroul and Friedman (Stroul & Friedman, 1994). The Center for Mental Health Services (CMHS) has subsequently articulated a definition for systems of care that includes processes for family and youth involvement as well as cultural competence.2 Second, the term “systems of care” is sometimes used without specific reference to its definition, such as in the report of The President's New Freedom Commission on Mental Health (2003) and the No Child Left Behind Act (2001), implying shared understanding of its meaning. System of care implementation has been funded in 144 communities nationwide through the federal Comprehensive Community Mental Health Services for Children and Their Families program (Substance Abuse and Mental Health Services Administration, 2008), making this term part of the lexicon of a broad range of public agencies and community-based organizations that may not know either its history or the issues surrounding the development of the concept. Although the concept has been further operationalized by Pires (2002) and Stroul and Blau (2008), such common usage across multiple settings assumes a shared meaning of this term that may or may not be widely held. Finally, recent advances in the scientific understanding of complexity and systems development (Holland, 1995, Plsek, 2003) as well as rapidly shifting demographic, political, and funding landscapes indicate that this is an opportune time to examine the definition of systems of care in the current context.

Section snippets

Review of definitions currently in use

The system of care concept was conceived as an organizational philosophy that involves collaboration across agencies, families, and youth for the purpose of improving access to an expanded array of coordinated community-based services and supports for children with serious emotional disturbance (SED) and their families (Stroul, 1993, Stroul and Friedman, 1986). Historically, this concept emerged from the work of Knitzer (1982) in her seminal book, Unclaimed Children. In response to Unclaimed

Developing an expanded definition of systems of care

The expanded definition of systems of care presented below was developed for a national research study funded through the Research and Training Center for Children's Mental Health (2004). The study used a multi-site embedded case study design to identify strategies that local communities undertake in implementing community-based systems of care. Site selection criteria required the identification of established systems of care specifying that participating systems must have: an identified local

Analysis of essential properties of systems of care

The act of defining determines the limits of a concept, but how can it be determined whether the properties of a definition adequately describe its meaning? The Hodges et al. definition presented above proved useful for its intended research purpose, but the question remains as to whether it is robust enough to be applied beyond the boundaries of this research more broadly to determine whether a broader set of service delivery entities possess the necessary qualities of a system of care. A

Discussion

This exercise of analyzing the component terms of a definition is productive in establishing an understanding of whether and why certain components are essential properties of the concept. A system, however, consists of interrelated parts coming together to form a whole. The concept of holism, taken from the Greek word holos, suggests that as we study some aspect of human society we must remain mindful of its relation to the whole. In research as well as service planning and delivery, we can

Conclusion

This paper has provided a revised definition of systems of care and articulated the authors’ logic around the derivation of each component. The creation of expanded or revised definitions of a concept is driven by attempts to assimilate new experiences and observations into our previously held ideas of a concept. Definitions, like systems, should be adaptive, and a public process of examination allows for incremental changes in our understanding of how systems work and how key concepts are

Acknowledgements

The authors would like to acknowledge the late Dr. Steve Banks for his inspiration and thank Beth Stroul and Robert Friedman for their foundational work defining systems of care.

The research described in this manuscript was jointly funded by the National Institute on Disability and Rehabilitation Research, U.S. Department of Education and the Center for Mental Health Services, Substance Abuse and Mental Health Services Administration under grant number H133B040024. The opinions contained in

Sharon Hodges, PhD, MBA, is an applied organizational anthropologist and Research Associate Professor in the Department of Child and Family Studies at the University of South Florida. Her research focuses on collaboration and cross-sector accountability, strategic resource use among organizations and the reorganization and restructuring of agency relationships that result from voluntary local system development efforts. She has worked with systems of care for more than 15 years.

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    Sharon Hodges, PhD, MBA, is an applied organizational anthropologist and Research Associate Professor in the Department of Child and Family Studies at the University of South Florida. Her research focuses on collaboration and cross-sector accountability, strategic resource use among organizations and the reorganization and restructuring of agency relationships that result from voluntary local system development efforts. She has worked with systems of care for more than 15 years.

    Kathleen Ferreira, MSE, is an Assistant in Research in the Department of Child and Family Studies and a Doctoral Candidate in the College of Education at the University of South Florida. Her dissertation research is focused on multi-disciplinary approaches to mental health service delivery. Her research interests include examining the development and sustainability of mental health service systems; collaboration between multiple agencies in the mental health service system, and the role of various stakeholder groups in the development of successful mental health service systems.

    Nathaniel Israel, PhD, is Director of the Evidence-Based Training Academy for the Child, Youth and Family System of Care within the San Francisco Department of Public Health. His primary interest is intervening in systems to make them more effective for children, youth and families. His current work involves identifying and implementing clinical and evaluation practices that support family-directed, culturally competent, functionally effective service delivery.

    Jessica Mazza, MSPH, was a member of the research team while earning her MSPH through the College of Public Health at the University of South Florida.

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