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Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey

Published online by Cambridge University Press:  15 April 2020

H. Caci ,
M. Doepfner ,
P. Asherson ,
R. Donfrancesco ,
S.V. Faraone ,
A. Hervas  and
M. Fitzgerald
H. Caci*
Affiliation:
Pediatric Department, Hôpitaux Pédiatriques de Nice, CHU Lenval, 57, avenue de la Californie, 06200Nice, France
M. Doepfner
Affiliation:
Department of Child and Adolescent Psychiatry, University of Cologne, Cologne, Germany
P. Asherson
Affiliation:
Social Genetic and Developmental Psychiatry (SGDP), King's College, Institute of Psychiatry, London, UK
R. Donfrancesco
Affiliation:
Child Neuropsychiatry Department, Sandro Pertini Hospital, Rome, Italy
S.V. Faraone
Affiliation:
Departments of Psychiatry and of Neuroscience and Physiology, SUNY Upstate Medical University, Syracuse, New York, NY, USA
A. Hervas
Affiliation:
Child and Adolescent Mental Health Unit, University Hospital Mutua of Terrassa, Barcelona, Spain
M. Fitzgerald
Affiliation:
Department of Psychiatry, Trinity College, Dublin, Ireland
*
*Corresponding author. Tel.: +33 4 92 03 08 71; fax: +33 4 92 03 05 58. E-mail address:caci.h@pediatrie-chulenval-nice.fr (H. Caci).
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Abstract

The Lifetime Impairment Survey assessed impairment and symptoms of attention-deficit/hyperactivity disorder (ADHD) in children/adolescents from six European countries. Parents/caregivers of children/adolescents aged < 20 years with ADHD (ADHD group; n = 535) and without ADHD (control group; n = 424) participated in an online survey. History of ADHD diagnosis was self-reported. ADHD and control groups were compared using impairment and symptom scales; higher scores indicate greater impairment. Mean (SD) age at ADHD diagnosis was 7.0 (2.8) years, following consultation of 2.7 (2.6) doctors over 20.4 (23.9) months. Parents/caregivers (64%; 344/535) reported frustration with some aspect of the diagnostic procedure; 74% (222/298) were satisfied with their child's current medication. ADHD had a negative impact on children/adolescents in all aspects of life investigated. The ADHD group had a higher mean (SD) school impairment score (2.7 [0.7]) compared with the control group (2.1 [0.7]; P < 0.001) and were more likely to be in the bottom of their class (P < 0.001). These data provide insights into impairments associated with ADHD in childhood/adolescence, and identify areas for improvement in its management and treatment.

Keywords

ADHDFunctional impairmentTreatmentDiagnosis
Type
Original articles
Information
European Psychiatry , Volume 29 , Issue 5 , June 2014 , pp. 316 - 323
Copyright
Copyright © Elsevier Masson SAS 2014

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Footnotes

1

These authors both contributed equally.

2

Tel.: +49 221 478 6105; fax: +49 221 478 3962.

3

Tel.: +44 2078 480 078; fax: +44 2078 480 866.

4

Tel.: +39 3397740368; fax: +39 0641435416.

5

Tel.: +1 315 464 3113; fax: +1 315 849 1839.

6

Tel.: +34 937365903.

7

Tel.: +353 086 859 75 47.

References

American Psychiatric Association, Attention-deficit and disruptive behavior disorders. Attention-deficit/hyperactivity disorder. Diagnostic and statistical manual of mental disorders. 4th ed. Text revision Washington, DC: American Psychiatric Association; 2000. p. 85–103.Google Scholar
Barkley, R.A., Fischer, M., Smallish, L., Fletcher, K.Young adult follow-up of hyperactive children: antisocial activities and drug use. J Child Psychol Psychiatry 2004;45:195–211.CrossRefGoogle ScholarPubMed
Barkley, R.A., Fischer, M., Smallish, L., Fletcher, K.Young adult outcome of hyperactive children: adaptive functioning in major life activities. J Am Acad Child Adolesc Psychiatry 2006;45:192–202.CrossRefGoogle ScholarPubMed
Barkley, R.A., Murphy, K.R., Fischer, M.Impairment in major life activities. ADHD in adults: what the science says. New York, NY: Guilford Press; 2008. p. 130–169.Google Scholar
Biederman, J., Faraone, S.V., Spencer, T.J., Mick, E., Monuteaux, M.C., Aleardi, M.Functional impairments in adults with self-reports of diagnosed ADHD: a controlled study of 1001 adults in the community. J Clin Psychiatry 2006;67:524–540.CrossRefGoogle Scholar
Biederman, J., Petty, C.R., Clarke, A., Lomedico, A., Faraone, S.V.Predictors of persistent ADHD: an 11-year follow-up study. J Psychiatr Res 2011;45:150–155.CrossRefGoogle Scholar
Biederman, J., Petty, C.R., Monuteaux, M.C., Fried, R., Byrne, D., Mirto, T.et al.Adult psychiatric outcomes of girls with attention deficit hyperactivity disorder: 11-year follow-up in a longitudinal case-control study. Am J Psychiatry 2010;167:409–417.CrossRefGoogle Scholar
British Healthcare Business Intelligence Association. Available at: http://www.bhbia.org.uk/guidelines/legalandethicalguidelines.aspx. Accessed: 20 November 2012.Google Scholar
Buitelaar, J.K., Barton, J., Danckaerts, M., Friedrichs, E., Gillberg, C., Hazell, P.L.et al.A comparison of North American versus non-North American ADHD study populations. Eur Child Adolesc Psychiatry 2006;15:177–181.CrossRefGoogle ScholarPubMed
Caci, H., Asherson, P., Doepfner, M., Donfrancesco, R., Faraone, S., Fitzgerald, M.et al.Attention deficit/hyperactivity disorder is associated with impairment in everyday life as reported by parents of affected children: results of the European Lifetime Impairment Study. Third International Congress on ADHD, Berlin, Germany. Attention Def Hyperact Disord 2011;2:197 [Abstract P-30-04].Google Scholar
Caci, H.M., Morin, A.J., Tran, A.Teacher ratings of the ADHD-RS IV in a community sample: results from the ChiP-ARD study. J Atten Disord 2013. http://dx.doi.org/10.1177/1087054712473834 [Epub ahead of print].Google Scholar
Coghill, D., Soutullo, C., d’Aubuisson, C., Preuss, U., Lindback, T., Silverberg, M.et al.Impact of attention-deficit/hyperactivity disorder on the patient and family: results from a European survey. Child Adolesc Psychiatry Ment Health 2008;2:31.CrossRefGoogle ScholarPubMed
Döpfner, M., Breuer, D., Wille, N., Erhart, M., Ravens-Sieberer, U.How often do children meet ICD-10/DSM-IV criteria of attention deficit-/hyperactivity disorder and hyperkinetic disorder? Parent-based prevalence rates in a national sample – results of the BELLA study. Eur Child Adolesc Psychiatry 2008;17(Suppl. 1):59–70.CrossRefGoogle Scholar
Dopfner, M., Steinhausen, H.C., Coghill, D., Dalsgaard, S., Poole, L., Ralston, S.J.et al.Cross-cultural reliability and validity of ADHD assessed by the ADHD Rating Scale in a pan-European study. Eur Child Adolesc Psychiatry 2006;15(Suppl. 1):I46–I55.CrossRefGoogle Scholar
DuPaul, G.J., McGoey, K.E., Eckert, T.L., VanBrakle, J.Preschool children with attention-deficit/hyperactivity disorder: impairments in behavioral, social, and school functioning. J Am Acad Child Adolesc Psychiatry 2001;40:508–515.CrossRefGoogle ScholarPubMed
Escobar, R., Montoya, A., Polavieja, P., Cardo, E., Artigas, J., Hervas, A.et al.Evaluation of patients’ and parents’ quality of life in a randomized placebo-controlled atomoxetine study in attention-deficit/hyperactivity disorder. J Child Adolesc Psychopharmacol 2009;19:253–263.CrossRefGoogle Scholar
Escobar, R., Soutullo, C.A., Hervas, A., Gastaminza, X., Polavieja, P., Gilaberte, I.Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 2005;116:e364–e369.CrossRefGoogle ScholarPubMed
European Pharmaceutical Market Research Association. Available at: http://www.ephmra.org/standards-code.aspx. Accessed: 20 November 2012.Google Scholar
Faraone, S.V., Mick, E.Molecular genetics of attention deficit hyperactivity disorder. Psychiatr Clin North Am 2010;33:159–180.CrossRefGoogle ScholarPubMed
Faraone, S.V., Sergeant, J., Gillberg, C., Biederman, J.The worldwide prevalence of ADHD: is it an American condition?. World Psychiatry 2003;2:104–113.Google ScholarPubMed
Gordon, M., Antshel, K., Faraone, S., Barkley, R., Lewandowski, L., Hudziak, J.J.et al.Symptoms versus impairment: the case for respecting DSM-IV's Criterion D. J Atten Disord 2006;9:465–475.CrossRefGoogle ScholarPubMed
Harrison, J.R., Vannest, K.J., Reynolds, C.R.Behaviors that discriminate ADHD in children and adolescents: primary symptoms, symptoms of comorbid conditions, or indicators of functional impairment?. J Atten Disord 2011;15:147–160.CrossRefGoogle ScholarPubMed
Hervas, A., Asherson, P., Caci, H., Doepfner, M., Donfrancesco, R., Faraone, S.et al.Parental experiences of diagnosis and treatment of attention deficit/hyperactivity disorder in children: results from the European Lifetime Impairment Survey. Third International Congress on ADHD, Berlin, Germany. Attention Def Hyperact Disord 2011;2:199 [Abstract P-31-01].Google Scholar
Hinshaw, S.P., Scheffler, R.M., Fulton, B.D., Aase, H., Banaschewski, T., Cheng, W.et al.International variation in treatment procedures for ADHD: social context and recent trends. Psychiatr Serv 2011;62:459–464.CrossRefGoogle ScholarPubMed
Hodgkins, P., Setyawan, J., Mitra, D., Davis, K., Quintero, J., Fridman, M.et al.Management of ADHD in children across Europe: patient demographics, physician characteristics and treatment patterns. Pediatr 2013;172:895–906.Google ScholarPubMed
Market Research Society. Available at: http://www.mrs.org.uk/standards/codeconduct.htm. Accessed: 20 November 2012.Google Scholar
Martenyi, F., Treuer, T., Gau, S.S., Hong, S.D., Palaczky, M., Suba, J.et al.Attention-deficit/hyperactivity disorder diagnosis, co-morbidities, treatment patterns, and quality of life in a pediatric population in central and eastern Europe and Asia. J Child. Adolesc Psychopharmacol 2009;19:363–376.CrossRefGoogle Scholar
Mick, E., Byrne, D., Fried, R., Monuteaux, M., Faraone, S.V., Biederman, J.Predictors of ADHD persistence in girls at 5-year follow-up. J Atten Disord 2011;15:183–192.CrossRefGoogle ScholarPubMed
Morin, A.J., Tran, A., Caci, H.Factorial validity of the ADHD adult symptom rating scale in a French community sample: results from the ChiP-ARDS study. J Atten Disord 2013. http://dx.doi.org/10.1177/1087054713488825 [Epub ahead of print].Google Scholar
Nazar, B.P., Pinna, C.M., Coutinho, G., Segenreich, D., Duchesne, M., Appolinario, J.C.et al.Review of literature of attention-deficit/hyperactivity disorder with comorbid eating disorders. Rev Bras Psiquiatr 2008;30:384–389.CrossRefGoogle ScholarPubMed
Park, J.H., Lee, S.I., Schachar, R.J.Reliability and validity of the child and adolescent functioning impairment scale in children with attention-deficit/hyperactivity disorder. Psychiatry Investig 2011;8:113–122.CrossRefGoogle ScholarPubMed
Polanczyk, G., de Lima, M.S., Horta, B.L., Biederman, J., Rohde, L.A.The worldwide prevalence of ADHD: a systematic review and metaregression analysis. Am J Psychiatry 2007;164:942–948.CrossRefGoogle ScholarPubMed
Riley, A.W., Spiel, G., Coghill, D., Doepfner, M., Falissard, B., Lorenzo, M.J.et al.Factors related to health-related quality of life (HRQoL) among children with ADHD in Europe at entry into treatment. Eur Child Adolesc Psychiatry 2006;15(Suppl. 1):I38–I45.CrossRefGoogle ScholarPubMed
Satterfield, J., Swanson, J., Schell, A., Lee, F.Prediction of antisocial behavior in attention-deficit hyperactivity disorder boys from aggression/defiance scores. J Am Acad Child Adolesc Psychiatry 1994;33:185–190.CrossRefGoogle ScholarPubMed
Seixas, M., Weiss, M., Muller, U.Systematic review of national and international guidelines on attention-deficit hyperactivity disorder. J Psychopharmacol 2012;26:753–765.CrossRefGoogle ScholarPubMed
Wilson, J.M., Marcotte, A.C.Psychosocial adjustment and educational outcome in adolescents with a childhood diagnosis of attention deficit disorder. J Am Acad Child Adolesc Psychiatry 1996;35:579–587.CrossRefGoogle ScholarPubMed
World Association of Research Professionals. Available at: http://www.esomar.org/. Accessed: 20 November 2012.Google Scholar
World Health Organization. International Statistical Classification of Diseases and Related Health Problems. Tenth Revision (ICD-10). Geneva, Switzerland: World Health Organization; 1992.Google Scholar
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