Managing socio-institutional enclosure: A grounded theory of caregivers' attentiveness in hospital care

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Highlights

  • This paper presents a qualitative, grounded theory of attentiveness in hospital oncology care.

  • Our data show nine types of attentiveness.

  • We answer the question why a caregiver practices one type of attentiveness in a certain situation, and not another type.

  • The significance of socio-institutional enclosure emerged as a key theme within the findings.

  • This concerns the space a caregiver may or may not experience to break free from the preponderant institutional orientation towards the physical body of the patient.

Abstract

Purpose

Caregivers' attentiveness is vital for healthcare quality, yet existing research lacks a specific definition and neglects its different forms and aspects.

Methods

This paper presents a qualitative, grounded theory of attentiveness in hospital oncology care.

Results

Our data show nine types of attentiveness. We answer the question why a caregiver practices one type of attentiveness in a certain situation, and not another type. First, it appears to be of crucial importance whether attentiveness is essential for giving care in the opinion of the caregiver. Second, the focus of attention is essential. Care given by doctors and nurses is always ambivalent; on the one hand, it concerns the body, and on the other hand, it involves the person whom that body belongs to. What is the caregiver (mainly) focused on? The significance of socio-institutional enclosure emerged as a key theme within the findings.

Conclusions

Socio-institutional enclosure concerns the space a caregiver may or may not experience to break free from the preponderant institutional orientation towards the physical body of the patient. At the intersection of the influence of socio-institutional enclosure and the substance of the caregivers' concepts of care, three cultures are found that comprise the different types of attentiveness.

Introduction

Attentiveness in care is often dismissed as a bonus, something extra, or as something that one can be good at besides one's real work. Care ethicists however have shown that attention is part of the core business of medicine (Klaver and Baart, 2011). Attentiveness, or attention, has been defined as the quality of individuals to open themselves for the needs of others. Attentiveness meaning the noting of the existence of a need by assuming the position of another person, is seen as the first step to care, which should be followed by a responsibility to respond to this need (Tronto, 1993). Ethics of care researchers such as Conradi (2001), Baart (2005), and Klaver and Baart (2011) emphasize the recognizing meaning of attentiveness. Being attentive does not only have an instrumental function in care (to find out what is needed), but it can also have a good effect on itself. Research has shown (Evans, 2012, Cole-King and Gilbert, 2014) that in order to provide good care - that is good care in the experience of the patient - open attentiveness is of crucial importance. The attention of the caregiver should not always be focused on something functional (i.e. on the diagnosis). At times, care benefits from attentiveness just for the sake of attentiveness because it can create a relationship in which the patient may express himself. It is clear that being attentive is not a matter of individual caregivers but rather depends on several different factors in health care (Iles, 2014), and that it has important implications for the care patients receive. However, as attentiveness is often done tacitly or pre-reflexively, it is not easily accessible, and caregivers do not always refer to it as attentiveness (Klaver and Baart, 2011). To date there has been no published literature on empirical studies of this conceptualization of attentiveness in health care practices. This qualitative study was conducted to address this gap.

Section snippets

Methods

The aim of this study is to formulate a theory that describes attentiveness and its categories and properties as these unfold from the empirical data. This paper presents a grounded theory (Glaser and Straus, 1967) drawing on participant observation on an Oncology Department of a general hospital in The Netherlands. In grounded theory, theoretical concepts are developed during the research process, and there are no pre-formulated hypotheses. However, many scholars have questioned whether

Findings

Caregivers are not free to focus their attention. It is clear that being attentive is not a matter of individual caregivers but rather depends on several different factors in health care (Iles, 2014). Why does a caregiver practice one type of attention in a certain situation, and not another type?

Managing socio-institutional enclosure was the central process identified during analysis of the qualitative data. This concerns the space a caregiver may or may not experience to come loose from the

Discussion

Attentiveness has often been reported as an important factor in health care but there is a lack of adequate and rich concepts and theories for thinking about and supporting it. In this qualitative study we turned to actual care practices in a hospital and examined how attentiveness appears. The analysis of the data showed that attentiveness occurs in different types, which are characterized by a certain goal and a strategy to achieve that goal. Some of these types may contribute to good care

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