Multidisciplinary Parent Education for Caregivers of Children with Autism Spectrum Disorders
Section snippets
Theoretical framework
The theoretical foundation of the multidisciplinary parent education intervention was based on Khanna et al.'s (2011) conceptual model of factors influencing HRQOL among caregivers of children with ASD. This conceptual model was also confirmed in our previous study (Ji et al., 2014). Consistent with this conceptual model, Psychologist Albert Bandura (Luszczynska & Schwarzer, 2005) defined self-efficacy as one's belief in one's ability to succeed in specific situations. This sense of
Purpose of the study
The main aim of the current study was to assess the effectiveness of a multidisciplinary parent education program designed to improve health-related quality of life in caregivers of children with ASD.
Research Design
This research was conducted as a quasi-experimental study to assess the effectiveness of a multidisciplinary parent education program, prepared to improve health-related quality of life for caregivers of children with ASD.
Sample
This is a quasi-experimental study, conducted in two autism rehabilitation centers in Hunan Province of China from June to July 2013. The study sample consisted of 50 caregivers of children with ASD in two autism rehabilitation centers (Ai-meng rehabilitation center and
Socio-Demographic Variables of Caregivers and Children With ASD
The socio-demographic information collected from the caregivers included: age, gender, educational level, religious belief, marital status, caregiver-child relationship, place of residence, employment status, number of children, and family income and caring time (hours spent caring for children with ASD per day). Participants were also asked to answer a personal-health questionnaire to identify their child's age, gender, rehabilitation time, age of diagnosis and payment of medical expenses.
Short Form-36 (SF-36)
The
Results
There were 22 eligible caregivers allocated to the intervention group and 20 to the wait-list control group. Caregivers' average age was 34.10 years, 90% were female, 93% were married, 98% had no religious belief, 83% were the mothers, 76% were unemployed, and 50% were living in a small town or rural area. The average caring time was 18.62 hours. The proportion of caregivers who reported that they had received high school or higher education was 83% and 62% of families had income of less than
Discussion
The purpose of this study was to determine the efficacy of multidisciplinary parent education on HRQOL for caregivers of children with ASD in a controlled quasi-experimental design. Results indicate that there are significant differences in measures of mental HRQOL, family functioning, self-efficacy and positive coping style for caregivers in the multidisciplinary parent education condition compared with those in the wait-list control condition. However, there were no significant differences in
Conclusions
The results of this study have demonstrated that multidisciplinary parent education can be effective in reducing family problems, and improving positive coping style, self-efficacy and mental HRQOL in caregivers with children with ASD. Parent education is increasing in China. Implementing such parent education programs in this area will be effective in improving quality of life and well-being for caregivers of children with ASD.
Acknowledgment
This research was supported by Central South University (CX2012B083) awarded to Binbin Ji.
References (50)
Assessing Chinese adolescents' social support: The multidimensional scale of perceived social support
Personality and Individual Differences
(2000)- et al.
Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong
Social Science & Medicine
(2010) - et al.
Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome
American Journal of Mental Retardation: AJMR
(2004) - et al.
Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism
Health and Quality of Life Outcomes
(2006) Diagnostic and statistical manual of mental disorders
(2000)Autism in Australia
Prevalence of autism spectrum disorders-autism and developmental disabilities monitoring network, 14 sites, United States, 2008
Statistics of autism in China
Self-efficacy: The exercise of control
(1997)- et al.
Risk factor for potentially harmful informal caregiver behavior
Journal of the American Geriatrics Society
(2005)
An exploratory examination of the effects of support groups on the wellbeing of parents of children with autism-I: General counselling
Journal of Applied Health Behavior
Development and testing of the effects of support groups on the well-being of parents of children with autism
Journal of Applied Health Behavior
Family resources and successful adaptation to autistic children
Prevalence of autism spectrum disorders
The Reliability and validity of the Chinese version of the Caregiver Burden Inventory
Nursing Research
Impact of a multidisciplinary parent education program on families of children recently diagnosed with an ASD
The McMaster family assessment device
Journal of Marital and Family Therapy
Evaluation reliability and validity of SF-36 in patients with chronic heart failure
Chinese Journal of Rehabilitation Medicine
Caregiver burden and related factors in caregivers of children with autism
Chinese Journal of Behavior Medicine & Brain Science
Predictors of Health-Related Quality of Life in Chinese Caregivers of Children with Autism Spectrum Disorders: A Cross-Sectional Study
Archives of Psychiatric Nursing
Autism spectrum disorder: Parenting stress, family functioning and health related quality of life
Families, Systems & Health
Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders
Journal of Autism and Developmental Disorders
Prevalence of autism spectrum disorders in a total population sample
The American Journal of Psychiatry
Maternal self-efficacy and associated parenting cognitions among mothers of children with autism
American Journal of Orthopsychiatry
Health-related quality of life of parents of children with high-functioning autism spectrum disorders
Focus on Autism and Other Developmental Disabilities
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