Review article (meta-analysis)Measuring Participation After Stroke: A Review of Frequently Used Tools
Section snippets
Methods
This systematic review was restricted to published research articles on patients with a diagnosis of stroke and a reported assessment of participation. The review included case studies, cohort studies, and randomized controlled trials. Because the aim of the review was to identify the tools that are currently being used to measure participation in clinical stroke studies, we excluded validation studies. We also excluded multiple reports of the same study, although 1 study was included twice
Results
This review identified 36 different participation measures. The 5 most frequently used measures were the SIS,24, 25 London Handicap Scale (LHS),26, 27 the Assessment of Life Habits (LIFE-H),28, 29 the Frenchay Activities Index (FAI),30 and the ACS,31 accounting for 53% of the studies reporting to measure participation (table 1).
The psychometric properties of each of the most frequently used tools identified are outlined in table 2. Not one measure met all psychometric criteria. The interrater
Discussion
In this review, we identified and critically evaluated the most frequently used measures of participation in clinical stroke studies. Past reviews of participation measures have been conducted, but this review is unique in that it focused specifically on participation measures used with stroke survivors, and it identified new participation measures that have been developed and used in recent years. Further, the constructs of the most frequently used tools were evaluated relative to the ICF
Conclusions
This review identified and critically evaluated 5 participation measures used frequently in clinical stroke studies. The 5 participation measures were systematically linked to the ICF Activities and Participation domains. The LIFE-H, the ACS, and the SIS covered the most ICF domains of Activities and Participation. The domains covered most frequently belonged to the Community, Social and Civic Life, Domestic Life, and Mobility. The domains covered least were Learning and Applying Knowledge,
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2021, Brazilian Journal of Physical TherapyCitation Excerpt :LIFE-H (3.1) addresses seven of the nine domains of the ICF Activity and Participation component; the exceptions are Learning and applying knowledge and General tasks and demands.5 SIS (3.0) addresses only five domains of the Activity and Participation component: Learning and applying knowledge, Communication, Mobility, Self-care, and Domestic life.5 SS-QOL addresses eight domains; the exception is General tasks and demands.8
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2021, Archives of Physical Medicine and RehabilitationCitation Excerpt :For all other instruments, up to 10 articles were found, with a range from 1 article for the Modified Ashworth Scale (MAS)135 to 10 articles for the FIM.100-102,115,136-141 Included articles consisted of 37 reviews (16 of which were systematic reviews100,103-105,110-112,115,116,119,125,126,142-144), 101,102,106-108,113,117,118,122,127,135,136,138-141,146-148,160 18 original reports,87,109,120,121,123,124,129-134,145149,151-154 and 2 panel recommendations.114,150 Stroke was the focus of 29 articles, 87,103,104,108,109,111,112,115,116,118-121,124,126-131,134137,143-150,153 8 articles focused on MS,106,113,114,133,141,151,152,160 6 articles focused on SCI,100-102,132,136,145 3 articles focused on TBI,139,140,154 2 articles focused on injuries (general),122,138 and 1 article each for Parkinson disease,107 burns,123 spasticity,135 cerebral palsy,110 and cervical spondylotic myelopathy.117
Supported by a La Trobe University Postgraduate Research Scholarship, a Florey Institute of Neuroscience and Mental Health Top-up Scholarship, and a Stroke Society of Australasia Scientific Award; and by an Australian Research Council Future Fellowship (FT0992299) and the Victorian Government’s Operational Infrastructure Support Program. The funding sources had no role in conduct of the study or writing of the report.
No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit on the authors or on any organization with which the authors are associated.