Chapter 32 The measurement of health-related quality of life for use in resource allocation decisions in health care

https://doi.org/10.1016/S1574-0064(00)80045-1Get rights and content

Abstract

An important consideration when establishing priorities in health care is the likely effect that alternative allocations will have on the health-related quality of life (HRQoL) of the relevant population. This chapter considers some of the important issues surrounding the description and valuation of HRQoL. It discusses six main questions that need to be addressed when measuring HRQoL: What is to be valued?; How is it to be described?; How is it to be valued?; Who is to value it?; How are values for all health states to be generated?; and How are valuations to be aggregated? Since it is difficult to answer many of these questions on theoretical grounds alone, the chapter considers whether the existing empirical evidence can provide more definitive answers. Many important yet unresolved issues emerge and directions for future research are suggested. It is argued that this research agenda should have the gathering and analysis of qualitative data at its forefront.

References (138)

  • DolanP.

    The effect of experience of illness on health state valuations

    Journal of Clinical Epidemiology

    (1996)
  • DolanP.

    The measurement of individual utility and social welfare

    Journal of Health Economics

    (1998)
  • DolanP. et al.

    Valuing health states: A comparison of methods

    Journal of Health Economics

    (1996)
  • DolanP. et al.

    The time trade-off: A note on the effect of lifetime reallocation of consumption and discounting

    Journal of Health Economics

    (1997)
  • DolanP. et al.

    Mapping visual analogue scale scores onto time trade-off and standard gamble utilities

    Social Science and Medicine

    (1997)
  • DonaldsonC.

    Willingness to pay for publicly-provided goods: A possible measure of benefit

    Journal of Health Economics

    (1990)
  • FrobergD.G. et al.

    Methodology for measuring health state preferences III: Population and context effects

    Journal of Clinical Epidemiology

    (1989)
  • GafniA. et al.

    Economics, health and health economics: HYEs versus QALYs

    Journal of Health Economics

    (1993)
  • HornbergerJ.C. et al.

    Variability among methods to assess patients well-being and consequent effect on a cost-effectiveness analysis

    Journal of Clinical Epidemiology

    (1992)
  • JohannessonM.

    Quality-adjusted life-years versus healthy-years equivalents: A comment

    Journal of Health Economics

    (1995)
  • LoomesG.

    The myth of the HYE

    Journal of Health Economics

    (1995)
  • LoomesG. et al.

    The scope and limitations of QALY measures

    Social Science and Medicine

    (1989)
  • McKeownT.

    The direction of medical research

    Lancet

    (1979)
  • MehrezA. et al.

    An empirical evaluation of two assessment methods for utility measurement for life years

    Socio-Economic Planning Sciences

    (1987)
  • MorrisonG.C.

    HYE and TTO: What is the difference?

    Journal of Health Economics

    (1997)
  • AndresenE.M. et al.

    Comparing the performance of health status measures for healthy older adults

    Journal of the American Geriatric Society

    (1995)
  • ArrowK.J.

    Social Choice and Individual Values

    (1951)
  • BarrR.D. et al.

    A multi-attribute approach to health status in survivors of acute lymphoblastic leukemia in childhood

    American Journal of Paediatric Hematological Oncology

    (1994)
  • BennetK. et al.

    Methodologic challenges in the development of utility measures of health related quality of life in rheumatoid arthritis?

    Controlled Clinical Trials

    (1991)
  • BleichrodtH. et al.

    The validity of QALYs: an experimental test of constant proportional trade-off and utility independence

    Medical Decision Making

    (1996)
  • BleichrodtH. et al.

    An experimental test of a theoretical foundation for rating scale valuations

    Medical Decision Making

    (1997)
  • BleichrodtH. et al.

    Characterizing QALYs by risk neutrality

    Journal of Risk and Uncertainty

    (1997)
  • BrazierJ. et al.

    A comparison of five multi-attribute scales

  • BrazierJ. et al.

    A checklist for judging preference-based measures of health related quality of life: Learning from psychometrics

    Health Economics

    (1999)
  • BrazierJ. et al.

    Testing the validity of the Euroqol and comparing it with the SF36 health survey questionnaire

    Quality of Life Research

    (1993)
  • BrazierJ. et al.

    Using the SF-36 and EuroQol on an elderly population

    Quality of Life Research

    (1996)
  • BroomeJ.

    Weighing Goods

    (1991)
  • BuckinghamK. et al.

    A theoretical and empirical classification of health valuation techniques

  • van BusschbachJ.

    The validity of QALYs

  • CairnsJ.

    Future discounting: health, wealth and time preference

    Project Appraisal

    (1992)
  • CairnsJ. et al.

    Developing QALYs from condition-specific outcome measures

  • CamererC.

    Individual decision-making

  • CassilethB.R. et al.

    Psychosocial status in chronic illness: A comparative analysis of six diagnostic groups

    New England Journal of Medicine

    (1984)
  • CookJ. et al.

    A cost utility analysis of treatment options for gallstone disease: Methodological issues and results

    Health Economics

    (1994)
  • CulyerA.J. et al.

    QALYs versus HYEs

    Journal of Health Economics

    (1993)
  • CurrimI.S. et al.

    A comparative evaluation of multi-attribute consumer preference models

    Management Science

    (1984)
  • DalyE. et al.

    Measuring the impact of menopausal symptoms on quality of life

    British Medical Journal

    (1993)
  • DanielsN.

    Is the Oregon rationing plan fair?

    Journal of the American Medical Association

    (1991)
  • DolanP.

    Modelling valuations for EuroQol health states

    Medical Care

    (1997)
  • DolanP.

    Aggregating health state valuations

    Journal of Health Services Research and Policy

    (1997)
  • Cited by (176)

    • Quality of Life After Radical Cystectomy

      2018, Urologic Clinics of North America
    View all citing articles on Scopus
    View full text