Do nurses and parents of children with chronic conditions agree on parental needs?
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Using a Parent Coordinator to Support the Role of the Pediatric Nurse Practitioner in Care Coordination
2018, Journal of Pediatric Health CareCitation Excerpt :In an article about children with chronic conditions, more nurses identified parents as having support needs and information needs than the parents did. Parents, on the other hand, identified more community service needs than the nurses did (Graves & Hayes, 1996). Because of these issues, we chose a parent of a child with a chronic illness for this nonclinical role.
Validity and reliability of the Japanese version of the family needs survey
2013, Research in Developmental DisabilitiesCitation Excerpt :Promoting family involvement in decisions about services and supports would be enabled by a culturally appropriate mechanism for assessing family needs (Bailey & Blasco, 1990; Bailey, Blasco, & Simeonsson, 1992; Bailey & Simeonsson, 1988). This is especially true considering some studies have shown that family-identified needs are not necessarily the same as those identified by professionals (Garshelis & McConnell, 1993; Graves & Hayes, 1996). One instrument developed to enable parent-professional collaboration is the Family Needs Survey (FNS), designed to assess the functional needs of parents with young children with disabilities.
Comparisons of Needs, Need Responses, and Need Response Satisfaction of Mothers of Infants in Neonatal Intensive Care Units
2007, Journal of Pediatric NursingChildren who require long-term ventilation: Staff education and training
2004, Intensive and Critical Care NursingRefinement of an Instrument to Measure the Needs of Parents of Sick Children in the Context of Family Centered Care
2018, Journal of Pediatric NursingCitation Excerpt :Measures assessing parents' report on their experience with FCC have included similar types of measures (Curley et al., 2013). The items in these parent needs studies typically have relevance to the specific settings such as preterm units or emergency departments; objectives of the studies such as comparing parents and staff reported needs in hospitalized young children; diseases such as cancer or end stage renal disease (ESRD); conditions such as acquired traumatic brain damage; and in countries such as Iceland, Sweden, England, Ireland, Australia, Jordan and China (Arabiat & Altamimi, 2012; Bragadottir, 1998; Graves & Hayes, 1996; Kerr et al., 2004; Kristjansdottir, 1991; Kuan, 2000; Pagnamenta & Benger, 2008; Ramritu & Croft, 1999; Shields et al., 2003; Shields et al., 2004; Shields & Nixon, 2004; Tran, Medhurst, & O'Connell, 2009; Ziegert & Fridlund, 2001). In this study, the investigators aimed to finalize a valid and reliable instrument that can be translated easily, is conceptually simple, and can be used across settings would be useful.
Needs of families with children with cerebral palsy in latvia and factors affecting these needs
2020, Journal of Personalized Medicine