Coping styles and locus of control as predictors for psychological adjustment of adolescents with a chronic illness
Introduction
A chronic illness may interfere with the developmental tasks of adolescents by making them more vulnerable to psychological and social problems (e.g. Gortmaker, Walker, Weitzman, & Sobol, 1990; Lavigne & Faier-Routman, 1992). However, there is wide variation in the psychosocial functioning of adolescents with a chronic illness (Lavigne & Faier-Routman, 1993). The majority of these adolescents function quite well, but a substantial subgroup develop clinically significant psychological or social problems. Several models have been developed to identify factors that contribute to this variation (e.g. Garmezy, Masten, & Tellegen, 1984; Pless & Perrin, 1985; Stein & Jessop, 1982). Wallander, Varni, Babani, Banis, and Wilcox (1989), who put mediating factors in psychosocial adjustment in a risk-resistance framework elaborated one of the most detailed models. They identified disease/disability parameters, functional dependence and psychosocial stressors as risk factors, while resistance factors included intrapersonal factors (e.g. temperament, problem solving ability), social-ecological factors (e.g. family environment, family members’ adaptation, social support), and stress processing factors (cognitive appraisal and coping strategies).
Resistance factors are thought to moderate the negative effects of risk factors on psychosocial adjustment besides their direct relation with psychosocial adjustment. Therefore, resistance factors are key parameters in preventing adjustment problems of chronically ill adolescents. This is confirmed in a meta-analysis carried out by Lavigne and Faier-Routman (1993), who found that resistance factors such as family/parent or child measures were stronger predictors in relation to child adjustment than disease/disability parameters were.
As identified in the model of Wallander et al. (1989), increasing attention is being paid to the relationship between stress-processing factors and the psychosocial adjustment of children and adolescents with a chronic disease. Lavigne and Faier-Routman (1993) illustrated the importance of coping as a mediating factor by reporting relatively high correlations between coping and adjustment. The mediating effect may vary between coping strategies. This was demonstrated by Spirito, Stark, Williams, Stamonlis, and Alexan (1988), who found that children with a chronic disease who were referred for adjustment problems used coping strategies that differed from those of children with a chronic disease and no apparent adjustment problems. Children with adjustment problems were more likely to use social withdrawal and wishful thinking than children without apparent adjustment problems were. Within this context, researchers have discussed categories of coping strategies that reflect effective coping. People with effective coping styles generally deal directly with the stressor by using active coping strategies. For example, Jorgensen and Dusek (1990) demonstrated in a healthy sample that optimally adjusted adolescents exhibited a higher percentage of active coping efforts (i.e. making decisions, seeking social support, and talking about problems with friends) than psychosocially less adjusted peers. Active coping is also associated with better illness-related adjustment (Gil, Williams, Thompson, & Kinney, 1991; Grey, Cameron, & Thurber, 1991). Avoidance or depressive coping behaviors characterizes people with less effective coping styles. Frank, Blount, and Brown (1997) found that avoidance coping and depressive attitudes predicted the risk for adjustment difficulties, that is depression and anxiety, in children with cancer. Likewise, Grey et al. found that avoidance was correlated with worse adjustment in children and adolescents with diabetes mellitus. In sum, the results of studies of coping in pediatric populations generally have favored the efficacy of more active efforts over more passive coping.
In addition to coping strategies, the appraisal of stress is a stress-processing factor that mediates between risk factors and adjustment. Specifically, expectations of control over one's environment—the locus of control (LOC)—seem to be a mediator in adaptation. Research suggests that persons with an internal LOC are better adjusted than persons with an external LOC are (e.g. Benson & Deeter, 1992; Steinhausen, Schindler, & Stephan, 1983). Also, an internal LOC seems to be predictive for illness-related adjustment (e.g. Jacobson et al., 1990; Miles, Sawyer, & Kennedy, 1995).
Although relevant research has been done with regard to coping and LOC as resistance factors in relation to psychosocial adjustment, several methodological problems limit the conclusions of these investigations. First, research specifically pertaining to adolescents is scarce. In most studies, results are presented for a group of children and adolescents with a broad age-range. Consequently, developmental differences in cognitive appraisal and in the use of coping strategies are masked. These stress-processing factors develop with age: coping strategies of children differ from coping strategies of adolescents (Carlson, Ricci, & Shade-Zeldow, 1990; Compas, Malcarne, & Fondacaro, 1988; Reid, Dubow, & Carey, 1995). Second, as far as we know, social adjustment has been outside the scope of most studies regarding resistance factors in chronically ill adolescents. Usually, psychological maladjustment factors such as behavior problems or depression are studied, but social maladjustment factors, such as social anxiety or social skills, have been rarely included. Finally, literature on coping in chronic illness focuses mainly on coping with illness-specific situations. Less attention has been given to the general coping styles of chronically ill adolescents. General coping styles may be more predictive for the psychosocial development of chronically ill adolescents than illness-related coping, because these styles reflect how the adolescents cope with developmental tasks. Moreover, “no current research suggests that children cope differently with illness-related stressors than with general stressors” (cited from Ryan-Wenger, 1996).
Therefore, the purpose of this study is to examine the contribution of two relevant resistance factors in the prediction of psychological and social adjustment of chronically ill adolescents: coping styles and LOC. The age-range is restricted to 13–16 years. In addition to psychological functioning variables, i.e. behavior problems and global self-esteem, we included several social adjustment variables: social activities, social self-esteem, social anxiety, and social skills. Adolescents with a variety of chronic conditions were included in the current study. Generally, investigators have failed to find an association of psychosocial functioning with diagnosis; the chronicity of the condition appears to be the common factor associated with psychosocial maladjustment (Siefert, Wittman, Farquar, & Talsma, 1992; Stein & Jessop, 1989; Wallander et al., 1989).
Section snippets
Participants
All adolescents who were under medical care of the Wilhelmina Children's Hospital for a chronic physical condition and who met our inclusion criteria, be described elsewhere in this section, were approached to participate in our study. A group of 124 adolescents and their parents got a letter about our study and were asked to participate. Within 2–4 weeks, we phoned to ask their reaction. Six families could not be traced, and 34 families did not want to participate. The main reasons for
Preliminary analyses
Comparison of regression analyses with and without diagnoses showed that the inclusion of diagnosis as dummy variables did not affect the interpretation of our results, that is, it did not affect the predictive value of the stress-processing variables for psychosocial adjustment. Therefore, subsequent analyses collapse across diagnostic group.
Full regression model
Together, age, gender, and stress-processing factors predicted most aspects of psychosocial adjustment (Table 3). Except for social activities, the model
Discussion
In this study, psychosocial functioning of chronically ill adolescents was significantly related to stress-processing factors.
Coping styles were significantly associated with social adjustment, global self-esteem and externalizing behavior problems. The coping style confrontation, characterized by active and purposeful problem-solving, seems to be the most important determinant for positive psychosocial functioning, as reflected in this study by a high social self-esteem, the use of adequate
References (47)
- et al.
The scale for interpersonal behavior and the Wolpe-Lazarus assertiveness scaleA correlational comparison in a non-clinical sample
Personality and Individual Differences
(1990) - et al.
The relationship between social skills and psychosocial functioning in early adolescence
Personality and Individual Differences
(1994) - et al.
Psychometric properties of the Matson evaluation of social skills with youngsters (MESSY) with emotional problems and self-concept in deaf children
Journal of Behavioral Therapy and Experimental Psychiatry
(1985) - et al.
Development of a rating scale to measure social skills in childrenThe Matson evaluation of social skills with youngsters (MESSY)
Behaviour Research and Therapy
(1983) - et al.
Peer interaction in adolescents with a chronic illness
Personality and Individual Differences
(2000) - et al.
Developmental and situational differences in coping among children and adolescents with diabetes
Journal of Applied Developmental Psychology
(1995) - et al.
What diagnosis does not tellThe case for a non-categorical approach to chronic illness in childhood
Social Science and Medicine
(1989) - et al.
Correlates of psychopathology in sick childrenAn empirical model
Journal of the American Academy of Child Psychiatry
(1983) Manual for the child behavior checklist/4–18 and 1991 profiles
(1991)- et al.
De Schaal voor Interpersoonlijk GedragSIG (The scale for interpersonal behavior: SIB)
(1984)
Moderators of the relation between stress and depression in adolescents
School Counselor
De Utrechtse Coping Lijst voor Adolescenten (The Utrecht Coping List for Adolescents)
Kind en Adolescent
Sociale vaardigheid van adolescenten in kaart gebracht [Mapping the social skills of adolescents]
Kind en Adolescent
Factor validation of the Matson evaluation scale of social skills with youngsters (MESSY). Poster presented at the annual congress of the society for research in child and adolescent psychopathology (SRCAP)
Psychosocial aspects of disability in children
Pediatrician
Statistical power analysis for the behavioral sciences
Coping with stress during childhood and adolescence
Psychological Bulletin
Coping with stressful events in older children and young adolescents
Journal of Consulting and Clinical Psychology
Attributions, coping and adjustment in children with cancer
Journal of Pediatric Psychology
The study of stress and competence in childrenA building block for developmental psychopathology
Child Development
Sickle cell disease in children and adolescentsThe relation of child and parent pain coping strategies to adjustment
Journal of Pediatric Psychology
Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents
Pediatrics
Coping and adaptation in children with diabetes
Nursing Research
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