Developing interventions for chronically ill patients: Is coping a helpful concept?

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Abstract

In this review, the role of coping in the development of psychosocial interventions for chronically ill patients is discussed. After summarizing the theoretical issues involved in the translation of the coping concept into an intervention, a review is undertaken of 35 studies concerned with the impact of interventions aimed at improving coping on patients' quality of life. These studies concern seven different chronic disease types (AIDS, asthma, cancer, cardiovascular diseases, chronic pain, diabetes, and rheumatoid arthritis) and show explicit consideration of attempts to manage illness in terms of coping to be rare. Many studies nevertheless address the equivalent of coping, namely behaviors and/or cognitions intended to deal with an illness situation appraised as stressful. The results of these studies are encouraging, although largely limited to the improvement of one or two particular coping strategies and problem-focused strategies in particular. It is argued that in order to expand on these initially positive findings, greater and more explicit consideration should be given to the potential of the coping concept for intervention with the chronically ill. The appraisal of stressful situations, the use of coping resources, and the strategic application of particular coping strategies should, for example, be given more careful consideration.

Section snippets

Theoretical framework

Chronic illness confronts a patient with numerous threats and challenges which may include the need to preserve a reasonable emotional balance and a satisfactory self-image, the need to maintain a sense of competence and mastery, the need to sustain relationships with family and friends, and preparation for an uncertain future (Moos & Schaefer, 1984). Diagnostic uncertainties, disability, dependency, social stigma, life-style changes, and other self-management tasks have also been identified as

Selection of studies

Our original intention was to include only studies that address coping explicitly as either an outcome variable (interventions aimed at improving coping) or as a mediating variable (interventions aimed at improving well-being or quality of life via coping). In addition, the interventions had to be evaluated using a controlled design. Our belief was that only studies that meet these criteria allow us to properly evaluate the possibilities and limitations associated with translating coping theory

Results

One of the goals of the present study was to determine which aspects of the coping process (e.g., coping strategies, coping styles, appraisal, coping resources) appear to be most relevant for interventions. Which aspects of coping appear to be amenable to interventions and which aspects have the most impact on outcome measures? As stated earlier, there is only one review of interventions aimed at coping with chronic illness (Devins & Binik, 1996). In this survey, the traditional headings of

Discussion

Our review shows a coping approach to offer a promising framework for the development of psychosocial care programs for chronically ill patients. The unique contribution of a coping perspective lies in its emphasis on the ongoing adaptive process that confronts patients with a chronic disease. However, in order to capitalize on that potential an effort should be made to study more systematically and more explicitly how coping can be improved by using particular (mostly, cognitive-behavioral)

Acknowledgements

This research was supported by a grant from the Netherlands Organization for Scientific Research, section Medical Studies. The authors wish to thank Henk-Jan Conradi for his help in preparing the data for this study. They also wish to express their gratitude to the participants, most notably Susan Folkman, in the workshop on “Developing and evaluating interventions aimed at coping and social support of chronically ill patients” (organized in Utrecht, The Netherlands, October 1996) for sharing

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