Clinical studyHealth-related quality of life in patients with human immunodeficiency virus infection in the United States: results from the HIV cost and services utilization study☆
Section snippets
Material and methods
We studied a national probability sample of adults with known HIV infection who made at least one visit to a nonmilitary, nonprison medical provider (other than an emergency department) from January 5 to February 29, 1996 (in one metropolitan area the start was delayed until March) 18, 19. Of the 4,042 eligible patients, 71% completed the standard baseline interview and are included in our analyses.
Results
The interview was completed by 2,864 patients, representing an estimated 231,400 adults with known HIV infection. Their ages ranged from 18 to 77 years [mean (± SD) of 39 ± 9 years]; 89% were younger than 50 years (Table 1). Seventy-seven percent of those represented by the sample were men, 49% were non-Hispanic white, 33% were African-American, and 15% were Hispanic. About half of the population represented by the sample had completed some college, and 46% reported household incomes of $10,000
Discussion
This study examined health-related quality of life among a nationally representative sample of adults receiving care for HIV disease in the United States. We observed that physical functioning and emotional well-being among patients with symptomatic HIV disease, or who had AIDS, were worse than for patients with several other chronic diseases.
Several studies have found that physical functioning is worse in persons with AIDS compared with patients who have less advanced HIV disease 8, 11, 32.
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2019, American Journal of Kidney DiseasesCitation Excerpt :PROMs are particularly relevant to the care and health of patients with kidney disease. Studies have shown that patients with end-stage kidney disease (ESKD) have poorer functional status than those with other chronic conditions and that providers are largely unaware of the presence and severity of these symptoms.10,11 In the Standardized Outcomes in Nephrology (SONG) initiative, a multidisciplinary effort between clinicians, researchers, and patients to establish a shared set of outcome measures across the spectrum of kidney disease, patients with ESKD have ranked PROMs, reporting, for example, that self-reported quality of life holds greater weight than long-term survival.12
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The HIV Cost and Services Utilization Study is conducted under cooperative agreement HS08578 with the Agency for Healthcare Research and Quality. Additional support was provided by the Health Resources and Services Administration, the National Institute for Mental Health, the National Institute for Drug Abuse, the National Institutes of Health Office of Research on Minority Health through the National Institute for Dental Research, the Robert Wood Johnson Foundation, Merck and Company, Glaxo-Wellcome, and the National Institute on Aging.