ArticleLife satisfaction and well-being measures in ventilator assisted individuals with traumatic tetraplegia
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Conventional Respiratory Management of Spinal Cord Injury
2020, Physical Medicine and Rehabilitation Clinics of North AmericaCitation Excerpt :Age also negatively impacts subjective well-being.77 In a study by Hall and colleagues78 who evaluated individuals with chronic C1-C4 SCI tetraplegia 14 and 24 years postinjury, the quality of life was rated as high in both ventilator-dependent and autonomously breathing individuals. Moreover, Bach and Tilton79 found that long-term life satisfaction and well-being were considered to be positive by most individuals with tetraplegia, ventilator-dependent or not.
Noninvasive Respiratory Management of Spinal Cord Injury
2020, Physical Medicine and Rehabilitation Clinics of North AmericaCitation Excerpt :Despite our challenge to rehabilitation spinal cord services to essentially create tracheostomy tube-free centers in 2006 and the fact that CNVS including via mouthpiece was first described for high-level SCI patients in 1969,54 only 11 other ventilator “unweanable” patients with SCI have been reported to have been decannulated to CNVS and MIE in one center in Portugal at this time.51,55 As noted in John R. Bach and colleagues’article, “Conventional Respiratory Management of Spinal Cord Injury,” in this issue, although it seems that constant struggle of lower level ventilator-free patients with cervical SCI to attain more function creates frustrations that the higher level ventilator-dependent patients do not have; quality of life and life satisfaction are also significantly greater when managed noninvasively.36,49,56 This, combined with the fact that long-term survival of SCI TMV users is extremely poor with no significant improvement in long-term respiratory morbidity and mortality rates over the last 4 years and the fact that noninvasively managed patients with neuromuscular disorders are now surviving far longer than those managed by tracheostomies, for example, 10 years longer for Duchenne muscular dystrophy,57 25 years for severe spinal muscular atrophy type 1,58 and others surviving using CNVS for more than 65 years,23 it seems reasonable to suggest that a noninvasive approach might provide similar benefits for the high-level SCI population as well.
Quality of Life and Adaptation in People With Spinal Cord Injury: Response Shift Effects From 1 to 5 Years Postinjury
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