Abstract
Developing autonomy is a pre-requisite for meaningful participation in society. However, youth leaving secure residential youth care (SRYC) relate that treatment does not prepare them well enough to stand on their own feet. Too often these youth are not involved in decisions regarding their own life and future. The original aim of the present study was to develop an instrument for youth leaving SRYC that evaluates the development of autonomy and participation and puts their perspective central. We chose for participatory design-based research. Several design and evaluation cycles were followed using a combination of qualitative research methods. First, the design requirements regarding purpose, form, and content of the instrument were developed in an iterative process with youth and staff. An important result was that the purpose had to be changed. Youth needed a tool supporting the development of autonomy and participation. The tool was designed and called My Path, and invites youth to reflect on what they want with their life and future and to work on this future in small steps. An instruction manual for professionals explains how to put the youth in the lead while they seek and follow their path. A pilot study provided evidence for the usability and trustworthiness of this method to strengthen autonomy and meaningful participation for youth in SRYC. My Path appeared more broadly applicable due to its normalizing approach. In-depth training of professionals is needed to work with My Path while making sure the youth is steadily in the lead.
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References
Abma TA, Cook T, Rämgård M, Kleba E, Harris J, Wallerstein N (2017) Social impact of participatory health research: collaborative non-linear processes of knowledge mobilization. Educational Action Research 25:89–505. https://doi.org/10.1080/09650792.2017.1329092
Andriessen D (2008) Combining design-based research and action research to test management solutions. In: Boog B, Slagter M, Zeelen J, Preece J (eds) Towards quality improvement of Action research: developing ethics and standards. Sense Publishers, Roterdam, pp 125–134
Andriessen D (2011) Veldprobleem, kennisprobleem, deelvragen. In: Van Aken J, Andriessen D (eds) Handboek ontwerpgericht wetenschappelijk onderzoek. Wetenschap met effect [Handbook Design-focused Scientific Research. Science with effect]. Boom Lemma, Den Haag, pp 119–127
Arnstein SR (1969) A ladder of citizen participation. J Am Inst Plann 35
Babulal GM, Bakhshi P, Kopriva S, Ali SA, Goette SA, Trani J-F (2015) Measuring participation for persons with mental illness: a systematic review assessing relevance of existing scales for low and middle income countries. BMC Psychology 3:36. https://doi.org/10.1186/s40359-015-0093-0
Bergold J, Thomas S (2012) Participatory research methods: a methodological approach in motion. Forum Qualitative Social Research/Social Forschung 13(1):30. http://nbn-resolving.de/urn:nbn:de:0114-fqs1201302
Bramsen I, Kuiper C, Willemse K, Cardol M (2018) My Path towards living on my own: voices of youth leaving Dutch secure residential care child and adolescent. Social Work Journal:1–16. https://doi.org/10.1007/s10560-018-0564-2
Bryson SA et al (2017) What are effective strategies for implementing trauma-informed care in youth inpatient psychiatric and residential treatment settings? A realist systematic review. Int J Ment Heal Syst 11:36. https://doi.org/10.1186/s13033-017-0137-3
Calheiros M, Patrício J, Graça J (2013) Staff and youth views on autonomy and emancipation from residential care: a participatory research study. Eval Program Plann 39:57–66. https://doi.org/10.1016/j.evalprogplan.2013.04.003
Cardol M, De Jong BA, Ward CD (2002) On autonomy and participation in rehabilitation. Disabil Rehabil 24:970–974
Chien CW, Rodger S, Copley J, Skorka K (2014) Comparative content review of children’s participation measures using the international classification of functioning, disability and health-children and youth. Arch Phys Med Rehabil 95:141–152. https://doi.org/10.1016/j.apmr.2013.06.027
De Shazer S, Dolan Y, Korman H, Trepper T, McCollum EIKB (2007) More than miracles: the state of the art of solution-focused brief therapy. Routledge, New York
De Valk S, Van der Helm GHP, Beld P, Schaftenaar C, Kuiper C, Stams GJJM (2015) Does punishment in secure residential youth care work? An overview of evidence. Journal of Children's Services 10:3–16
De Valk S, Kuiper C, Van der Helm GHP, Maas AJJA, Stams GJJM (2016) Repression in residential youth care: a scoping review. Adolescent Research Review 1:195–216. https://doi.org/10.1007/s40894-016-0029-9
De Valk S, Kuiper C, Van der Helm GHP, Maas AJJA, Stams GJJM (2017) Repression in residential youth care: a qualitative study examining the experiences of adolescents in open, secure and forensic institutions. J Adolesc Res 0:0743558417719188. https://doi.org/10.1177/0743558417719188
Doek JE (2009) The CRC 20 years: an overview of some of the major achievements and remaining challenges. Child Abuse Negl 33:771–782. https://doi.org/10.1016/j.chiabu.2009.08.006
Geenen S, Powers LE (2007) Tomorrow is another problem. the experiences of youth in foster care during their transition into adulthood Children and Youth Services Review 29:1085–1101. https://doi.org/10.1016/j.childyouth.2007.04.008
Goodkind S, Schelbe LA, Shook JJ (2011) Why youth leave care: understandings of adulthood and transition successes and challenges among youth aging out of child welfare. Child Youth Serv Rev 33:1039–1048. https://doi.org/10.1016/j.childyouth.2011.01.010
Holland S (2009) Listening to children in care: a review of methodological and theoretical approaches to understanding looked after children’s perspectives. Child Soc 23:226–235. https://doi.org/10.1111/j.1099-0860.2008.00213.x
Ko SJ et al (2008) Creating trauma-informed systems: child welfare, education, first responders, health care, juvenile justice. Prof Psychol Res Pract 39:396–404. https://doi.org/10.1037/0735-7028.39.4.396
Magasi S, Post MW (2010) A comparative review of contemporary participation measures’ psychometric properties and content coverage. Arcives of physical medicine and rehabilitation 91:S17–S28
McDowall JJ (2016) CREATE’s go your own way resource for young people transitioning from care in Australia: an evaluation. CREATE Foundation, Sydney
Moore T, McArthur M, Death J, Tilbury C, Roche S (2017) Young people’s views on safety and preventing abuse and harm in residential care: “It’s got to be better than home”. Children and Youth Services Review 81:212–219. https://doi.org/10.1016/j.childyouth.2017.08.010
Morgan DL (2003) Focus groups. In: Fielding N (ed) Interviewing, vol I. Sage benchmarks in social science research. Sage, London, pp 323–346
Munro ER (2011) The Munro review of child protection: final report. A child-centred system, Crown, London
Nijhof KS (2011) Crossing barriers: evaluation of a new compulsory residential treatment program for youth. Radboud Universiteit Nijmegen, Nijmegen
Nunno MA, Holden MJ, Leidy B (2003) Evaluating and monitoring the impact of a crisis intervention system on a residential child care facility. Children and Youth Services Review 25:295–315
O'Brien CL (2000) The origins of person-centered planning [microform] : a community of practice perspective / Connie Lyle O’Brien and John O'Brien. vol Accessed from https://nla.gov.au/nla.cat-vn5684507. Distributed by ERIC Clearinghouse, [Washington, D.C.]
Omer H (2004) Nonviolent resistance. A new approach to violent and self-destructive children. Cambridge University Press, New York
Ortner S (2006) Anthropology and social theory: culture, power, and the acting subject. Duke University Press, Durham
Pieters M, Jansen S (2017) The 7 principles of complete co-creation. BIS Publishers, Amsterdam
Rauktis ME (2016) ‘When you first get there, you wear red’: youth perceptions of point and level systems in group home care. Child Adolesc Soc Work J 33:91–102. https://doi.org/10.1007/s10560-015-0406-4
Ryan RM, Deci EL (2017) Self-determination theory. In: Basic psychological needs in motivation, development, and wellness. Guilford Press, New York
Samuels GM, Pryce JM (2008) “What doesn’t kill you makes you stronger”: survivalist self-reliance as resilience and risk among young adults aging out of foster care. Child Youth Serv Rev 30:1198–1210. https://doi.org/10.1016/j.childyouth.2008.03.005
Stein M (2006) Research review: young people leaving care child and family. Soc Work 11:273–279
Stoljar N (2015) Feminist perspectives on autonomy. In: Zalta EN (ed) The Stanford Encyclopedia of Philosophy (Fall 2015 edition). https://plato.stanford.edu/archives/fall2015/entries/feminism-autonomy/
ten Brummelaar MDC, Kalverboer ME, Harder AT, Post WJ, Zijlstra AE, Knorth EJ (2014) The best interest of the child self-report questionnaire (BIC-S): results of a participatory development process. Child Indic Res 7:569–588. https://doi.org/10.1007/s12187-013-9225-3
Ter Beek E (2018) To treat or not to treat? Harmful sexual behavior in adolescence: needs before risk. University of Amsterdam, Amsterdam
Trout AL, Chmelka MB, Thompson RW, Epstein MH, Tyler P, Pick R (2010) The departure status of youth from residential group care: implications for aftercare. J Child Fam Stud 19:67–78
Van Bijleveld GG, Dedding CWM, Bunders-Aelen JFG (2015) Children’s and young people’s participation within child welfare and child protection services: a state-of-the-art review. Child Fam Soc Work 20:129–138. https://doi.org/10.1111/cfs.12082
Van der Kolk BA (2014) The body keeps the score. Mind, brain and body in the transformation of trauma. Penguin Books, New York
Van der Helm GHP, Kuiper CHZ, Stams GJJM (2018) Group climate and treatment motivation in secure residential and forensic youth care from the perspective of self determination theory. Children and Youth Services Review. https://doi.org/10.1016/j.childyouth.2018.07.028
Wehmeyer M, Kelchner K (1995) The Arc’s self-determination scale: procedural guidelines. The Arc National Headquarters, Arlington
Whittaker JK et al (2016) Therapeutic residential care for children and youth: a consensus statement of the international work group on therapeutic residential care*. Resid Treat Child Youth 33:89–106. https://doi.org/10.1080/0886571X.2016.1215755
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We would like to thank the youth participants and the professionals.
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This study would not have been possible without the financial support of the Province of South Holland.
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All procedures performed in this study were in accordance with the ethical standards of the institutional and national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
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Informed consent was obtained from all individual participants and the appropriate institution for minors included in the study.
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Bramsen, I., Kuiper, C., Willemse, K. et al. The Creation of My Path: a Method to Strengthen Relational Autonomy for Youth with Complex Needs. JAYS 4, 31–50 (2021). https://doi.org/10.1007/s43151-020-00029-x
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DOI: https://doi.org/10.1007/s43151-020-00029-x