Abstract
Objectives
Autism spectrum disorder (ASD) is a neurodevelopmental disorder resulting in significant impairment in social and communication areas. Individuals with ASD often require a substantial degree and amount of services and expenditures throughout their lifespan. This study examined service delivery experiences of family caregivers and service providers of children with ASD.
Methods
A basic qualitative research design founded in phenomenology was conducted. Ten participants were enrolled and interviewed. Interview data were collected and coded to produce a qualitative analysis of the experiences of these individuals who either care for or deliver services to children with ASD.
Results
Results indicate the top five themes for service providers and family caregivers included areas of (a) collaboration, (b) education, (c) family support/involvement, (d) child-centered care, and (e) accessibility and availability.
Conclusions
These findings can contribute to better understanding and improving future service delivery for supporting family caregivers and their children with ASD.
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RS: designed and executed the study, conducted the data analyses, and wrote the paper. CN: collaborated with the design and writing of the study, collaborated and assisted with data analyses, and editing of the final manuscript. RT: collaborated with writing of the study, assisted with design and data analyses, and editing of the final manuscript. YG: collaborated with writing of the study methods, assisted with data analyses, and editing of the final manuscript.
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The study was approved by the Institutional Review Board at Western Kentucky University.
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Severs, R.N., Noel, C.R., Talley, R.C. et al. A Collaborative Perspectives Approach for Effective Care Coordination in Autism Spectrum Disorder. Adv Neurodev Disord 4, 176–189 (2020). https://doi.org/10.1007/s41252-020-00154-x
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DOI: https://doi.org/10.1007/s41252-020-00154-x