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A Qualitative Analysis of the Experiences of Minority Parents of Children with Autism Spectrum Disorder

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Abstract

The purpose of this study is to explore the experience of minority parents’ related to raising a child with autism spectrum disorder (ASD), with a specific focus on difficulties within communication and adaptation. Culturally and linguistically diverse families are under-represented in the literature concerning family adaptation to a child with ASD and present specific challenges for healthcare providers in providing care for families. The study involved qualitative analysis of focus groups with six culturally diverse families of children with ASD. Parents needed to discuss challenges related to spiritual support, stress, family teamwork, coping strategies, culture, resources, and their concerns for the future. The unique dialogue and stories provide talking points to discuss with parents. This study identifies the importance of communication and connecting parents with support groups and resources to help them effectively parenting a child with ASD.

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Acknowledgements

This study was funded by the University of South Alabama, College of Nursing Dean’s Grant. We would like to thank the families who participated in this research study, the Easter Seals of Mobile, Alabama, and the University of South Alabama Autism Diagnostic Clinic for supporting this research.

Author’s Contributions

HH designed and executed the study, analyzed the data, and wrote the paper. SF collaborated in the design and execution of the study, assisted with the data collection, assisted with analyzing data, and collaborated in the writing of the study. KZ collaborated in the writing and editing of the final manuscript. HS assisted with recruitment of the participants for the study and collaborated in the editing of the final manuscript.

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Authors and Affiliations

  1. University of South Alabama, 5721 USA North Drive, HAHN 3068, Mobile, AL, 36688, USA

    Heather R. Hall & Sharon Fruh

  2. University of South Alabama College of Nursing, 5721 USA North Drive, HAHN 3068, Mobile, AL, 36688, USA

    Heather R. Hall

  3. University of South Alabama, UCOM 1000, 75 South University Boulevard, Mobile, AL, 36688, USA

    Kimberly Zlomke

  4. Strada Patient Care Center, University of South Alabama, Suite 1F, 1601 Center Street, Mobile, AL, 36604, USA

    Hanes Swingle

Authors
  1. Heather R. Hall
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  2. Sharon Fruh
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  3. Kimberly Zlomke
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  4. Hanes Swingle
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Correspondence to Heather R. Hall.

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Hall, H.R., Fruh, S., Zlomke, K. et al. A Qualitative Analysis of the Experiences of Minority Parents of Children with Autism Spectrum Disorder. Adv Neurodev Disord 1, 79–88 (2017). https://doi.org/10.1007/s41252-017-0015-7

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