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Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy

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Abstract

Purpose

The aim of this study was to investigate the relation between the physical problems of children with CP and caregiving burden and the emotional expression characteristics of caregivers.

Methods

The study included 144 caregivers of child with cerebral palsy and Zarit Burden Interview (ZBI) and Expressed Emotion Scale (EES) will be applied to the caregivers who will participate in the study. Disease severity of children with cerebral palsy will be evaluated by the Gross Motor Function Classification System (GMFCS) and Manual Ability Classification System (MACS) in children with cerebral palsy. Communication Function Classification System (CFCS) will be used to examine the communication of children with their families.

Results

Accordingly, a positive, statistically significant, moderate correlation was found between the GMFCS, MACS, and CFCS scores and ZBI scores in patients with cerebral palsy (r ~ 0.50; p < 0.01). In this study, a positive, statistically significant but weak correlation was found between GMFCS, MACS, and CFCS scores and EES scores in patients with cerebral palsy (r ~ 0.30; p < 0.01). A statistically significant, moderate correlation was found between ZBI and EES (r ~ 0.50; p < 0.01).

Conclusion

According to the results of our study, as motor skills and communication skills decrease, especially the burden of caregivers increases and the family’s emotional expression processes are related to these variables. We think that in the long-term follow-up of children with CP, it may be useful to provide appropriate psychiatric support by evaluating caregivers appropriately.

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Acknowledgements

The authors thank all the study participants and clinical staff who helped with this article.

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Authors and Affiliations

  1. Dışkapı Yıldırım Beyazıt Research and Training Hospital, Psychiatry Clinic, University of Health Sciences, Ankara, Turkey

    Fatih Yığman

  2. Polatlı Duatepe State Hospital, Physical Medicine and Rehabilitation Clinic, Ankara, Turkey

    Zeynep Aykın Yığman

  3. Dışkapı Yıldırım Beyazıt Research and Training Hospital, Physical Medicine and Rehabilitation Clinic, University of Health Sciences, Ankara, Turkey

    Ece Ünlü Akyüz

Authors
  1. Fatih Yığman
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  2. Zeynep Aykın Yığman
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  3. Ece Ünlü Akyüz
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Contributions

FY, ZAY, and EUA took part in the study design, conduct of the study, literature review and preparation of the article and conduct of the study. All authors have seen and approved the final draft. FY will act as guarantor for this post.

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Correspondence to Fatih Yığman.

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Yığman, F., Aykın Yığman, Z. & Ünlü Akyüz, E. Investigation of the relationship between disease severity, caregiver burden and emotional expression in caregivers of children with cerebral palsy. Ir J Med Sci 189, 1413–1419 (2020). https://doi.org/10.1007/s11845-020-02214-6

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  • DOI: https://doi.org/10.1007/s11845-020-02214-6

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