ABSTRACT
INTRODUCTION
Shared decision-making (SDM) between patients and their physicians is associated with improved diabetes health outcomes. African-Americans have less SDM than Whites, which may contribute to diabetes racial disparities. To date, there has been little research on SDM among African-Americans.
OBJECTIVE
We explored the barriers and facilitators to SDM among African-Americans with diabetes.
METHODS
Qualitative research design with a phenomenological methodology using in-depth interviews (n = 24) and five focus groups (n = 27). Each interview/focus group was audio-taped and transcribed verbatim, and coding was conducted using an iterative process. Participants: We utilized a purposeful sample of African-American adult patients with diabetes. All patients had insurance and received their care at an academic medical center.
RESULTS
Patients identified multiple SDM barriers/facilitators, including the patient/provider power imbalance that was perceived to be exacerbated by race. Patient-related factors included health literacy, fear/denial, family experiences and self-efficacy. Reported physician-related barriers/facilitators include patient education, validating patient experiences, medical knowledge, accessibility and availability, and interpersonal skills.
DISCUSSION
Barriers/facilitators of SDM exist among African-Americans with diabetes, which can be effectively addressed in the outpatient setting. Primary care physicians, particularly academic internists, may be uniquely situated to address these barriers/facilitators and train future physicians to do so as well.
REFERENCES
Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med. 1999;49:651–61.
Larson EB, Fihn SD, Kirk LM, et al. The future of general internal medicine. Report and recommendations from the Society of General Internal Medicine (SGIM) Task Force on the Domain of General Internal Medicine. J Gen Intern Med. 2004;19(1):69–77.
Richardson WC, Berwick DM, Bisgard JD, et al. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington: Institute of Medicine; 2001.
Stewart M, Brown JB, Donner A, et al. The impact of patient-centered care on outcomes. J Fam Pract. 2000;49:796–804.
Greenfield S, Kaplan SH, Ware JE, Yano EM, Frank HJ. Patients’ participation in medical care: effects on blood sugar control and quality of life in diabetes. J Gen Intern Med. 1988;3:448–57.
Cooper-Patrick L, Gallo JJ, Gonzales JJ, et al. Race, gender, and partnership in the patient-physician relationship. JAMA. 1999;282:583–9.
Johnson RL, Roter D, Powe NR, Cooper LA. Patient race/ethnicity and quality of physician communication during medical visits. Am J Public Health. 2004;94:2084–90.
U.S. Commission on Civil Rights. Available at: http://www.usccr.gov/. Accessed on June 4, 2009.
Richter DL, Kenzig MJ, Greaney ML, McKeown RE, Saunders RP, Corwin SJ. Physician-patient interaction and hysterectomy decision making: the ENDOW study. Ethnicity, needs, and decisions of women. Am J Health Behav. 2002;26(6):431–41.
Sanchez MA, Bowen DJ, Hart A Jr, Spigner C. Factors influencing prostate cancer screening decisions among African American men. Ethn Dis. 2007;17(2):374–80.
Peek ME, Quinn MT, Gorawara-Bhat R, Odoms-Young A, Wilson SC, Chin MH. How is shared decision-making defined among African-Americans with diabetes? Patient Educ Couns. 2008;72(3):450–58.
Glaser BG, Strauss AL. The discovery of grounded theory. Chicago: Aldine; 1967.
Charles C, Gafini A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango). Soc Sci Med. 1997;44:681–92.
Ajzen I. The theory of planned behavior. Org Behav Human Decis Process. 1991;50:179–211.
McLeroy KR, Bibeau D, Steckler A, Glanz K. An ecological perspective on health promotion programs. Health Educ Q. 1988;15:351–77.
Morgan DL. Focus groups as qualitative research. 2nd ed. Thousand Oaks, CA: Sage; 1997.
Jacobs EA, Rolle I, Ferrans CE, Whitaker EE, Warnecke RB. Understanding African Americans’ views of the trustworthiness of physicians. J Gen Intern Med. 2006;21(6):642–47.
Ong LML, de Haes JCJM, Hoos AM, Lammes FB. Doctor-patient communication: A review of the literature. Soc Sci and Med. 1995;40(7):903–8.
Paasche-Orlow MK, Parker RM, Gazmararian JA, Nielsen-Bohlman LT, Rudd RR. The prevalence of limited health literacy. J Gen Intern Med. 2005;20:175–84.
Coffman MJ. Effects of tangible social support and depression on diabetes self-efficacy. J Gerontological Nursing. 2008;34(4):32–9.
ACKNOWLEDGEMENTS
This research was supported by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) Diabetes Research and Training Center (P60 DK20595). Dr. Peek is supported by the Robert Wood Johnson Foundation (RWJF) Harold Amos Medical Faculty Development program and the Mentored Patient-Oriented Career Development Award of the National Institute of Diabetes and Digestive and Kidney Diseases (K23 DK075006). Support for Dr. Chin is provided by a Midcareer Investigator Award in Patient-Oriented Research from the NIDDK (K24 DK071933-01).
The funding sources had no role in the design and conduct of the study; collection, management, analysis, or interpretation of the data; and preparation, review, or approval of the manuscript for publication. Dr. Peek had full access to all of the data in the study and takes responsibility for the integrity of the data and the accuracy of the data analysis.
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None disclosed.
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An abstract of this work was presented at the Society of General Internal Medicine 31st Annual Meeting, Pittsburgh, PA, April 9–12, 2008.
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Peek, M.E., Wilson, S.C., Gorawara-Bhat, R. et al. Barriers and Facilitators to Shared Decision-making Among African-Americans with Diabetes. J GEN INTERN MED 24, 1135–1139 (2009). https://doi.org/10.1007/s11606-009-1047-0
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DOI: https://doi.org/10.1007/s11606-009-1047-0