Abstract
Children's mental health researchers are increasingly recognizing the importance of caregiver strain (i.e., the impact on families of caring for children with emotional and behavioral disorders). This study examined the caregiver, child, family, and service variables associated with caregiver strain with special attention to the role of barriers to care. These relationships were compared across enrollees in a managed care Medicaid and a traditional fee-for-service system. Findings indicated that severity of child problems was the most consistent predictor of caregiver strain. Although there was considerable similarity in the variables associated with caregiver strain across the two systems, important differences were also evident. Caregivers in the managed care setting were significantly more likely to report provider/payer-related barriers to care. Provider/payer barriers predicted strain in the managed care sample. In the fee-for-service system, barriers related to family perceptions and inconvenient location and appointment times were significant predictors.
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Angold A, Messer SC, Stangl D, et al. Perceived parental burden and service use for child and adolescent psychiatric disorders. American Journal of Public Health. 1989;88:75–80.
Brannan AM, Heflinger CA, Bickman L. The Caregiver Strain Questionnaire: Measuring the impact on the family of living with a child with serious emotional problems. Journal of Emotional and Behavioral Disorders. 1997;5:212–222.
McDonald TP, Poertner J, Pierpont J. Predicting caregiver stress: An ecological perspective. American Journal of Orthopsychiatry. 1999;69:100–109.
Yatchmenoff DK, Koren PE, Friesen BJ, et al. Enrichment and stress in families caring for a child with a serious emotional disorder. Journal of Child and Family Studies. 1998;7:129–145.
Hoenig J, Hamilton MW. The schizophrenic patient in the community and his effect on the household. International Journal of Social Psychiatry. 1967;12:165–176.
Platt S. Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales. Psychological Medicine. 1985;15:383–393.
Bussing R, Zima BT, Gary FA, et al. Social networks, caregiver strain, and utilization of mental health services among elementary school students at high risk for ADHD. Journal of the American Academy of Child and Adolescent Psychiatry. 2003;42:842–851.
Farmer EMZ, Burns BJ, Angold A, et al. Impact of children's mental health problems on families: Relationship with service use. Journal of Emotional and Behavioral Disorders. 1997;5:230–238.
Garland AF, Aarons GA, Brown SA, et al. Diagnostic profiles associated with use of mental health and substance abuse services among high-risk youths. Psychiatric Services. 2003;54:562–564.
Bickman L, Foster EM, Lambert EW. Who gets hospitalized in a continuum of care. Journal of the American Academy of Child and Adolescent Psychiatry. 1996;35:74–80.
Brannan AM, Heflinger CA. Predictors of child mental health service utilization patterns: Comparison of managed care and fee-for-service Medicaid systems. Mental Health Services Research. 2006;13:237–246.
Brannan AM, Heflinger CA, Foster EM. The role of caregiver strain and other family variables in determining children's use of mental health services. Journal of Emotional and Behavioral Disorders. 2003;11:77–91.
Cook J, Heflinger CA, Hoven CW, et al. A multi-site study of Medicaid-funded managed care versus fee-for-service plans' effects on mental health service utilization of children with severe emotional disturbance. Journal of Behavioral Health Services & Research. 2004;31:384–402.
Foster EM, Saunders RC, Summerfelt WT. Predicting level of care in mental health services under a continuum of care. Evaluation and Program Planning. 1996;23:92–107.
Foster EM. Does the continuum of care influence time in treatment? Evaluation Review. 1998;22:447–469.
Foster EM. Does the continuum of care reduce inpatient length of stay? Evaluation and Program Planning. 2000;23:53–65.
Kazdin AE, Whitley MK. Treatment of parental stress to enhance therapeutic change among children referred for aggressive and antisocial behavior. Journal of Consulting and Clinical Psychology. 2003;71:504–515.
Baker DB, McCal K. Parenting stress in parents of children with attention-deficit hyperactivity disorder and parents of children with learning disabilities. Journal of Child and Family Studies. 1995;4:57–68.
Brannan AM, Heflinger CA. Distinguishing caregiver strain from psychological distress: Modeling the relationships among child, family, and caregiver variables. Journal of Child and Family Studies. 2001;10:405–418.
Heflinger CA, Brannan AM. Differences in the experience of caregiver strain between families caring for youth with substance use disorders and families of youth with mental health problems. Journal of Child and Adolescent Substance Abuse. 2006;50:83–104.
McCabe K, Yeh M, Lau A, Garland A, Hough R. Racial/ethnic differences in caregiver strain and perceived social support among parents of youth with emotional and behavioral disorders. Mental Health Service Research. 2003;5:137–148.
McDonald TP, Gregoire TK, Poertner J, Early T. Building a model of family caregiving for children with emotional disorders. Journal of Emotional and Behavioral Disorders. 1997;5:138–148.
Kang EJ, Brannan AM, Heflinger CA. Racial differences in responses to the Caregiver Strain Questionnaire. Journal of Child and Family Studies. 2005;14:43–56.
Heflinger CA, Taylor-Richardson KD. Caregiver strain in families of children with serious emotional disturbances: Does relationship to child make a difference? Journal of Social Work. 2005;8:27–45.
Bernheim KF. Psychologists and families of the severely mentally ill. American Psychologist. 1989;44:561–564.
Tarico VS, Low BP, Trupin E, et al. Children's mental health services: A parent perspective. Community Mental Health Journal. 1989;25:313–326.
Heflinger CA, Simpkins CG, Scholle SH, et al. Parent/caregiver satisfaction with their child's Medicaid plan and behavioral health providers. Mental Health Services Research. 2003;6:23–32.
Bussing R, Zima BT, Gary FA, et al. Barriers to detection, help-seeking, and service use for children with ADHD symptoms. Journal of Behavioral Health Services & Research. 2003;30:176–190.
Kazdin AE, Holland L, Crowley M. Family experiences of barriers to treatment and premature termination from child therapy. Journal of Consulting and Clinical Psychology. 1997;65:453–463.
Kazdin AE, Wassell G. Predictors of barriers to treatment and therapeutic change in outpatient therapy for antisocial children and their families. Mental Health Services Research. 2000;2:27–40.
Owens PL, Hoagwood K, Horwitz SM, Leaf PJ, Poduska JM, Kellam SG, Ialongo NS. Barriers to children's mental health services. Journal of the American Academy of Child and Adolescent Psychiatry. 2002;41:731–738.
Yeh M, McCabe K, Hough RL, Dupuis D, Hazen A. Racial/ethnic differences in parental endorsement of barriers to mental health services for youth. Mental Health Services Research. 2003;5:65–77.
Smilkstein G, Ashworth C, Montano D. Validity and reliability of the Family APGAR as a test of family function. Journal of Family Practice. 1982;15:303–311.
Achenbach TM. Manual for the Child Behavior Checklist and 1991 Profile. Burlington: University of Vermont Department of Psychiatry; 1991.
Bird HR, Shaffer D, Fisher P, et al. The Columbia Impairment Scale: Pilot findings on a measure of global impairment for children and adolescents. International Journal of Methods in Psychiatric Research. 1993;3:167–176.
Tabachnick BG, Fidell LS. Using Multivariate Statistics, 2nd ed. NY: Harper Collins; 1985.
Baronet AM. The impact of family relations on caregivers' positive and negative appraisal of their caretaking activities. Family Relations. 2003;52:137–142.
Mak WS. Integrative model of caregiving: How macro and micro factors affect caregivers of adults with severe and persistent mental illness. American Journal of Orthopsychiatry. 2005;75:40–53.
Stroul B, Friedman R. A System of Care for Severely Emotionally Disturbed Children and Youth. Washington, DC: CASSP Technical Assistance Center; 1986 (revised).
Huang L, Stroul B, Friedman R, Mrazek P, Friesen B, Pires S, Mayberg S. Transforming mental health care for children and their families. American Psychologist. 2005;60:615–627.
Acknowledgments
Preparation of this manuscript was supported by the National Institute of Mental Health (grant no. R21 MH 067905-02) and a pilot grant from the Family Research Program of the Vanderbilt Kennedy Center for Research on Human Development. The authors would like to extend a special thanks to the families who participated in this research.
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Brannan, A.M., Heflinger, C.A. Caregiver, Child, Family, and Service System Contributors to Caregiver Strain in Two Child Mental Health Service Systems. J Behav Health Serv Res 33, 408–422 (2006). https://doi.org/10.1007/s11414-006-9035-1
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DOI: https://doi.org/10.1007/s11414-006-9035-1