Abstract
The current research addresses the effect that being in an intimate relationship has on quality of life and well-being among high-functioning young adults on the autism spectrum (HFA). The research included 31 participants: 14 involved in intimate relationships (HFA-R) and 17 not (HFA-NR). In this integrated (quantitative and qualitative) research, participants completed on-line questionnaires on demographics, quality of life and sexuality. We hypothesized that HFA-R will report higher quality of life and sexual well-being than HFA-NR. Further, a correlation was predicted between quality of life (including: satisfaction, productive capacity, social belonging/community inclusion and independence and empowerment) and sexual well-being (including: self-esteem, sexual depression and sexual preoccupation/sexual worries), especially among HFA-R. Despite the lack of significant differences in quality of life, differences were found in the indices’ content areas. There was a higher sense of social belonging/community inclusion among HFA-R, and a positive correlation between sexual well-being and productive capacity among this group. A correlation was found between high productive capacity and low sexual worries among HFA-R, but not among HFA-NR. Contrary to expectations, a positive correlation was found between sexual well-being and satisfaction among HFA-NR, while no such correlation was found among HFA-R. The findings are discussed in the context of healthy sexuality and social development and acclimation of people with HFA. The results highlight the importance of promoting social dialogue and research on the subject.
Similar content being viewed by others
References
Byers, E.S., Nichols, S., Voyer, S.D.: Challenging stereotypes: sexual functioning of single adults with high functioning autism spectrum disorder. J. Autism Dev. Disord. 43, 2617–2627 (2013). doi:10.1007/s10803-013-1813-z
SIECUS. Sexuality of Persons with Disabilities. Sexuality Information and Education Council of the United States. (2010). Retrieved 27 from Jan 2010. http://www.siecus.org
World Health Organization. Defining Sexual Health. World Health Organization (2006) Retrieved from http://www.who.int/reproductivehealth/publications/sexual_health/defining_sexual_health.pdf
Urbano, M.R., Polychronopoulos, G.M.B., Hartmann, K., Deutsch, S.I., Dorbin, V.: Relationships, Sexuality, and Intimacy in Autism Spectrum Disorders. INTECH Open Access Publisher, London (2013)
Stephenson, K.R., Meston, C.M.: The conditional importance of sex: exploring the association between sexual well-being and life satisfaction. J. Sex Marital Ther. 41, 25–38 (2015). doi:10.1080/0092623X.2013.811450
Byers, E.S., Nichols, S.: Sexual satisfaction of high-functioning adults with autism spectrum disorder. Sex. Disabil. 32, 365–382 (2014). doi:10.1007/s11195-014-9351-y
Snell, W., Papini, D.: The sexuality scale: an instrument to measure sexual-esteem, sexual-depression, and sexual-preoccupation. J. Sex. Res. 26, 256–263 (1989). doi:10.1080/00224498909551510
Danckaerts, M., Sonuga-Barke, E.J., Banaschewski, T., Buitelaar, J., Döpfner, M., Hollis, C., Taylor, E.: The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. Eur. Child Adolesc. Psychiatry 19, 83–105 (2010). doi:10.1007/s00787-009-0046-3
WHOQOL Group: The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Soc. Sci. Med. 41, 1403–1409 (1995). doi:10.1016/0277-9536(95)00112-K
Schalock, R.L., Hoffman, K., Keith, K.D.: Quality of Life Questionnaire. International Diagnostic Systems Publishing Corporation, Orland Park (1993)
Schalock, R.L., Bonham, G.S., Verdugo, M.A.: The conceptualization and measurement of quality of life: implications for program planning and evaluation in the field of intellectual disabilities. Eval. Progr. Plan. 31, 181–190 (2008). doi:10.1016/j.evalprogplan.2008.02.001
Van der Horst, M., Coffé, H.: How friendship network characteristics influence subjective well-being. Soc. Indic. Res. 107, 509–529 (2012). doi:10.1007/s11205-011-9861-2
Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., Lobbestael, J., Van Nieuwenhuizen, C.: Sexuality in adolescent boys with autism spectrum disorder: self-reported behaviours and attitudes. J. Autism Dev. Disord. 45, 731–741 (2015)
Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., Deboutte, D.: Sexual behavior in high-functioning male adolescents and young adults with autism spectrum disorder. J. Autism Dev. Disord. 37, 260–269 (2007). doi:10.1007/s10803-006-0159-1
Renty, J., Roeyers, H.: Individual and marital adaptation in men with autism spectrum disorder and their spouses: the role of social support and coping strategies. J. Autism Dev. Disord. 37, 1247–1255 (2007). doi:10.1007/s10803-006-0268-x
Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., van Nieuwenhuizen, C.: Autism and normative sexual development: a narrative review. J. Clin. Nurs. 22, 3467–3483 (2013). doi:10.1111/jocn.12397
Hough, S.: From the editor of sexuality and disability: hot topics in the field of sexuality. Sex. Disabil. (2012). doi:10.1007/s11195-012-9283-3
American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders (DSM-5). American Psychiatric Publication, New York (2013)
Noterdaeme, M., Wriedt, E., Höhne, C.: Asperger’s syndrome and high-functioning autism: language, motor and cognitive profiles. Eur. Child Adoles. Psychiatry 9, 475–481 (2010). doi:10.1007/s00787-009-0057-0
Strunz, S., Schermuck, C., Ballerstein, S., Ahlers, C.J., Dziobek, I., Roepke, S.: Romantic relationships and relationship satisfaction among adults with Asperger Syndrome and high-functioning autism. J. Clin. Psychol. 73, 113–125 (2017). doi:10.1002/jclp.22319
Rosqvist, H.B.: Becoming an ‘autistic couple’: narratives of sexuality and couplehood within the Swedish autistic self-advocacy movement. Sex. Disabil. 32, 351–363 (2014). doi:10.1007/s11195-013-9336-2
Gilmour, L., Schalomon, P.M., Smith, V.: Sexuality in a community based sample of adults with autism spectrum disorders. Res. Autism Spect. Disord. 6, 313–318 (2012). doi:10.1016/j.rasd.2011.06.003
Stokes, M.A., Kaur, A.: High-functioning autism and sexuality a parental perspective. Autism 9, 266–289 (2005). doi:10.1177/1362361305053258
Kellaher, D.C.: Sexual behavior and autism spectrum disorders: an update and discussion. Curr. Psychiatry Rep. 17, 1–8 (2015). doi:10.1007/s11920-015-0562-4
Hénault, I.: Asperger’s Syndrome and Sexuality: From Adolescence Through Adulthood. Jessica Kingsley Publishers, London (2015)
Mehzabin, P., Stokes, M.A.: Self-assessed sexuality in young adults with high-functioning autism. Res. Autism Spect. Disord. 5, 614–621 (2011). doi:10.1016/j.rasd.2010.07.006
Sevlever, M., Roth, M.E., Gillis, J.M.: Sexual abuse and offending in autism spectrum disorders. Sex. Disabil. 31, 189–200 (2013). doi:10.1007/s11195-013-9286-8
Travers, J., Tincani, M.: Sexuality education for individuals with autism spectrum disorders: critical issues and decision making guidelines. Educ. Train. Autism Dev. Disab. 45, 284–293 (2010)
Stokes, M., Newton, N., Kaur, A.: Stalking, and social and romantic functioning among adolescents and adults with autism spectrum disorder. J. Autism Dev. Disord. 37, 1969–1986 (2007). doi:10.1007/s10803-006-0344-2
Dewinter, J., Vermeiren, R.R.J.M., Vanwesenbeeck, I., Van Nieuwenhuizen, C.: Parental awareness of sexual experience in adolescent boys with autism spectrum disorder. J. Autism Dev. Disord. 46, 713–719 (2016)
Cridland, E.K., Jones, S.C., Caputi, P., Magee, C.A.: Being a girl in a boys’ world: investigating the experiences of girls with autism spectrum disorders during adolescence. J. Autism Dev. Disord. 44, 1261–1274 (2014). doi:10.1007/s10803-013-1985-6
Miller, S.A., Byers, E.S.: Actual and desired duration of foreplay and intercourse: discordance and misperceptions within heterosexual couples. J. Sex Res. 41, 301–309 (2004). doi:10.1080/00224490409552237
Barneveld, P.S., Swaab, H., Fagel, S., van Engeland, H., de Sonneville, L.M.: Quality of life: a case-controlled long-term follow-up study, comparing young high-functioning adults with autism spectrum disorders with adults with other psychiatric disorders diagnosed in childhood. Compr. Psychiatry 55, 302–310 (2014). doi:10.1016/j.comppsych.2013.08.001
Van Heijst, B.F., Geurts, H.M.: Quality of life in autism across the lifespan: a meta-analysis. Autism 19, 158–167 (2015). doi:10.1177/1362361313517053
Cottenceau, H., Roux, S., Blanc, R., Lenoir, P., Bonnet-Brilhault, F., Barthélémy, C.: Quality of life of adolescents with autism spectrum disorders: comparison to adolescents with diabetes. Eur. Child Adoles. Psychiatry 21, 289–296 (2012). doi:10.1007/s00787-012-0263-z
Whitehouse, A.J., Durkin, K., Jaquet, E., Ziatas, K.: Friendship, loneliness and depression in adolescents with Asperger’s syndrome. J. Adolesc. 32, 309–322 (2009). doi:10.1016/j.adolescence.2008.03.004
Locke, J., Ishijima, E.H., Kasari, C., London, N.: Loneliness, friendship quality and the social networks of adolescents with high functioning autism in an inclusive school setting. J. Res. Spec. Educ. Needs 10(2), 74–81 (2010). doi:10.1111/j.1471-3802.2010.01148.x
Gantman, A., Kapp, S.K., Orenski, K., Laugeson, E.A.: Social skills training for young adults with high-functioning autism spectrum disorders: a randomized controlled pilot study. J. Autism Dev. Disord. 42, 1094–1103 (2012). doi:10.1007/s10803-011-1350-6
Hong, J., Bishop-Fitzpatrick, L., Smith, L.E., Greenberg, J.S., Mailick, M.R.: Factors associated with subjective quality of life of adults with autism spectrum disorder: self-report versus maternal reports. J. Autism Dev. Disord. 46, 1368–1378 (2016). doi:10.1007/s10803-015-2678-0
Bishop-Fitzpatrick, L., Mazefsky, C.A., Minshew, N.J., Eack, S.M.: The relationship between stress and social functioning in adults with autism spectrum disorder and without intellectual disability. Autism Res. 8, 164–173 (2015). doi:10.1002/aur.1433
Brown-Lavoie, S.M., Viecili, M.A., Weiss, J.A.: Sexual knowledge and victimization in adults with autism spectrum disorders. J. Autism Dev. Disord. 44, 2185–2196 (2014). doi:10.1007/s10803-014-2093-y
Curtiss, S.L., Ebata, A.T.: Building capacity to deliver sex education to individuals with autism. Sex. Disabil. 34, 27–47 (2016). doi:10.1007/s11195-016-9429-9
Travers, J., Tincani, M.: Sexuality education for individuals with autism spectrum disorders: critical issues and decision making guidelines. Educ. Train. Autism Dev. Disabil. 45, 284–293 (2010)
Mackenzie, R., Watts, J.: Sexual health, neurodiversity and capacity to consent to sex. Tizard Learn. Disabil. Rev. 18, 88–98 (2013). doi:10.1108/13595471311315119
Gerhardt, P.F., Lainer, I.: Addressing the needs of adolescents and adults with autism: a crisis on the horizon. J. Contemp. Psychother. 41, 37–45 (2011). doi:10.1007/s10879-010-9160-2
Israel Ministry of Health: Evaluation of Children in the Autism Spectrum. Israel Ministry of Health, Jerusalem (2013). Retrieved from https://www.health.gov.il/hozer/mk15_2013.pdf
Noyman, R.: The characteristics, meanings and implications of couples relationships from the perspective of people with intellectual disability living as couples: a comparison of quality of life and self-esteem in couple’s relationships versus relationships between friends. Doctoral dissertation, University of Haifa, Haifa, Israel (2013)
Moin, V., Duvdevany, I., Mazor, D.: Sexual identity, body image and life satisfaction among women with and without physical disability. Sex. Disabil. 27, 83–95 (2009). doi:10.1007/s11195-009-9112-5
Byers, E.S., Nichols, S., Voyer, S.D., Reilly, G.: Sexual well-being of a community sample of high-functioning adults on the autism spectrum who have been in a romantic relationship. Autism 17, 418–433 (2013). doi:10.1177/1362361311431950
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of interest
Shiri Pearlman-Avnion, Noa Cohen and Anat Eldan declares that they have no conflict of interest.
Ethical Approval
All procedures performed in studies involving human participants were in accordance with the ethical standards of Tel Hai Academic College and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Human and Animals Rights
This article does not contain any studies with animals performed by any of the authors.
Informed Consent
Informed consent was obtained from all individual participants included in the study.
Rights and permissions
About this article
Cite this article
Pearlman-Avnion, S., Cohen, N. & Eldan, A. Sexual Well-Being and Quality of Life Among High-Functioning Adults with Autism. Sex Disabil 35, 279–293 (2017). https://doi.org/10.1007/s11195-017-9490-z
Published:
Issue Date:
DOI: https://doi.org/10.1007/s11195-017-9490-z